I have had symptoms of Endo for 11 years. Phobed of by GP with IBS numerous times. Symptoms have worsened over the years. Over the years I have been up to date with smears had all sorts of scans except MRI. I got told that it was all my contraception’s causing me these problems. I got told pain was due to C-sections but these have only been done in the last 5 years. I had symptoms and flare ups years before. In my last C-section I had sterilisation done so the pain couldn’t be blamed on to conception and obviously because I didn’t want any more children. Symptoms still here at present. Just had laproscopy. I didn’t see the surgeon after my operation I just got my discharge paperwork saying adhesions and no Endo found. No follow up Needed. Says had laproscopy and adhesiolysis. No explanation of where adhesions found or where attached to etc to cause my pain. As anyone else had this done to them and can shed any light. I have got the secutary number and she has said surgeon may speak with you but it may take time. As he hasn’t wrote his notes. I also asked if anything found b4 my operation if I can have sent of for biopsy. He said we don’t usually do this. I feel like the only option am left with is to ask for all the hospital pictures and paperwork on my operation is the only way forward. As anyone been told they haven’t got endo after laproscopy to then in the future get diagnosed with it further down the line? My mam has endo and they said she never had it but after lap found hers. She had lots of ablation done and has now had an hysterectomy. She says my pain I explain is like hers. So fed up with finding half information out!!
1st laproscopy operation : I have had... - Endometriosis UK
1st laproscopy operation
Hi, I’m sorry I can’t really help with your questions as I’ve never had any of these procedures before. I am on the waiting list for a tubal litigation and I’ve had a few scans this year to investigate persistent lower pelvic pain. I have come to realise they never tell you everything from scans etc and the only way to find anything out is to request your medical records. That’s what I’m in the middle of now. Ultrasounds found nothing but a ct scan picked up a cyst on my left ovary (exactly where the pain is coming from). No details of the cyst just that it’s 2.8cm and can’t be the source of my pain 🙄 so I have just requested the scan report and any images. Keep pushing for answers it’s the only way you’ll get anywhere. I’m hoping that when I have my tubes done they will find something that could be causing the pain or remove the cyst if that’s the culprit.
Look after yourself
Hope you are well and find answers to. It’s a battle and it’s exhausting. I finally spoke with the surgeon and he said he didn’t look anywhere else when he did the laparoscopy. He only looked at uterus and overies. He said I had adhesions all behind my belly button and it was dragging down the front of my uterus and round my bladder. These adhesions are no where near my C-section scaring. Plus I have has symptoms before having any of my C-sections. I said more investigation need doing. He said to go to GP but I insisted he did the referral. So I have an appointment for a consultant at Urology department at hospital next week. Still waiting for my paperwork from laproscopy. And my photos. Let’s see what’s what after this. Keep me posted if you have any news. X
I have only just seen this sorry! How did it go at your appointment? I can’t believe they were just going to leave it at “adhesions found” I hope you finally get somewhere!
All my notes came through but nothing that helps me really,the only other thing the report said that there was trace fluid around the uterus 🤷🏼♀️ I’m going to contact the gp this week and see where I go from here xx
Sorry only just seen this. Yeah I had my appointment with urology consultant and I got referred to have further tests. Which is going to be 10th December. He also said to ask for tests with bowels at GP. I went to GP and said this but was there for pain in right rib at the bottom. He examined me and said I had costochondritis. He asked why I thought I needed a bowel test and after explaining everything so far and listening to him. He didn’t refer me. My paperwork as come now though. And my Adhesions was severe. I got intouch with PALs to ask questions and to say how do I go about getting bowel referral for tests as I have asked and I also got told I was on the gynaecologist waiting list. I asked what for because I haven’t been told why and after laparoscopy they told me no follow up needed. I am waiting on a response. I have really been thinking of going private as back to the back of waiting lists after already waiting years already. It’s hard to keep battling and to be listened to to get anywhere. All the time having the pain and keeping an eye on symptoms. I will let you know if PALs have been any help x
Endometriosis (Laproscopy)
Laproscopy.
Diagnostic Laproscopy with potential treatment.. Recovery time? 
After laproscopy surgery 
Laproscopy findings and new referral
