Holding Out: I held out for 6 years. My... - Cure Parkinson's

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Holding Out

NvaGivUp profile image
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I held out for 6 years. My poor old school but good man neurologist thought I was taking them. I was in a quandry because I needed some meds in 2016 but needed the lower starting doses that he put me on years back in 2013 and an up to date review. Diagnosed in 2010 btw. So he retired suddenly. I went public system (free) to a young guy in Dec 2016 told him the story, he just laughed. The rest is history, Azlect, Sifrol Madopar . UPDRS score total 11 out of 199. Behavioural mental 0. Daily living 3. motor 8 dyskinesias 0

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NvaGivUp
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Hikoi profile image
Hikoi

Nvagivup

Can I ask you a couple of questions cause I find what you write interesting . Sounds like you started meds Dec 2016 right? If so you have been on carb/levadopa just under a year. You report having dyskinesia 2. I wondered when you first noticed dyskinesia?

NvaGivUp profile image
NvaGivUp in reply to Hikoi

Sorry Typo should have been 0 ;) Corrected

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