Do you know ihave got 2 very very good friends we have been friends for 35 years we know everything about each other and i can call them anytime 24/7 for anything they know more about me than i do lol
. BUT i just cant talk about fibro with them i just say this silly thing i have got and brush it off quickly they are there for me 100% but just cant seem to talk to hardly anyone about it even my family
i do but only very recently and i struggle when they call to say No i am not ok today and reel off the various ailments of the day !
But on here i really DO tell you all everything . evry little thing that is wrong or hurting i dont hold back at all as you may have guessed!
It s strange because the point i am making is i dont know any of you and probably never will meet you but yet i confide in you with the most personal things that relate to me and vice versa ,
It s a lovely feeling to come on here and just type away with any issues i may have with aything and within mins i usually get an answer and that answer usually gives me great comfort and also i get alot of advice too and i like to share whatever i can with all you
anyway just a big THANKYOU to you all dyou dont realise how much you help me and probably we all help each other!!! have a good day love to you all DIDDLE X
I feel exactly the same, but you put it into words better, I think it's probably because we don't know the people on this site, so we don't feel that we have to be brave or spare them our feelings and we also know that they are feeling or have felt exactly the same at some point.
every one feels the same , and i think that is for 2 reasons . 1/ we will not meet , 2/ you never have to explain , as we all no . and boy do it feel good to have every one for supurt so when we say foggy moment . that is all we have to say . oh on that subject has enyone started to have moor than the norm .
Hi Diddle, it sure is lovely to get the support and advice on here as you say.
I used to be like you and just brush off my illness as I felt that no one believed me, apart from my lovely husband and gorgeous parents. I then took a slightly different approach of educating myself the best I could about my illness and also the whiplash I suffer from and have accepted that I am not a well person most of the time.
So when people ask how I am I tell them the truth, I may look ok with make up on, but underneath I hurt. I don't give them lists of how I feel, I just say that I am feeling poorly today, rather than my normal comment of " yes thanks I'm fine", when really I am not!!!
It makes me laugh, my in laws have no understanding about how I feel and I think they believe I am either a hyperchondriac or my pain is minimal. It used to really annoy me especially as I know they gossip behind my back. However funnily enough my sister in law has been having really awful headaches/migranes and she went to A&E about it, she either is suffering from migranes or Trigeminal neuralgia. She has been suffering for about 6-12 months on and off. Obviously i feel for her as it's not nice for anyone to have.
The inlaws came over yesterday and were telling me how ill she is. I have to agree and laugh it off, but actually i want to say YOU F'ING IDIOT, YOU ARE SO WRAPPED UP IN YOUR OWN LIVES AND MAKE YOU OWN JUDGEMENTS WHICH ARE SO WRONG HALF THE TIME, BUT I HAVE BEEN SUFFERING WITH HEADACHES LIKE HERS, MAYBE WORSE FOR 13 GOD DAMN YEARS.........SO AM I NOW ILL OR STILL MAKING IT UP. JUST BECAUSE I DON'T TAKE MY SELF TO A&E OF COURSE I AM NOT AS BAD"
.....oh I have got that off my chest now.....
Do your friends actually know what FM is???
Sorry for the long waffling response!!
Hope you have a good day in the sun guys and your pain is bearable xxx
Well said Rach, my inlaws just as bad lol, love them all, but can be so frustrating as they say I look normal, all tests normal so nothing possible can be wrong with me, can it?? If doc can't find nothing in my tests then all in my head, is how they see it, if only it was that simple to understand, I would be able to do something about it. arrg. I find this site very helpful as just having someone understand means a lot and can help us all shout at the top of our voices and get our frustration out, instead of bottling it up inside x
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