Not long after I as diagnosed with PD in 2014, I recall reading an article online discussing the phenomenon of getting more sleep actually worsening PD symptoms. Several times since then I have searched in vain trying to find that or any articles on this subject.
Has anyone else ever read such a claim, and does anyone know how to locate any such article?
Thanks!
You could try this Google search proposed by the AI and see if it is useful to you.
google.com/search?q=%22Exce...
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Hi CS,
It does worsen symptoms for me in the mornings when I awake as it's the longest time between doses in the 24 hour period that I haven't taken a dose.
I usually sleep from midnight until 4 am, then will take a small dose to get comfortable to fall asleep again. If I fall back asleep w/o meds or make it from 12- 6 am on my own, my tremors are crazy as it would be approx 7 hours since bedtime dose.
Hope this sheds some light on your search.
Eric
Thank you Eric! I'm also dealing with prostate-caused frequent waking mid-sleep...3-6 times per night to use the restroom. I have found that B1 sometimes helps if difficulty getting back to sleep is because of worrying, planning, etcetera, and B5 sometimes helps with adrenaline impulses to do things mid-sleep. Other times in both scenarios sometimes nothing works to get back to sleep, and I just get up and study or work.
I've also noticed what you mentioned, but it would seem that taking the "late" dose of medication (in my case Sinemet) would correct the exacerbated symptoms. In my case, it has (too often) happened that getting "off-schedule" by excessive or insufficient sleep ruins (exaggerates PD symptoms) the entire day.
Thanks again....
Cap........I have never really figured out the B complex so won't attempt, but glad you found a couple things for nighttime. Try to do most drinking by the end of dinner and then more sipping when thirsty during evening. Not always easy, but sleep is hugely important for "us" and you've noticed symptoms and everything is worse w/out sleep.
You seem like me when my job was thinking -planning- thinking scenarios -over & over. Suggestion here to teach yourself to meditate. Not easy, but you don't have to become Maharishi CapSage the 1st, although it's a cool name, you just have to occupy your brain to relax and stop planning, so you can fall back asleep or if you cannot, to tell yourself & convince yourself that you are calm/relaxed heading to work.
Eric
Thanks Eric. Another factor is that my wife has nasal constriction and snores. This has been going for years, and beyond a threshhold, we separate to get sleep. Parky sure complicates things!
AI probably can’t find the research paper. 👎 It can be a bit of a chicken-and-egg problem when it comes to medication, symptoms, and sleep in Parkinson's. Experiencing more symptoms may lead to an increase in medication, which can in turn affect sleep.
For me, every hour more sleep only has a beneficial effect on symptoms and medication.
Thank you Esperanto! See the reply above by Gioc.
Yes it does for me I'm ok if I get up and go back to bed
Thank you Jeff!
Although you might not feel better initially, I'd have thought it'd be much better for you later on.
Thank you CM12, see my reply to eschneid above.
Bella foto !
Don’t always trust research, a substantial amount of scientific research may in fact be false x
Don't know about the paper, but I always feel better when I've slept for long hours 8-9. Sometimes 10 hours straight without waking up. I love it. I'm rigid dominant (if there really is such a subcategory or not, I don't know, but stiffness and pain from cramping are my primary symptoms). No tremors. Levodopa 800 mg a day (4 split doses).
Thank you BeedieBird! Do you take Levodopa with or without Carbidopa? That's great you have no tremors!
The prescription comes with carbidopa, yes. One might think having no tremors is great. Having Rigid Kinetic Parkinson's, not so great.
If sleep includes long periods in the daytime that means you might not be moving enough. Always keep moving!Very long night sleep might just be medication running out.
Thank you! Yes, I've found moving to help in the long run, even if requiring substantial FORCE to get moving when the body seems to be protesting that.
I looked at an article entitled "Sleep in Parkinson’s disease," posted here: ncbi.nlm.nih.gov/pmc/articl....
This article says: "An interesting, yet often neglected feature of PD concerns the interaction of sleep and motor function, with sleep benefit, i.e. some patients experience an improvement of motor function upon awakening [15–19], while others experience positive effects of sleep deprivation on motor function [20–22]."
and
"Interestingly, in patients with PD it has also been described, for the first time as early as 1987 [22], a motor improvement after sleep deprivation. These observations have been later on replicated [20], but could not be confirmed in a controlled study. These latter results suggested that only a subgroup of PD patients could benefit from partial sleep deprivation [21]."
I know if I don't get at least 7.5 hours sleep I'm a train wreck the next day, tremor worse and usually brain fog. My tremor is usually strongest first thing in morning .
I think sleep is the same as everything else. You need the right amount for you , no more, no less! It is a u shape function with worse symptoms with too much and too little. This also applies to meds, exercise, nutrients and foods etc. I believe.
Yes, I've found that to be true as well!
Since using a smartwatch that records various sleep states, I've discovered that I get a lot of sleep but little deep sleep. So I took some common sense steps that greatly increased my deep sleep and improved well-being without drugs.
Question Gio. Is a smartwatch somewhat handleable for someone who is light tremor dominant. Seems like a nice challenge to me? 😅
Certainly, but the more effective the algorithm, the more precise the instrumentation, the more it costs.
mine is apple wacth8 that is like the watch7 in my opinion, and it is truly amazing for monitoring sleep, heart, breathing with any tremor that it considers a background noise not to be taken into consideration, unless I use a specific app that takes this tremor into consideration, such as the apps dedicated to PD.
I don't want to advertise, but they have done a good job for health.
Your Apple shares certainly won't fall! 😉 However, the Watch can also be operated with a slight tremor?
