endo/adyno/pcos and depression

[Rachelsalondo]

Hi everyone, this is my first post so not sure how to start. I know everyone on here will have suffered similarly to myself so I think I am just looking for better coping mechanisms and advise.

I have suffered with endometriosis, adenymiosis, pcos, and ibs for nearly 20 years now, but more so in the last 10 years with added depression. I have tried hormone therapy, pain management, surgeries and now temporary menopause via 3monthly infections. (Dont want a hysterectomy as we want a baby.)

My last surgery was nearly 4 weeks ago, and since then I have been back in for pain management as I couldn't keep any meds down, and any I did keep down just wouldnt help. I am on morphine hourly, along with dyhydrocodine, naproxen, cyclizine, dulexatine amongst about 10 others. I have tried tramadol, didnt work and i tried oxycontin which made me sick. Also had loads of different anti inflammatories.

Whilst in hospital the doctors told me my tolerance levels were to high, and they said my last option before hysterectomy was to try this temporary menopause to get some respite and time to allow my tolerance level to drop. It is suposed 2 stop my periods and then most of the pain should follow. But instead I have blead nearly every day since with the same amount of pain on the same amount of pain killers, with the added side effects of night sweats, hot flushes, breast pain and the worst extremely low mood! I have just been started on HRT to help with the symptoms but I am not seeing any results yet.

I have a great partner who supports me financially and loves me unconditionally, tho our relationship is cracking under the pressures of these illnesses and the added stress that it brings. Hes not great when it comes to empathy and sympathy, with anyone really, but I feel like I cant talk to him about most of the pressures I feel because hes under his own pressures.

I am really really fed up at this point and not sure what my next step is. The pain has gotten so bad i had to stop working about 3 years ago. It was a great job that I loved but now I have lost that purpose and confidence that goes with it.

The injection lasts for 3months but they want me on it for at least 6months.

 I suppose after this long rant that I have been obviously needing, I better ask a question!

Has anyone else experienced bleeding every day for nearly 4 weeks when they have been given this injection, and if so when does it stop?

How long with it take the HRT to help with the menopause symptoms.

What other pain medications has anyone tried that have helped?

Sorry this is so long ladies..... it's been a hard few weeks.

[Lindle]

If you only just started the injections 4 weeks ago then it is common to both have increased pain and to bleed. It can be affected by when in your cycle it was given - it should be in the first 5 days or so. At first there is a flare of oestrogen before your ovaries shut down. Now you are on HRT the menopause symptoms should ease.

Do you know where your endo was found at this and previous laps - how severe - and are you being treated in general gynaecology or an endo centre?

[Rachelsalondo in reply to Lindle]

Thankyou for getting back to me. ❤They gave me the injection 2 days after my period finished, since then I had 2 days non bleeding then bleeding every day since.

Yeh in this lap, the endo what found on my bowel, bladder, womb, both tubes, one ovary, and on the ligaments that hold my womb in place. Plus they had to unfuse my womb and bowel. There were adhesions and scar tissue dotted around that they removed also. Along with a pcos cyst on my left ovary.

In previous it was on my womb, tubes, ovary and bowel. With added adhesions and scar tissue. Because I was due my next lap before lockdown and ended up waiting nearly 6 years for this one. It ended up in more places on this lap.

Being treated in a general gyno.

Ps. Thanks for also letting me know via another reply that endo can be found via ultrasound with a specialised endo doctor. I never knew that. On my first 2 ultrasounds when I was first being looked at they couldn't find anything on the ultrasound, it wasnt until the laparoscopy that they actually found endo.

[Lindle in reply to Rachelsalondo]

What area of the UK are you in Rachel?

[Rachelsalondo in reply to Lindle]

Glasgow, Scotland 🙂