Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,183 members • 27,513 posts

All posts for November 2017

Sinking Ship

I've been married to my beautiful wife and high school sweetheart for 45 years. Our world fell apart recently when she was diagnosed with Parkinson's. At first...

I've been married to my beautiful wife and high school sweetheart for 45 years. ...

Roram

•7 years ago

49 Replies

Parkinsons and dystonia

Diagnosed with Parkinson’s and dystonia of the abdominal muscles about 6 years ago. When standing or attempting to stand, and walking short distances (25 feet)...

Diagnosed with Parkinson’s and dystonia of the abdominal muscles about 6 years a...

Trojan

•7 years ago

6 Replies

Husband just diagnosed with Parkinson's So confused!

Well after a very long time my husband was diagnosed with PD. He was put on Rytary. He already has Ortho static Hypotension and side affects is dizziness....

Well after a very long time my husband was diagnosed with PD. He was put on Ryt...

Tiger101

•7 years ago

24 Replies

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Azilect

I would like to hear the benefits of azilect

hanifab23

•7 years ago

2 Replies

Confused and overwhelmed

I’m currently 59 and 7 years dx. I currently take only the prescription drugs directed by my neurologist which consist of rytary, amantadine, ropinerole,...

I’m currently 59 and 7 years dx. I currently take only the prescription drugs di...

Sleeplessparki

•7 years ago

41 Replies

For those of us who play piano

I knew it was good for the brain!!

Dap1948

•7 years ago

5 Replies

No Sleep

It seems strange.. the past week I’ve slept better at night, and now the past two nights no sleep again. I see the Neurologist next week, really hoping he...

It seems strange.. the past week I’ve slept better at night, and now the past tw...

12Maxwell3

•7 years ago

4 Replies

Holding Out

I held out for 6 years. My poor old school but good man neurologist thought I was taking them. I was in a quandry because I needed some meds in 2016 but needed...

I held out for 6 years. My poor old school but good man neurologist thought I wa...

NvaGivUp

•7 years ago

2 Replies

USA Expensive Meds

I can never get over how expensive meds are in the USA and the awful Health insurance system it has. We know of people who got fired when they got ill and they...

I can never get over how expensive meds are in the USA and the awful Health insu...

NvaGivUp

•7 years ago

21 Replies

Botox

Has anyone been treated with botox to reduce rigidity?

MGP201

•7 years ago

2 Replies

Dot

Hi I take my meds I talk to a therapist I still feel awful. Take anexity pill. I walk 30 minutes. Thank You Dot

Hi I take my meds I talk to a therapist I still feel awful. Take anexity pill....

Teafor22

•7 years ago

9 Replies

Have you experienced an apparent episode of neuropathy and successfully fixed it?

For about 3 months I have experienced progressive leg neuropathy symptoms. I can barely feel my toes and it is bilateral. The numbness and tingling is...

For about 3 months I have experienced progressive leg neuropathy symptoms. I can...

BUZZ1397

•7 years ago

26 Replies

New here 😄 any yopd out there.?

45 and diagnosed 5 yrs ago. Rigidity and bradykinesia mainly. Any one else like me out there?

45 and diagnosed 5 yrs ago. Rigidity and bradykinesia mainly. Any one else like ...

Jgcren

•7 years ago

14 Replies

I NEED GUIDANCE

This will be a long post. My husband has gone from a diagnosis of probable Parkinson's, to Parkinsonism, to Lewy Body Dementia. At the first diagnosis of...

This will be a long post. My husband has gone from a diagnosis of probable Park...

Boyce3600

•7 years ago

24 Replies

Nilotinib for LBD

Has anyone had any results they would like to share? My mom has Dementia with Lewy Bodies and I'm considering trying nilotinib/tasigna

Has anyone had any results they would like to share? My mom has Dementia with L...

Bretray

•7 years ago

8 Replies

Hand mudras for tremors

Mudras are hand gestures held for a period of time to benefit health and/or spiritual growth. For years I had been Instinctively holding my hands in a position...

Mudras are hand gestures held for a period of time to benefit health and/or spir...

Dap1948

•7 years ago

6 Replies

INFO: Differentiation of the varieties of Magnesium

I know there's a lot of Magnesium fans here, and I was interested in trying it myself for muscle spasms. So many variations! I found a page that tells the...

I know there's a lot of Magnesium fans here, and I was interested in trying it m...

bassofspades

•7 years ago

3 Replies

Hi Im new here

Australia. I was an RN at Emergency Depts mostly. Got diagnosed with PD in 2010. My story is your story in a way. Im here to share and learn. Fortunately one...

