Do I have a hysterectomy?: Hi, I’m 3... - Endometriosis UK

Endometriosis UK

71,891 members52,622 posts

Do I have a hysterectomy?

CeCeT profile image
3 Replies

Hi,

I’m 38, with DIE. Luckily I’ve had 3 children.

I am waiting for excision surgery and a hysterectomy, with possible bowel surgery. I was happy with the decision, until I had zoladex. The add on hrt, caused my migraines to be more frequent, so I stopped it. Obviously I had all the usual side affects, but I also became suicidal. I’ve suffered with depression over the years and was taking antidepressants already.

Thankfully I’m feeling much better mood wise, now the zoladex is out of my system, but I’m so scared of what a hysterectomy is going to do to me. Apparently oestrogen patches are better tolerated if you suffer with migraines, does anyone have experience of this?

TIA x

Written by
CeCeT profile image
CeCeT
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Moon_maiden profile image
Moon_maiden

Hi

I’m not sure this’ll help as I was 51 when I had the hysterectomy.

I didn’t react well to Zoladex, sent hormones even screwier and put up BP. Since hysterectomy the hormones have settled and found I don’t need HRT. People react differently so it’s unfortunately going to be hard to tell.

Did they say why you need a hysterectomy? It’s not a guarantee to stop Endo

CeCeT profile image
CeCeT in reply to Moon_maiden

Thank you for replying, I’m glad you have been ok after the hysterectomy.

He just said we will excise the endo, and do a hysterectomy, does that sound ok., so I said yes. I know it’s not a cure, but felt it was my best chance , as have tried everything else.

Moon_maiden profile image
Moon_maiden in reply to CeCeT

For me I’d ask why they are suggesting a hysterectomy, I was desperate for one before I had it done and asked for it. My uterus was enlarged. I just like to know as much info as I can.

That’s the trouble with Endo we try everything we possibly can and some 🙄

Not what you're looking for?

You may also like...

Fatigue, Adenmyosis and Endometriosis

I was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a...

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have...

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question...

Removal or not of ovaries

I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes,...

CA125 level 89

I’ve just had bloods back and have raised levels of ca125. Last time I had this test about 18...