How many people know: Hello After... - Fibromyalgia Acti...

Fibromyalgia Action UK

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How many people know

9 Replies

Hello

After having fibro for the last 5 years, well longer but did

Not know what it was. I am still not able to tell when I am

Going to have a flare.

How many people know before it happens, and what are

Your symptoms interested to know

Thank you

Viv x

9 Replies
Julie63 profile image
Julie63

I just start not being able to move or think. I just stare at the tv, not registering what's on, getting so tired that I feel sick & hot & dizzy & have to sit down if I try & do anything. Often, my body just switches off & I go to sleep almost immediately after. My back & neck are very good at letting me know when I've done too much! When they start hurting, even when I've taken all my pain meds, I Know I have done too much, & am heading for a flare up. Oh, yes, I also get very emotional too. And irrational, I take everything as a slight & want to cry & be left alone - it hurts just having someone else there.

Julie xxx

Thank you I have the exaustion,,neck pain but for me that's

Most of the time, not being able to move that for me is being

Stiff.nim so sorry you get it so bad it's nasty

I have no clue..it takes me by surprise every time. Stress makes it worse.

I don't know either some times it just comes, a lot of

People seem to know don't they.

If I have a bit of stress or get upset I get it within a few days

Or I get very tired.

Viv x

jillylin profile image
jillylin

I still miss the waring signs.

Hugs

Jillyxx

Whatamug1 profile image
Whatamug1

The last bad bad one was my body was telling me it didn't want to walk but my mind was saying but It'll do you good. 2 really appalling days ! I've read on here that it's about pacing yourself but I'm finding that even moving a few small wet plantpots can mean I have to hit the couch. We can all hope, & have faith that someday there will be answers x positive thoughts

haribo36 profile image
haribo36

Hi there,I've had fibro for 8 years now and sometimes I know if a flare is coming and other times I don't.My symptoms are an exacerbation of pain,fatigue,headaches or migraines,unable to function ie get dressed,bathe,cook,go out etc..Iam in a flare at the moment and feel aweful.I haven't even brushed my teeth or my hair yet! :(

Riles-17 profile image
Riles-17

Hi it has take me nearly ten years to listen to my body. I have noticed that I start by having dry tired eyes, then I fiddle with them and probably make worse. I become very exhausted more than normal. My migraines are more frequent and my muscles feel really heavy and fatigued. I talk more rubbish than normal. If at all possible, I have trouble thinking straight and have difficulty organising my thoughts and carrying out my job. That I have done for the past twenty years. Sometimes I may feel that my meds are working and I feel ok. When I can't feel a difference sometimes this is an indicator. But not always.

The key is make notes mental or write them down the symptoms when you have a flare up see if they follow a pattern.

Good luck .

Thank you Riles, that's a good idea to make notes

That is if I can remember to spell or write down what

My symptoms are at the time of a flare if I am the same

As you when a flare starts

Still it will be fun to read if my brain comes back after

Thank you Viv x

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