Nilotinib for LBD

[Bretray]

Has anyone had any results they would like to share? My mom has Dementia with Lewy Bodies and I'm considering trying nilotinib/tasigna

[MBAnderson]

How would you get it?

[Bretray in reply to MBAnderson]

Maybe apply for financial aid from the manufacturer? Not sure. Any ideas?

[MBAnderson in reply to Bretray]

Also, you need first to find a doctor to prescribe and if you're in the US, that might be difficult.

[Bretray in reply to MBAnderson]

I have a doctor in New Hampshire who has prescribed it about 25 times so far.

[anna1060 in reply to Bretray]

Hi. Many thanks for letting us know there are possibilities for obtaining this drug independent of research trials. Are you able to give us his name?

[Bretray in reply to anna1060]

Can you email me directly and a brief summary of your situation and I can talk to the doctor? I don't yet have the prescription so I feel very cautious of upsetting the cart beforehand. [e-mail]

[MBAnderson in reply to Bretray]

I didn't think many pwp knew about him

[Bretray]

I don't know who knows. There was press about him. Did he help you out?