27, tried every option, don't know what t... - Endometriosis UK

Endometriosis UK

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27, tried every option, don't know what to do. Any advice would be kindly received! X

Green17 profile image
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Hi Ladies,

If anyone could help me if really appreciate any advice.

I'm 27 and newly single because of my health. Will explain further on.

I had a laparoscopy in 2010 to see if I had endo, they found I had stage 4 on my stomach, bowels, all lady parts etc and PCOS plus everything is stuck together, basically a right Royal mess.

Whilst in the operation the surgeon perforated my bowel, without realising he stitched me up and sent me home!

I became seriously ill, after 3 days I was rushed into hospital and they just said it was the remaining wind leaving my body.

I demanded I felt like I was dieing- no doctors believed me- the usual 'you being dramatic' but one surgen took me seriously thankfully and rushed me for an emergency laparotomy to which they discovered I had scepticemia and peritonitis.

She saved my life.

Since then I have had every type of birth control, 6 months of GNRH antagonists, anti-inflammatories, painkillers, endo diets and nothing works.

I am managing the pain the painkillers, I have been under the consultant regarding going for IVF with my partner.

Because obviously- the Gyne doctors only answer now is 'Have a baby'!!

Well me and my partner had been together for 8 years, we went once before for IVF but my partner pulled out.

Again this time recently he's pulled out. Said he can't do it.

I feel that this is the last time he will ever do this too me, so it's over. He's incredibly selfish and had serious commitment issues, my fault for putting up with it for so long I suppose.

Now I need to concentrate on me, he is selfish and after everything, he still doesn't really understand everything in going through.

So what are my options now...

I'm 27 with no children and do want them!

Option 1- Remain the same, in hurrendous pain, signed off work (getting me in trouble with work) and how long can I do this for? For ever?

Option 2- Have IVF on my own? I know ladies have done this, and that's amazing but seriously is not what I want to do?!

Option 3- Have a hysterectomy? Never have children but have a better, less pain filled life?

Option 4- SCREAM!

Seriously, I actually don't have a clue what to do next with my life.

I'm sick of being pumped up with painkillers daily, heat pads, the pain is now starting to effect my lower chest/ribs and I just know it's spreading to my lungs. The doctor has also said it probably is there but I can have tests, but there's nothing they can do?

So what can I do?

I've thought about one thing which is freezing my eggs.

Can I get my ovaries out but not have a hysterectomy?

Any ideas would be greatly received.

Thanks ladies.

Jade

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Green17 profile image
Green17

Hi Lindle,

Thankyou so much for you reply.

I am under the Gyne at Ormskirk and Southport Hopsital based in Lancashire.

this is not a BSGE endo specialist centre, nor have I ever been advise about this?!!!

Do I need a referral from my doctor or the Gyne?

I'm in Lancashire.

Many thanks

Jade

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