Hi all, hope you are as OK as can be. I'm currently waiting for specialist appointment at end of this month. I was diagnosed in 1998 with endo (stage 4). Since had variety of hormonal treatment, laparotomy and two laparoscopies. Been lucky enough to have 2 children - inbetween if all!
Had my last op 4 years ago (by same specialist I'm now waiting to see @ Bham Women's) - but I now feel worse than I ever have. I'm now 43. I am suffering crippling migraines - that have built in severity - they last 3 days at a time and I'm getting them at least twice a month. I am unable to function when I have them. I have also been getting pins and needles a lot in my hands, and recently have been getting pins and needles in right bum cheek, and horrible pains down my outer left thigh - from my hip too. My. tummy pain is pretty much constant- and ranges in severity around my cycle - never 100% pain free though
I am constantly exhausted. I just want to sleep all the time. To make it OK to get about I'm taking painkillers and wearing heat packs.
Has anyone else got symptoms like this? I really can't see the specialist quick enough. I'm struggling with work as well as I'm a supply teacher at moment.... But I'm hardly finding any days where I feel well enough to work!
Feeling quite desperate - just wanted to hear from ladies who understand my pain.
Sorry it's been s long ramble/moan.
Take care ladies xx