Support Needed - Endo & PCOS.

[Nic22287]

Hi

I am 27 and new to this group.

I have endometriosis and pcos and lately have been struggling emotionally.

Back in 2012 the root cause of years of painful periods and very irregular periods was identified following a laparoscopy. I thought this was just going to be to explore the problem but I ended up having my endo lasered and my ovaries drilled. This was a big shock to me.

I have been trying to conceive since, have been on Metformin Jan - March 2015 which didn't agree with me and am currently waiting on my next appointment with the gynaecologist to see what's next as wasn't successful.

For about the last 6 months I have been suffering with endo pain again and am worried as to what may be next with the fertility clinic. Has one been in this situation? I have felt really run down within the last few months as everywhere I look family and friends seem to be getting pregnant. My husband is so much more positive than me but I am really struggling. I do not know anyone who has been through so find it hard talking to friends / family as I do not feel they really understand. Please help

[ladydady]

I too have endo and pcos. I didn't want to read and run as I once felt like you do. Was told I'd need help fertility wise but decided after a long time trying naturally that I didn't want to put myself through ivf. It seems that only when I made peace with that did I actually fall pregnant after years and years of trying. I'm sure the stress of it all stops you conceiving! Try not to count days to ovulation etc as that just adds to all the stress that you're already feeling. Have you sought any help fertility wise? I've heard clomid is very good for pcos as is the drilling you've already had. I wish you well with it all x

[Nic22287 in reply to ladydady]

Thank you very much for your support.

My husband thinks it is the stress of it all which stops you conceiving but bearing in mind I've been trying for almost 3 years, I've only been tracking ovulation for the last year as I didn't want to stress myself out with it all. I seem to have just gotten myself into a downer about it. I have such terrible highs and lows... One minute I can feel I'm having a great day then within 10 mins I can be crying my eyes out. Did you ever get like this? I'm unsure if it's a symptom of either.

I am seeing the fertility clinic... I tried Metformin for 3 months which is supposedly better than Clomid so will have to see at Mt next appointment what's next. I'm scared they will need to repeat the laparoscopy.

[ladydady in reply to Nic22287]

I used to have highs and lows but always hid it from my husband. That's why I decided to stop trying in the end and not go with ivf. Didn't want to put us through the stress of it all when we were happy as a twosome. Best thing I ever did! Good luck to you x

[blessababy]

I know it is very difficult to stay focused and positive. I am myself suffering from endo cyst, did a lap but endo is back again. My doc is advising to go for IVF but me and my husband are really not ready for it. He does not want my body to go through the torture of artificial hormones and I do not want to end up worsening my endo. I have come across many who have conceived naturally or with IUI with minimum medications. I too think it is wise to give our bodies a chance to react without stress.

I am practicing yoga these days and concentrating on a healthy diet to stay fit and relax my body. Laproscopy has even deteriorated my egg reserve very badly, so definitely not going for another one. Try and consult other doctors also and then take any decision.

We have been trying to conceive since last 12 months now, so I may go for a IUI this time with natural cycle. Just stay positive, get yourself occupied in other activities that you enjoy. Don't forget, there is always a hope!

[Nic22287 in reply to blessababy]

I seem to be going through a time where I am finding it very difficult to stay positive and it's getting me down. I seem to have really bad highs and lows and am unsure if this is a symptom?

I will have to see what is next when I go for my next appointment. I am willing to try anything to be honest. I regularly do pilates which I have found helps to relax me and have recently lost of a bit of weight which I'm hoping will all help.

I need to relax and not let it worry me so much. It just is so difficult.

Thank you for your support

[blessababy]

I can understand the restlessness and can very well relate to it also. I have gone through a time where I would just feel like running away..literally. And I very well know that the same phase can return again also...

Occupy yourself in things that takes away your attention, I do it the moment I start feeling sad about the diseases that I have.

Please take a thoughtful decision when you are ready to take any, I am now suffering from low egg reserve along with endo and hypothyroidism because of lap and there is no way by which it can be increased but still keeping up with the hope.

Good luck and don't loose hope.

[Nic22287]

Thank you. I do need to be more positive I just need to find something to distract myself from the pain of this. I didn't realise a laparoscopy could be damaging to your egg reserve. Thanks it's good to talk to someone who knows how I feel

[Seaside1]

Hello there,

Firstly I'm so so sorry you have been struggling lately. I wanted to let you know I too was in a similar position not that long ago. It certainly is extremely difficult when you want more than anything to conceive and friends and family seem to be doing so with ease all around you. I used to find it very hard and would often have to excuse myself from meeting up with people with babies as I would get too upset. I like you also found it hard to explain to family and friends as did not want to come across as jealous or negative and I didn't really have any close family or friends who I could talk to that would fully understand. I agree with the reply above that reducing stress has a major factor to play in conceiving. (Although I know this is a lot more easier said than done!). I like you suffer from endo and pcos. I also have a bicournate uterus and septum and hormonal problems. Last year I was due to have TPPE surgery. It was scheduled in and then prior to having the surgery I happily discovered I was pregnant! I conceived in a month where we were not really trying as I thought I would start trying again properly after recovering from the TPPE. I now have a gorgeous baby girl and have to pinch myself sometimes that she really is here and conceived naturally despite all the medical conditions I have. I am very aware I am very fortunate. Please do not give up hope. Prior to conceiving I visited a nutritionist who specialises in endo and fertility and she advised I took certain supplements. I also stuck pretty religiously to the endo diet. It might be worth you asking your doctor for your bloods to be taken as you may have a hormonal imbalance that could be affecting you conceive as I found with me during some routine tests. It might also be good to take up a hobby you enjoy to help occupy your thoughts with something other than thoughts about conceiving. If you ever want to talk or for any advice feel free to PM me.

Take care xx

[Nic22287]

Thank you very much for your message of support. It's nice to be able to talk to someone who really understands how it feels. Some days it is heartbreaking when I see babies / children and it makes me think will we ever have that?! I am going to try my absolute hardest to be more positive.

You have given me some things to really consider. I was not aware there were good / bad foods to eat and hadn't considered different vitamins so I will definitely be looking into this and seeing a nutritionist... Thank you .

I have my next appointment at the fertility clinic on 7th May so will mention to them about a possible hormonal imbalance due to massive highs and lows. This really would make sense.

Thank you so much for your support and help

[benevolentsacha]

Don't lose hope. This wouldn't completely cripple your ability to have children it just may take longer than others. But well worth the wait. Keep trying hunny it will happen all in good time. If need be there are MANY options out there and specialists you could see to see what options are available to you. I can say from seeing my sister's journey in getting preggo while having endo that it took her some time to get pregnant with her first and she too became discouraged but when she least expected it, it happen. I have every bit of faith it will happen for you when you least expect it. I will pray for you and that it all works out for you hun. Best of luck to you!!