Hello, I'm new to this site but have been suffering for over 10 years now. Last year I was having extreme kidney pain and my kidney is shrivelled. During an op to remove my kidney they found I had endometriosis in my uretea. The doctors told me this is very rare and I was only the second case he had seen. The cut the endo out of the tube and saved my kidney. To control the endo they ranted to give me a coil but another gynae doctor wanted to look further. He gave me an MRI scan and found that its back in my kidney tube, my uterus is stuck to my bowel, my left overy is stuck behind my uterus. I have multiple cysts and benign tumours on my overies and I have adhesions everywhere. Everything is stuck together. Now my gynae doc is having a meeting with my urologist, a bowel specialist and the radiologist. It looks like I'm going to have a hysterectomy but the problem is where it's all stuck to my bowel. 11 years ago I had my left Fallopian tube removed as it was stuck to my bowel. I'm in agony when I'm on my period and was in hospital 3 weeks ago and left with morphine.
Has anyone on here been through or got anything like this?
Could really do with chatting to people who understand what type of crap I'm going through. Thanks xxx