Hi all, I'm new here and in need of support. My name is Annabel and I'm 39. I'm married to a very understanding and lovely man, it will be our 10th wedding anniversary in August. In 2006 I started getting intense pain in my pelvis and ovary areas. At first it would happen in the afternoon, then a few months later I woke up to it and since then I'm in pain 24/7. After many tests and doctor visits I was told it sounded like endometriosis and I was told it goes hand in hand with polycystic ovary syndrome, which I was finally told I have in 1996 after years of heavy and abnormal periods (from the age of 10 I had a period every 6 months and it was horrid).
Since 2006 I've been referred twice and had 6 months of Zoladex, 1 year of depo injections and 2 years on norethisterone with no breaks. None of these helped one bit. The first consultant I saw in 2008 was horrible and told me it was all in my head and I had to fight for an ultrasound. Of course that showed I still had PCOS and something that could be endo so I was given the depo and told it would get rid of it. Last year I was referred to another hospital, St George's in Tooting, and the consultants are so much better. I had another ultrasound, an MRI and sigmoidoscopy as one of my complaints was a dragging feeling in my bowel whenever I went and constipation.
The MRI showed I have adenomyosis causing a blocked junction in my womb so tomorrow I'm being fitted with the Mirena coil as its apparently been known to help. I'm pretty scared about it as the consultant said because I am larger and have not had children, it will be difficult to fit. To be honest, things are very sore and painful "down there" and sex can be excruciating so its a bit worrying. My doctor tried to give me a smear a few years ago and it was so painful she couldn't get the tool in and had to stop. I'm on tramadol (8 a day), codeine 8-10 a day depending on pain levels) plus I take ibuprofen and paracetamol on and off, again depending on how bad a day it is.
I'm not too positive about it working - after other treatments failed I don't want to get excited that I may finally be pain-free and then it doesn't work. I feel like my life has ground to a halt. I'm in so much pain, sometimes my painkillers don't touch it. I barely leave the house (every 2 weeks I visit my family) as it hurts to walk. I'm following Weight Watchers as I've been overweight so long due to my PCOS and finally it feels like its working. Since last May i've lost 2 stone. Up untIl 16 I was a normal sized girl with a little puppy fat and even though my eating habits didn't change, my weight started to balloon. After a year I saw my GP and I was referred for tests. I was told nothing was wrong so I struggled on. Fast forward from 1990 to 1996 and I ended up in hospital in extreme pain with the worst bleeding I've ever had, and I was told it was on my records I had PCOS.
I'm lucky and fortunate to have my husband and he's been very understanding. He helps me as much as he can with housework and he cooks on weekends, runs me a bath when I'm very bad etc. A few weeks back he told me I'd lost my sparkle and he hated seeing me in so much pain. I felt so bad. I can't fool him for one minute - I try to smile and when he asks me if I'm ok, I say yes but he smiles and says "liar". I guess the pain shows on my face.
If the coil doesn't work then surgery is next. My consultant admitted that having a lap wouldn't necessarily help so he wanted to try this first. My fertility is shot after years of PCOS and hormone imbalance so I'm sorely tempted to ask for a hysterectomy. Years ago when we were trying for a child, I was put on Clomid and it turned me into a nightmare. By the end of the 2 months hubby begged me not to take it again and after several tests, it showed it wasn't helping anyway and I wasn't even ovulating. I know it's drastic but I've had 6 years of pain and I've had enough. I've lost 2 jobs due to this darn disease and I miss having my own money. Luckily at the moment hubby makes enough so that's one stress I don't have.
I think I've waffled enough, I feel a little better after getting this off my chest and it helps to know I'm not alone in this.