Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,181 members • 27,513 posts

All posts for October 2023

Does getting more sleep ever worsen PD symptoms?

Not long after I as diagnosed with PD in 2014, I recall reading an article online discussing the phenomenon of getting more sleep actually worsening PD...

Not long after I as diagnosed with PD in 2014, I recall reading an article onlin...

CapSage88008

•11 months ago

53 Replies

Best Way to Post a Follow-Up or Update ?

Just wondering how best to post an update concerning my father's experience with episodes of psychosis after emergency surgery for a broken ankle? I don't...

Just wondering how best to post an update concerning my father's experience with...

rsacdoolittle

•11 months ago

6 Replies

swelling around DBS battery 5 weeks after surgery

It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No...

It’s been 5 weeks since my battery placement surgery and when I woke up this mor...

Nurse7

•11 months ago

3 Replies

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High Levels of Mercury

Dear all, I only want to share with you that I recently consulted a GP who is a student of Dr. Marc Hyman and is, therefore, taking a functional medicine...

Dear all, I only want to share with you that I recently consulted a GP who is ...

MAJ88

•11 months ago

14 Replies

For those of us with tremor ...

Does your tremor stop while you are sleeping? I especially would like to hear from anyone who is not taking meds, and has tremor.

Does your tremor stop while you are sleeping? I especially would like to hear f...

gomelgo

•11 months ago

100 Replies

Wearing off symptoms

I understand peak dose dyskinesia. I very occasionally get it (mild). I don't understand end of dose dyskinesia, which I get in the evening. Anyone understand...

I understand peak dose dyskinesia. I very occasionally get it (mild). I don't u...

rebtar

•11 months ago

1 Reply

Prazinezumab reduces motor progression

https://youtu.be/sPh1KG9J4S0?si=aiPIzrG6tqxoamq1

JayPwP

•11 months ago

4 Replies

Is Rytary really working better than Carbidopa/Levodopa?

I’ve had PD for at least 5 years but it was only diagnosed 1 year ago. I started on Carbidopa/Levodopa 25/100, 3x a day and then went up to 4x a day. Primary...

I’ve had PD for at least 5 years but it was only diagnosed 1 year ago. I started...

Gallowglass

•11 months ago

13 Replies

Measure your inflamation at home (this guy's company was bought by STEVE JOBS!)

I just stumbled on this very interesting video. This genius-guy's tech company was bought by STEVE JOBS in 2008. Now he's invented a very small device that...

I just stumbled on this very interesting video. This genius-guy's tech company ...

PDWarrior1900

•11 months ago

1 Reply

DBS energy

Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t...

Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc...

jeeves19

•11 months ago

37 Replies

This is perplexing - Coffee's effectiveness on Parkinson prevention

I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after study appears to support the efficacy of coffee in Parkinsons prevention....

I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after...

pdpatient

•11 months ago

13 Replies

Sudden insomnia

Dx'd with PD 7 years ago, For the past few weeks at bedtime I've fallen asleep in front of the TV. I walk to the bedroom and can't fall back to sleep....

Dx'd with PD 7 years ago, For the past few weeks at bedtime I've fallen asle...

kaypeeoh

•11 months ago

5 Replies

Zoom calls

Hello. I have read many posts to help my husband with Parkinson's and have found so much useful information so appreciate this group so much. Unfortunately...

Hello. I have read many posts to help my husband with Parkinson's and have foun...

wrnosek

•11 months ago

3 Replies

Does anyone here see decreases in tremors without using levodopa?

I see on the Constatini faq - The protocol we devised, in fact, always requires the addition of l-dopa in order to suppress the motor symptoms. I'm just...

I see on the Constatini faq - The protocol we devised, in fact, always requires ...

Gregg_K

•11 months ago

2 Replies

cateract surgery

Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone...

Hello: I’m a little worried about having cateract surgery as I like most have t...

Ep0522

•11 months ago

33 Replies

Levodopa vs Other Parkinson medicines against Fatigue

Does Sinemet does a good job in improving fatigue compared to other Parkinson's medications? Case history: My mom, 58 years old was diagnosed with...

Does Sinemet does a good job in improving fatigue compared to other Parkinson's ...

gdineshnathan

•11 months ago

25 Replies

Vibrating Gloves for Parkinson's Disease

For those of you interested in the FDA approval timeline for the vibrating gloves that pop up in various posts on this forum, I emailed Synergic Medical...

For those of you interested in the FDA approval timeline for the vibrating glove...

Canddy

•11 months ago

17 Replies

Encouraging News from Pasadena Open Label Extension

Give credit to Roche for recognizing that Parkinson's trials need more time to evaluate because the disease tends to progress quite slowly. Even though the...

Give credit to Roche for recognizing that Parkinson's trials need more time to e...

jimcaster

•11 months ago

1 Reply

Are you taking enough B12?

This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OPHWGDIGDLw?si=4PLhG7ny5qWIC9qp ----------------------...

