Can your laparoscopy results be wrong - Endometriosis UK

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Can your laparoscopy results be wrong

Rumpledumple profile image
7 Replies

Had my first laparoscopy on Monday and was told nothing was found, but I have every single symptom of endometriosis, how is this possible? Anyone else get this result but still have endo? An endo specialist did my lap.

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Rumpledumple profile image
Rumpledumple
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7 Replies
luthien profile image
luthien

Hmm,

Did your endo specialist check all of the abdomen? as endo can present on the bladder and bowel - mine was right round the back of my bowel.

Did they do a hysteroscopy? Camera up vagina into uterus - this is used to check for any endo present in the vagina and any problems in the uterus such as fibroids

Can't think of anything else, what is the endo specialist suggesting as follow up investigation?

Rumpledumple profile image
Rumpledumple in reply toluthien

Not that I'm aware of. Nothing is being done to follow up. I've literally been told I don't have endometriosis (specifically all they said is nothing abnormal was found) and that was that. My discharge notes are blank because there wasn't anything to look at, and there's no scheduled follow up. The surgeon didn't even want to see me after I woke up.

luthien profile image
luthien in reply toRumpledumple

wow :(

It may be something where you need to keep a page a month diary over the next few months of your ongoing symptoms, pain levels, location of pain, medication, periods including flow, mood etc and go back to your GP with it pushing for something to be done.

I know you can see someone at at BSGE center (google) but I think you need to have suspected endo so maybe do the above before contacting them - that way your GP can back you up. BSGE centers are more specialised, but I'm not sure how they can help if you've already seen an endo specialist. Perhaps give them a call?

Gill1977 profile image
Gill1977

Morning....could it be adenomyosis? Symptoms very similar to endo but very hard to diagnose- even with a lap. Xx

Butter-fly1 profile image
Butter-fly1

Hi, no advice but just wanted you to know I’m in the same position as you. Had a laparoscopy last week and was told nothing was found. It’s very disheartening. I’m going to do what has been suggested by members on here & keep a very detailed diary with every symptom and go back.

Good luck. x

Claireb79 profile image
Claireb79

I’m just wondering whether they checked for fibroids? A hysteroscopy would show them but not a laparoscopy. The symptoms can be very similar and equally debilitating xx

Afrohair profile image
Afrohair

Could it be microscopic endo you can’t see that !

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