Laparoscopy, no sign of endo but a cyst. It feels like my concerns are being dismissed because of my age.

[Nik1804]

Hi all, I’m 17. I’ve been suffering from every single symptom of endometriosis for the past 2 to 3 years. From the onset at 13 I’ve had heavy periods. Painful and irregular ones. Sharp pains. I had the family history to back it up. My mom had Stage IV endo, pcos, IBS, hormone imbalance when she had me. I had an aunt and cousin diagnosed as well on my moms side and on my dads side. I’ve had the symptoms,the pains,the horrible experiences. Painkillers do nothing for me and it feels like I’ve been imagining it. My GP and mom have been with me on this crazy ride. Every blood test under the sun and anaemia, hypotension. You name the symptom I have it. Every single thing pointed to endo.

I had my first appointment with a specialist after a year of being on the waiting list two weeks ago, after a year of being on multiple versions of the pill, of visanne, of tranic to no or negative results. I get told I have Primary dysmenorrhea and high oestrogen and they’re gonna give me an IUD for that. That’s all good and well but it didn’t explain the escalating pain that developed even outside my periods, the days I couldn’t go to school because getting out of bed was a struggle.

I had my first laparoscopy last week and they said they found nothing. I had one cyst on my Fallopian tubes but that’s it. Nothing else. Everything was showing perfect. It was the worst thing they could have told me because I felt like I was crazy. I got a bladder infection after and the inflammation and tearing of my stitches made things a further nightmare

They told me I should feel lucky and take my chances with this IUD.

Any other pain is probably bowel related.

This was even more frustrating because I haven’t had bowel problems except because of my painkillers, and other meds I’ve had to take to combat the symptoms that were already there. I’ve broken down and cried more times than I’ve cared to admit. I’m still having sharp pains and my recent period has been a nightmare. I’m hoping for the best with this IUD but all I wanted was some help and it’s as if all my concerns have been brushed away by the doctors and specialists because I’m young and it’ll go away with youth.

My gut is telling me this isn’t over. I’ve looked at every option and it could likely be adenomyosis.

But it has to be something. I feel like I’m grasping at straws for help and it’s lonely when your teachers and peers don’t understand the suffering you have to go through just to have no result at the end. There’s nothing to show for it at the end.

And the last thing I want to ever be is a hypochondriac grasping at any illness to feel validated. I’ve had enough experience with that. My father is one. Before my parents got divorced he swore he had every symptom just to be more sick than my mom who was suffering.

I’m grasping at air right now for just someone to help and understand. My heart is breaking honestly

[AllthatGlitters]

Hi Nik1804 I really feel for you, it appears to be a common problem that if you are young then you are not treated seriously! If you think you have Adenomyosis go to your GP and ask for an MRI scan as that will tell if you have it or not. That’s how I was diagnosed. Maybe take someone in with you for support & make your GP listen to you x

[Nik1804 in reply to AllthatGlitters]

The plan is to go in for an MRI as soon as I can afford to. The only problem is the expense of MRIs where I live and my moms on a single parent salary and government medical aid. If all goes well I can go In for one in the next few months. Thank you for the response. It’s appreciated more than you know

[Alarna]

Then you keep on fighting for yourself and going back a d two back and to tto any doctors to hospitals and tell your listen to because I feel the same but we have to keep on going u will get answer if u keep going