Endometriosis UK
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Has anyone had two diagnostic laps?

I've just been to see an endo specialist he didnt have my lap notes or my mri so he basically said hes going to request my notes/mri have a conversation with another specialist and decide whether to do another diagnostic lap and a colonoscopy or to just remove the endo. Apparently the small amount of mri notes and lap notes they have dont match up and they are worried because I bleed through my butt on my period that it might be in or on my bowel. Has anyone had 2 diagnostic laps? Does anyone bleed through their butt on the period where is your endo? Also was anyone not sick doing bowel prep? I have a massive phobia of sick I dont want to hear horror stories 😮

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Hey Abi, i bleed when having a bowel movement (around the time of my period) and experience severe pain. I've been told I have endo on the outside of my bowel and pouch of douglas (following my lap) but will need a colonoscopy to see whether it has penetrated my bowel. I think bleeding from the bum is a common symptom of bowel endo which is why they're concerned. Sounds like you're in the best place to get answers.

Xx

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Hi 😮 I feel for you same as me 😮 I was just wondering whether I would need a colonoscopy because it scares me but if I need it I will have to do it 🤔 I am lucky and in the best place just wished I could of gone there first 😭 Xx

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If they suspect bowel endo you will most likely need a colonoscopy I'm afraid. It's the only way they can see if it's penetrated the bowel. I know it sucks, I've never had one before and I'm really nervous! It's so painful already i hate the thought of them prodding and poking up there 😭 I'm definitely asking to be sedated xx

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LoulouT

I had one a few years ago and they insisted I wasn’t sedated. Well I insisted even harder and threatened to discharge myself in my gown if they wouldn’t.., they gave in! And I’m glad they did because the enema I had before was incredibly painful. X

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That's terrible they tried to force you to have it done without sedation 😳 I would threaten to leave too! I bet it's all about money, no sedation means no anaesthetist and one less person to pay. Never mind our suffering! It's awful x

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Oh god I hope they sedate me 😂 If not I will get my mum to fight them she was already nearly shouting at the specialists for not having my notes yesterday 😂😂😂 x

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Its actually not the poking that scares me its the prep 😂 It sounds like hell and some people have a bad reaction to it 😮 😭 Xx

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The prep was what made m freak out, they say you have to keep it inside for 20 minuets minimum but as soon as it was in I couldn’t hold it.. it was so painful! I was sobbing. But don’t let our horrible stories get to you Hun it’s all over soon enough x

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That sounds awful 😭 But thanks sweetie 😮 X

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I'm in the same situation, I had a lap 4 weeks ago, no signs of endo found. However it was discovered that my ovaries are fused behind my uterus.

I also bleed through my bum Shen having bowel movement during my period, tmi but I always though it was blood from my vagina that was getting smeared up when I was wiping 🙈. Bowel movements around ovulation and period time are utter hell, the pain is unreal.

I had an MRI last week, now waiting on my follow up with my consultant.

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Oh no 😢 I know I do have endo though because they found it but rhe notes from the lap and mri dont match up 😂😂😂😂 I was the same tbh I was always unsure 😮 Bowel movements have gone from being hell around my period to all the time now 😭 Good luck though 🤞🏻🤞🏻

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