I have mild endo but severe pain, and ME. I've had five surgeries and every kind of hormonal treatment, including two straight years on zoladex without HRT (2007-2009) - this was an error and has left me with no libido and ongoing hormonal issues, but none of my doctors seem too concerned about this.
A couple of years ago, I noticed I was losing strength in my hands - if I have to unscrew small lids or do other specific motions with my hands, I have almost no strength. A few days ago I was carrying an oven tray with high sides and I completely lost my grip on it and dropped dinner all over the floor.
Around the same time as that started, I started getting severe pain in my tailbone when sitting down - weirdly, the pain worsens like an explosion upon standing/taking the pressure off my tailbone, then eases off.
I've been having hip pain upon waking for a couple of years - I put it down to the fact that I am on a lot of painkillers and don't move much when I'm asleep. This has worsened recently. Around six months ago, I started getting the same pain in my right knee - its pain and stiffness, whenever I lie down or sit in one position for any length of time - the pain made is very difficult to walk, bend down or move my knee at all. After a few months it went away and I though maybe I'd had an injury I didn't realise.
The hip and knee pain are now both very severe and I'm worried - I've never had a bone scan and I'm scared I may have problems as a result of the long course of zoladex, or arthritis which runs in my family.
I don't have a good relationship with my GP (see my previous posts!) and want to start seeing another GP in my practice but there's so much to go through with her, I don't know where to start.
Has anyone had these problems, maybe after gnrh treatment? If so, what was the cause? I'd be surprised if I have osteopenia or osteoporosis as I haven't broken a bone for years, but I haven't really fallen down or anything!