I was diagnosed with stage 4 in May 12 via a lap. Since the. I had a merina could fitted in July 12 but this was removed in April 13 as it had slipped. The same day I had a new one inserted, only to get an infection and it had to be removed 4 days later. I then had another fitted 1st July. I then ended up in A&E on Saturday with crippling pains. I was admitted to a ward and on Sunday saw my consultant who made the decision to remove the coil. I have been pleading with the registrars ever since to do another lap to try and clear some of the endo away, but they refused as it was not an emergency!
I finally saw my consultant again yesterday and requested the same, but he told me my insides are such a mess that another lap would not achieve anything. He says I will need a MRI (I am currently too big to fit in the scanner, I am going to try and loose weight) as the endo has fused my womb to my bowel solid. This will enable him to see what needs to be done on the bowel along with a hysterectomy. He advised it is a massive massive op and really doesn't want to do it.
So they have released me from hospital still in pain and he has put me on Provera 20mg tablets (these are not going to help my weight) and wants to try and treat it this way rather than the surgical route.
I am at my wits end crying all the time. As I am stuck in a cycle, need pain killers for the pain they (sorry tmi) bung me up and as the endo is stuck to my bowel, being bunged up causes it to flare up even more. I am taking fybogel and laxido but they are not helping.
Has anyone else been in this situation? Did you press for the surgery? Has it improved?
Sorry I don't post on here very often but really would appreciate your experiences as I don't really know where to turn.
Thanking you all in advance x