Hi all, I am new to this community and want to share my story to see if anyone can relate or help me find answers. I am 19 years old and have had rectal bleeding ONLY on my period for four months now. I had an incident almost a year ago when I bled from my rectum right before I started my period and just figured it might have been coincidental with a hemorrhoid or something. I just wrote it off. But now the rectal bleeding starts exactly at the same time the blood flow from my period commences, and this has done so for the past four months, like I said. The actual blood flow amount from my rectum is the equivalent amount to the blood that is exiting vaginally. For example, when I begin my period, the bleeding is VERY heavy from both end, and toward the end, it reduces just as my vaginal bleeding does. The cramping is so bad as well that I am almost debilitated but I have learned to fight through it and keep going. Last month I bled through my shorts and had two distinct blood stains, one from the vaginal bleeding, and one from the rectal bleeding. The rest of the month, there are Z-E-R-O traces of blood from my rectum. Now the month before I noticed the rectal bleeding, my periods began to be very inconsistent, and I almost missed one entirely. Now my bowels have always been a problem for me for as long as I can remember. I've struggled with constipation and the cramping always has gotten worse around the time of my period. I have extreme gas and bloating and diarrhea often happens mid-cycle after the bleeding starts. I will only have a bowel movement at MOST 3 or 4 times A MONTH... yeah, I know.
I've been to my gynecologist, and she referred me to a GI doctor who ordered a colonoscopy of course to rule out Crohn's or ulcerative colitis. The doctor found nothing but a few small internal hemorrhoids and sent me away with an IBS-D diagnosis. Shocking, right? Especially considering that I struggle more with constipation. Anyway... the GI doctor said that my hemorrhoids just get irritated when my period starts because the blood vessels get dilated more so that's why I bleed only on my period. When I suggested endo, he pretty much just rolled his eyes and flat out told me that "rectal bleeding doesn't occur with endometriosis." LOL. Sure, hemorrhoids that never bleed except for when I start my period is a good explanation, but I don't entirely buy it. I don't want to be one of those patients who have to struggle through their symptoms every month because of an IBS misdiagnosis.
So I went back to my gynecologist and she ordered a vaginal ultrasound and placed me on a low dose birth control (tri-lo-estrylla) to control the heaviness of the bleeding. When I had the ultrasound done, the technician had a very hard time finding my left ovary. It took her a while to locate it, and I'm not really sure if she ever really was able to get a good image of it. She said she did, but I felt a nervousness about her. She found the right side with no problem. I'm afraid she was scared she was messing up or something and didn't want to ask for help or an opinion.
I waited a few weeks until my next cycle to begin my birth control. But right before I started, I noticed a large abscess left inside wall of my vagina. It felt like a large marble. So, I went back to my OB/GYN and she examined it, and said she didn't want to mess with it because it was very close to my urethra and wanted to make sure it had no urethral involvement. It was so large that my urine stream was shooting directly backwards. So here I go to a new doctor, my urologist. He performed a cystoscopy and a CT scan, and did not see any urethral involvement. He concluded it was just some type of vaginal cyst and put me on antibiotics. It eventually popped on its own after a week, but my wall still feels inflamed on the side where it was located. I told him all about my frustrations and what did he bring up? ENDOMETRIOSIS! He said he would consult with my OB/GYN and she would have to follow up with me.
It's been a month and I've been through my first pack of birth control. On day two of my placebo pills, I began bleeding heavily and the rectal bleeding started AGAIN with an incredible amount of cramping. It's been ongoing for days now. I can't wait to start my active pills so maybe this will stop. I have a GYN appointment soon and I might just have to ask for a laparoscopy myself just to rule endo out. I'm tired of wondering and being left with hardly no answers and not being taken seriously.
So this is my story, and if you've stuck with me this far, I appreciate you hearing out my journey. Has ANYONE had a similar experience and have been misdiagnosed or felt unheard? Please let me know. Anything helps.