This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OP...

PDWarrior1900

•11 months ago

4 Replies

NON-invasive device to IMPROVE BLOOD BRAIN FLOW

I just stumbled on this video (I watch, listen to or skim DOZENS weekly) ... I haven't watched it yet but it looked interesting enough to post it ... NOW!...

I just stumbled on this video (I watch, listen to or skim DOZENS weekly) ... I ...

PDWarrior1900

•11 months ago

4 Replies

Parkinson's patient experiences improvements following stem cell infusions

research being done at Hope Biosciences in Sugarland, TX https://www.frontiersin.org/articles/10.3389/fneur.2023.1257080/full Conclusions Overall, HB-adMSC...

research being done at Hope Biosciences in Sugarland, TX https://www.frontiersi...

Boscoejean

•11 months ago

16 Replies

An exhaustive study that offers hope that some types of activities can improve symptoms even as disease progresses

https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004 ------- The article link above contains the entire pdf of the study results...

https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad325/7284004...

pdpatient

•11 months ago

4 Replies

Pain with PD

I have pain that is in my lower back, neck and shoulders...mostly in my R lower back. It is different every day, Some days I don't have pain in my neck, etc....

I have pain that is in my lower back, neck and shoulders...mostly in my R lower ...

cjCardio53

•11 months ago

26 Replies

Slow-SPEED ‘Slowing Parinson’s early through exercise dosage’

The Slow-SPEED project is the world's first large-scale research into potentially disease-retardant treatment in the prodromal phase of Parkinson's. But the...

The Slow-SPEED project is the world's first large-scale research into potentiall...

Esperanto

•11 months ago

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BLUEBERRY PIE without sugar or flour! (just to lighten-up things here on this forum...)

I'm sure we are all watching our diets ... Today is day #555 of my O.M.A.D. (one meal a day with all calories eaten within a 2 hour window). My diet is...

I'm sure we are all watching our diets ... Today is day #555 of my O.M.A.D. (on...

PDWarrior1900

•11 months ago

2 Replies

Auditory hallucinations

Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not...

Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been e...

NJCOL

•11 months ago

6 Replies

ND-0612 by Mitsubishi Tanabe Pharma for Parkinson’s Disease: Likelihood of Approval

ND-0612 is under development as an adjunct to oral levodopa for the treatment of moderate to severe Parkinson's disease. The drug candidate is a liquid fixed...

ND-0612 is under development as an adjunct to oral levodopa for the treatment of...

Farooqji

•11 months ago

1 Reply

DO FISH LIKE LEVODOPA ?

For the last 20 years I have noticed that my urine has been getting darker brownish , redish, orange and denser as it immediatly falls through the water to...

For the last 20 years I have noticed that my urine has been getting darker brown...

Gymsack

•11 months ago

6 Replies

Nicotine gum for Parkinson's

Has anyone tried nicotine gum for PD? I was diagnosed earlier this year, have mild symptoms and have heard that nicotine has neuroprotective properties. I am...

Has anyone tried nicotine gum for PD? I was diagnosed earlier this year, have mi...

lovelabretrievers

•11 months ago

18 Replies

Tip from Dr. William Davis, M.D. to PROTECT your gut if you are taking antibiotics

https://youtu.be/8W4tuQ61sOU?si=1CIIE4MselzlYdLi

PDWarrior1900

•11 months ago

1 Reply

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for October 2023

Does getting more sleep ever worsen PD symptoms?

Best Way to Post a Follow-Up or Update ?

swelling around DBS battery 5 weeks after surgery

High Levels of Mercury

For those of us with tremor ...

Wearing off symptoms

Prazinezumab reduces motor progression

Is Rytary really working better than Carbidopa/Levodopa?

Measure your inflamation at home (this guy's company was bought by STEVE JOBS!)

DBS energy

This is perplexing - Coffee's effectiveness on Parkinson prevention

Sudden insomnia

Zoom calls

Does anyone here see decreases in tremors without using levodopa?

cateract surgery

Levodopa vs Other Parkinson medicines against Fatigue

Vibrating Gloves for Parkinson's Disease

Encouraging News from Pasadena Open Label Extension

Are you taking enough B12?

NON-invasive device to IMPROVE BLOOD BRAIN FLOW

Parkinson's patient experiences improvements following stem cell infusions

An exhaustive study that offers hope that some types of activities can improve symptoms even as disease progresses

Pain with PD

Slow-SPEED ‘Slowing Parinson’s early through exercise dosage’

BLUEBERRY PIE without sugar or flour! (just to lighten-up things here on this forum...)

Auditory hallucinations

ND-0612 by Mitsubishi Tanabe Pharma for Parkinson’s Disease: Likelihood of Approval

DO FISH LIKE LEVODOPA ?

Nicotine gum for Parkinson's

Tip from Dr. William Davis, M.D. to PROTECT your gut if you are taking antibiotics

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