Newly diagnosed with Endo : So today I had... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Newly diagnosed with Endo

Jodiex profile image
7 Replies

So today I had an appointment with a consultant gynaecologist after 3 years of begging my GP to do something about the pain I've been having. I must say she was absolutely lovely and made me feel so at ease. She did an internal examination and told me she could feel what she believes is endometriosis. She had referred me to an endometriosis specialist to discuss my options and to have a laparoscopy done by her rather than this consultant performing it. So I'm now a bit worried, firstly because I didn't know you could 'feel' Endo - does this mean I have a lot of it and secondly the reason behind why I'm being referred to a specialist because she feels it more appropriate for her to do it rather than them doing it. Has anyone had this before? My head is a whirlwind of worry

Written by
Jodiex profile image
Jodiex
To view profiles and participate in discussions please or .
Read more about...
7 Replies
JeanOsborne profile image
JeanOsborne

Hi Jodi, it normally means they can feel nodules. Having surgery with a specialist means you have less chance of it coming back or being missed. My advise would be to make sure you will be having excision and not ablation. With excision they cut the endo out from the root whereas with ablation they just burn the top layer off so it will just grow back again. Wishing you good luck.

Jodiex profile image
Jodiex in reply toJeanOsborne

Thank you for your reply. I'm 24 and I really want children - will the type of treatment I have affect this?

JeanOsborne profile image
JeanOsborne in reply toJodiex

If you have excision surgery it should improve your chances of having children.

Jodiex profile image
Jodiex

When she pressed it became very painful in a particular area. She told me the consultant specialised in oncology which is why a referral would be more appropriate. I've looked on that list and the hospital I am currently been treated at is not on there. I wish I had asked more questions while I was there but I was just trying to take it all in. I was offered to be put into the menopause but at the age of 24 this seems very dramatic?

Reply

Jodiex profile image
Jodiex

That makes more sense then. I wish I'd asked more questions but I think I was just trying to take it all in. I'm writing all my questions down for my next appointment. I just feel so clueless, I'm in the North Yorkshire area. I can't see anything on the website I can only see Leeds and Wakefield on the list

Jodiex profile image
Jodiex

My only concern with that would be travelling for surgery and having to sit in a car for a long journey home following the procedure. I will have a look at your page. In clueless with what I'm actually looking at, all these terms sounds foreign to me. I'm hoping my next appointment with the specialist will explain more. Thank you gor your help x

Jodiex profile image
Jodiex

I'll have a look now, thanks so much

Not what you're looking for?

You may also like...

Newly diagnosed with endo

Hi everyone I've just been diagnosed with endometriosis after having a laporoacopy last week. Had...
Claire24 profile image

Pain specialist says it's not endo

I had an appointment yesterday to see a pain specialist to help me manage my pain while I wait to...
RueBlu3 profile image

Laparoscopy shows little Endo growth but I'm still living with chronic pain. What do I do?

I had my 3rd laparoscopy last Tuesday and as I was recovering my specialist came to see me. She...
Fletch profile image

newly diagnosed, holistic advice and treatment

Hi all, I am very much at the beginning of this journey and finding this site so useful, but...
GemmaSands profile image

Stage 4 Endo

I have been on a bit of a journey over the last couple of weeks. I was diagnosed with endometriosis...
Munchkinola profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.