Severe hip leg and back pain

Lower left back and hip pain worse when due and on, last night I had same pain but worse on left and right hip, all across my back, front of both thighs, all they way to anckle in left leg and half way on right leg with lower left heavy feeling in tummy and extreme fatigue, been same all day today and tonight and I'm watching clock for the time to take more meds, I was diagnosed with endo 18 years ago but never suffered like this, anyone else have this

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mindful579

5 years ago

Hi Ctjboom I used to have that pain when i used to have my periods at the age of 13 and this went on for a very long time, infact when i turned 17 they told me i had endo and they put my on a high dose of the pill, but this did nothing, so if i can remember they said that i had endo everywhere on my bowels and bladder. They did a scan and this confirmed it. I am now nearly 54 and my periods have stopped nearly 11 years ago and two years ago i had an operation to remove adhesions and scar tissue from my bowel and remaining ovary on the left side. So reading all about your pain and fatigue to me, is suggesting that you go back to your doctor or gynaecologist and ask if they could give you a scan to see if it has spread to these and other organs. My Best Wishes to You. x

Brownlow

in reply to Cjtboom

5 years ago

Hi Ctjboom,

I just replied to a slightly similar thread that's a bit old.

healthunlocked.com/endometr...

I have the hip and front of leg pain but fortunately no back pain. I believe it is caused by an endo cyst on my right ovary which is also stuck to my bowel. I think it is pulling me out of alignment. My next step is to see a new endo specialist (old one was rubbish) and also see my osteopath again.

Sounds like you have a disengaged GP but at least they are not blocking you from getting a diagnosis. Endo is a very complex condition which is why there are gynaes who specialise in it. You need to see one of these and nit a general gynae unless you are confident that the general gynae is really good and very experienced. Choose an endo specialist on the bsge website bsge.org.uk/ec-BSGE-accredi... Then tell your GP who to refer to. You have the right to choose on the nhs.

You are right not to take the pill given family history. The pill is only wallpapering over the problem and won't necessarily give you any relief. Best to find out what the diagnosis is first before throwing pills at the problem in my opinion.

Good luck.

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Brownlow

in reply to TinaBSheffield45

3 years ago

Hi Tina,

Yes, the new specialist was brilliant, a lovely woman and also a very skilled surgeon. I had endometrioma, fibroids, adheshions and rectovaginal endo removed in a fairly long op 3 years ago. Following this the pain in leg, back and hip reduced considerably. It did return about a year after but i went to a cranio sacral therapist for just one session and it completely disappeared by the end of just one session.

We hold a lot of stress, tension and trauma in the pelvic area and this includes muscles and connective tissue such as the psoas muscle which connects the lower back to the legs. When this contracts, all manner of problems arise. I found that osteopathy really helped too. She discovered, prior to my op that I was very out of alignment. However, after the op she could see the difference which coincided with the reduction in pain. Doctors seldom connect the dots. EVERYTHING is related. I don't need it confirmed by anyone. I know my own body.

The pelvic area is a busy space with a lot of different organs and very little space left. If something grows there it will inevitably put pressure on organs and connective tissue and even press on nerves causing pain.

Hope you find your way through this soon.

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