The instrument is very sophisticated and precise and does not take tremor into consideration nor any movement alters its precision.
They sell it on Amazon with right of withdrawal 😀
I can enter with pages like with month of data collection, all quite precise with tremors or not.
All I have to do is wear it as long as possible.
also marks the time, calls and receives messages, detects if I fall with S.O.S. calls in Automatic.😂😂😂😂
With all these parameters you could easily determine the stage of the disease and precisely determine the progression over time.
That's what the new Parkinson's disease apps are trying to determine, going beyond the precision and objectivity of the UPDRS TEST with all the resulting benefits for research.
In the meantime I'm going to pick up the lemons, it's time, winter arrives early and doesn't wait for time wasters like us. 🤣
AI I asked as a saving angel to explain to you in Italian what I actually wanted to know. 😀 However, the extra information I received from you was also very valuable! Thank you 🙏
"Ciao Gio, mi chiedevo se è possibile utilizzare l'Apple Watch con una tremore leggera dovuta alla malattia di Parkinson. Mi piacerebbe sapere se è facile manipolarlo nonostante il tremore. Grazie mille!"
I was back with my neurologist just after almost a year. We disagreed on the degree of progression of the PD. He went back on the tour again of more 💊💊💊💊 while I am very satisfied with my current very low dosage and feel fine. Maybe I see it too optimistic and we need an objective referee, so maybe an Applewatch!
“Ciao Gio, mi chiedo se è possibile utilizzare l'Apple Watch con un tremore leggero dovuto alla malattia di Parkinson. Mi piacerebbe sapere se è facile manipolarlo nonostante il tremore. Grazie mille!"
Si semplicemente lo indossi e esso fa il SUO LAVORO di misurazione nonostante il tremore come anch’io ce l’ho saltuariamente.
Quello che non fa è la diagnosi e le app che ho citato sono in fase sperimentale.
Temo non potrai fare a meno del tuo Neurologo per una diagnosi professionale. La mia opinione è che se hai tremore eccessivo tu sei un po’ sotto medicato, ma non sono un medico.
You simply put it on and it does its job of measuring despite the tremor as I also have it occasionally.
What it doesn't do is diagnose, and the apps I mentioned are in the experimental phase.
I'm afraid you won't be able to do without your Neurologist for a professional diagnosis. My opinion is that if you have excessive tremors you are a little under-medicated, but I'm not a doctor.
You could make a post about this situation and the community will help you.Maybe.😀
"I'm afraid you won't be able to do without your Neurologist for a professional diagnosis." Unfortunately, I'm afraid I can't rely on that. I personally have no problem with my tremor, I can live with that just fine, but I do worry about my peripheral neuropathy which limits me to my exercises. No advice on lifestyle changes, supplements including my B6 that I can't live without. He does get pitying looks and complains about his workload being too high. He won't be bothered by me for the time being.
Indeed I owe more to HU than to my neurologist. Maybe also with extra support from Gio's Applewatch 👍
ok but I would open a new post about this situation, just so you could receive full help from this community .
It doesn't seem like a situation to be overlooked.
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This parameter is recent, it arrived with the latest update. It's called “daylight time” and is described by the smartwatch like this:
Weather in daylight... Add daylight time data: learn more
“Daylight time” is an estimate of the amount of time you spend in sunlight. For children, spending 80-120 minutes outside each day can help reduce the risk of myopia. For adults, staying outdoors for 20-30 minutes a day has numerous physical and mental health benefits.
The eyes can focus on objects that are further away, reducing the associated fatigue
to using nearby objects, such as a screen or notebook.
Additionally, sunlight allows the body to produce vitamin D, which is needed to absorb calcium, protect teeth, bones and muscles, and support the immune system….”
What a huge list of possibilities. The 'daylight time' registration is completely special, because that is precisely something I have focussed on in recent months. That's why I would buy it!
Better not to start a new post now. Let it sink in first. My positive feeling is shaken today, just.like that very first time at diagnosis. I don't think it's in my neurologist's system that PD symptoms can diminish. He didn't say, nice for you that you have so few problems. Let's see what we can do about it to keep it that way or even get it better. No, he literally said, “you know this is only temporary and maybe you should anticipate that already with your medication.”
The uncertainty that always overwhelms you with PD. Can you still trust your own judgement. Why those anxious eyes around me. I'm doing fine anyway. You can hardly see any of my symptoms or yet... don't they recognise the old confident guy anymore? Something about my voice? Am I saying things with less conviction after all, too slowly? Is that brain fog that lifted a year ago lying unnoticed over you again? If it is, ok, but no one says that to you. You try to read the looks. Maybe good to start talking about that in another post. Gio thanks for the empathy I so missed today.
A very good night's sleep to everyone. The best medicine there is!
in these cases everything depends on your point of view and what you look at. I wouldn't fixate on that of the doctors, I prefer a general vision taken from many other points of view present in the context of the PD.
There are numerous cases that through exercise, vitamins and lifestyle has slowed down or almost eliminated the progression of the disease.
“They” would like us to accept their solutions apathetically as the only possible solutions. but not us!
Let’s go to see!
Hi Gioc,Could you please let me know which PD App you are using?
I've just started using the StrivePD App and I think its Tremor & Dyskinesia graph is misleading if not wrong, and such a graph was what I was looking for.
Thanks!
I just got the smartwatch and I'm still looking at it, I'm not using any apps. Consider that in the EU we are a few months behind the US.
I'm in the EU, well in the UK, which used to be in the EU and sadly isn't anymore.
This is false. Too much sleep actually produces a lot more natural dopamine which is available for use when you are awake. Therefore, you need less Sinemet during your waking hours.
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