New here Please help: Hello I'm Bethany (1... - Endometriosis UK

Endometriosis UK

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New here Please help

Bethaaany profile image
7 Replies

Hello I'm Bethany (18) and this is my first post as joined today. I'm wondering if there's anyone around my age having problems? I've been suffering a lot with bowel problems for the past couple of years but from clear colonoscopy which leads to then thinking IBS (not sure if thats relevant ) and also have no feeling in pelvic floor so got very bad incontinence anyway, Seen a gynaecologist last month and he said that it's hard to see if there is any issues there as such a young age but due to my problems I've been having it could be something or could not be. Anyways tomorrow I start my injection (1 every 3 months and I start Livial (tibolone 2.5mg) im wondering if anyone else has had this and how did they get on with it? My doctor told me today that it's not really a common drug used in people my age. Any help greatly appreciated thanks x

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Bethaaany
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7 Replies

Hi! I'm 19 and was diagnosed with endo this year after a 6 year misdiagnosis (ugh!). Because of my age they wouldn't do anything else but put me on the pill, which hasn't really done a lot for me so far. I also had vaginismus so I was given dilators to help with my pelivc floor, and they worked a treat for me, and I know the endo affects my bowel, so might be worth a check there with a laparoscopy! x

Bethaaany profile image
Bethaaany

Hello, yeah I'm from the Uk (Scotland) I've been on contraceptives since I was 16 due to irregular period me and my boyfriend are hardly active since it hurts so much, not sure when incontinence started as always been kinda damp since I was very young and struggled with constant urine infections that weren't infections at all. I was rectal bleeding and lots of pain with fissure and a fistula. Sometimes after I uriniate theres a lot of pain, I didn't know this about the injections nobody has really explained it and I'm quite worried ment to get them tomorrow? Sorry it took so long to reply x

Bethaaany profile image
Bethaaany

I would have thought I'd have been offered a laparoscopy x

Bethaaany profile image
Bethaaany

Thanks so much for your help! I'm going to cancel my appointment tomorrow and go back and see my GP and see if he can give me some more guidance as nobody has really explained much at all. Sounds to me like I'm just being shoved off as always X

Jo22frank22 profile image
Jo22frank22

hi there I'm new from yesterday too. Ur not on your own I suffer with ibs as well endometriosis how r u today? My pelvis is hurting mild at the moment.

Bethaaany profile image
Bethaaany in reply toJo22frank22

Hello I've only just seen this sorry my Internets been down.😔 Today I feel Rubbish so exhausted after working all weekend and doesnt help with chronic fatigue either, hows things with you?

Jo22frank22 profile image
Jo22frank22 in reply toBethaaany

Hi there, my pelvis having been giving me twinges of pain today but I'm coping so far. xx

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