UC flair put on Pred 40 mg step down

[Yahtze]

hi I had complications after a colonoscopy in February prior I had light to moderate uc flairs on Asacol now Balaaside since 2009 with enema use doing flairs. After colonoscopies had horrible cramping diuretic urgency, was diagnosed with cdiff but they didn’t know if I carried gene posits present neg so the treated me me antibiotics Vaancomycin for 10 days the Gastrologist really - Nurse practitioner put me on prednisone because cdiff me can help and underlying flair and will be aggravated by it. Never bee on it prednisone before so nervous. I was put on 40 mg with a step down by 5 mgs every 7 days for a total of 8 weeks. I am still also taking the Vancomycin (antibiotic for cdiff), and taking the Balalaside for the UC. On day 5 no weight gain,less than 1900 sodium, vitamins and exercise daily while watching calories, BUT very anxious/hyper during day and not sleeping well at night. I am having formers stools no cramping.

I want to taper off this soon, can I not wait full 7 days and start tapering down the 5 mgs to 35 for 5 days, the. 30 for f days etc… or shorter? Any help or suggestion the taper sooner to avoid possible withdrawals would be helpful.

[Brian1977]

I would stick with the instructions you were told. Everytime I start loving down the pred get to 25mg I just flare up again

[Yahtze in reply to Brian1977]

Thanks!!

[Yahtze]

I do keto, but have modified no nuts cooking veggies more my issue is I have to get carbs in 1/2 cup rice or potatoe a day now to form stools. I am on day 7 of prednisone 40mg trouble sleeping gained 1.6 pds eat less than 1200ms sodium a day exercise daily…symptoms seem healed my issue is now I have to taper I should never had started prednisone but since I got the cdiff infection they thought unless my flair was cured the cdiff would not heal so it got complicated. I will google that soluble fiber diet probably similiar to what I am doing I eat very healthy around 1200 calories a day I shoot for.

[Howlinwolf999]

I was diagnosed with UC back in 1975/76 and whenever I needed to get it under control because of a flare I was prescribed prednisone on 40mg then reducing over the following weeks, strongly suggest stick with it as prescribed, it was one of the few medication that really impacted my UC.

[violetmycat]

Hi

You have my commiserations as l have had to go on the high dosage of 40 mls Steroids a day for flare up of UC quite a few times. I’ve been admitted to hospital a few times as l lost all my body salts due to diarrhea. It’s the nights that gets me with not sleeping. But what can you do which is worse a terrible bout of UC or going without sleep? It rules your life with regards to your lifestyle.

Best wishes x