Australia. I was an RN at Emergency Depts mostly. Got diagnosed with PD in 2010....

NvaGivUp

•7 years ago

15 Replies

Improving walking in Parkinsons

This video shows some ways to improving walking. It would not suit everyone but it is interesting that he uses diversion rather than focused attention. At...

This video shows some ways to improving walking. It would not suit everyone but...

Hikoi

•7 years ago

27 Replies

Mannitol

What amount of mannitol do you take?

MGP201

•7 years ago

15 Replies

UK - seeing a Neuro privately. Cost/timescale.

Hi, in case anyone is considering this option, my experience is that the appointment was available within a week and cost £200 for 30 minutes. Basically, I...

Hi, in case anyone is considering this option, my experience is that the appoint...

seamus60680

•7 years ago

4 Replies

Paleo vs Ketogenic diet: Which is best for PWP ? (i do not need to lose weight)

Hi, i have read so many post about the Keto diet being great for PWP but it keeps referring to weight loss, and i cant afford to lose any. I do believe...

Hi, i have read so many post about the Keto diet being great for PWP but it keep...

moparkie715

•7 years ago

12 Replies

Paleo vs Ketogenic diet: Which is best for PWP ? (i do not need to lose weight)

Hi, i have read so many post about the Keto diet being great for PWP but it keeps referring to weight loss, and i cant afford to lose any. I do believe...

Hi, i have read so many post about the Keto diet being great for PWP but it keep...

moparkie715

•7 years ago

7 Replies

Aerotoxic Syndrome and Parkinson's disease

www.economist.com/blogs/gulliver/2013/02/air-quality-planes

MGP201

•7 years ago

1 Reply

Results of an interesting survey

https://parkinsonsnewstoday.com/2017/11/09/a-patient-centered-view-of-parkinsons/?utm_source=PAR+E-mail+List&utm_campaign=1f5ade2a7a-RSS_WEEKLY_EMAIL_CAMPAIGN_M

https://parkinsonsnewstoday.com/2017/11/09/a-patient-centered-view-of-parkinsons...

parkie13

•7 years ago

1 Reply

Sinemet

Hi. Does anyone know how much protein we can it with sinemet I eat 3 oz. lunch. 3oz. Dinner Please advise Dot

Hi. Does anyone know how much protein we can it with sinemet I eat 3 oz. lunch....

Teafor22

•7 years ago

8 Replies

Sometimes wanting to stop meds

Ok so I'm just throwing this out there, but there are times I just want to stop taking my medication, does anyone else feel this way. I have slight tremors in...

Ok so I'm just throwing this out there, but there are times I just want to stop ...

jt12

•7 years ago

29 Replies

Is Paralysis inevitable? Anything else?

I suffer from many symptoms of Parkinsons which I am presently controlling with Siniment: these range from tremors to "foot stuck to floor"; need help getting...

I suffer from many symptoms of Parkinsons which I am presently controlling with ...

Nippermcc

•7 years ago

16 Replies

Ooh that Smell

Last night at 4:30am my sense of smell came back all at once. I woke up and smelled a very unfamiliar smell. Was it the coffee maker? Burning plastic? A fire?...

Last night at 4:30am my sense of smell came back all at once. I woke up and smel...

bassofspades

•7 years ago

11 Replies

dyskinesias levodopa induced

excerpt dyskinesias, and dizziness. In some individuals, levodopa may cause confusion, hallucinations, or psychosis. Motor fluctuations develop in about 40% of...

excerpt dyskinesias, and dizziness. In some individuals, levodopa may cause conf...

Hidden

•7 years ago

4 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for November 2017

Sinking Ship

Parkinsons and dystonia

Husband just diagnosed with Parkinson's So confused!

Azilect

Confused and overwhelmed

For those of us who play piano

No Sleep

Holding Out

USA Expensive Meds

Botox

Dot

Have you experienced an apparent episode of neuropathy and successfully fixed it?

New here 😄 any yopd out there.?

I NEED GUIDANCE

Nilotinib for LBD

Hand mudras for tremors

INFO: Differentiation of the varieties of Magnesium

Hi Im new here

Improving walking in Parkinsons

Mannitol

UK - seeing a Neuro privately. Cost/timescale.

Paleo vs Ketogenic diet: Which is best for PWP ? (i do not need to lose weight)

Paleo vs Ketogenic diet: Which is best for PWP ? (i do not need to lose weight)

Aerotoxic Syndrome and Parkinson's disease

Results of an interesting survey

Sinemet

Sometimes wanting to stop meds

Is Paralysis inevitable? Anything else?

Ooh that Smell

dyskinesias levodopa induced

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