Hi all, I’ve been suffering strange shooting pains, tingling, aches, & occasional muscle twitches (including one under my eye for a couple of weeks) over a period of 4-5 years. They first arrived during a Crohns flare when I was only drinking things like complan & liquids, and the GP I saw at the time said it sounded nutritional & I needed more roughage. I did manage to build my diet up after that and the pains/sensations ebbed away. They sometimes disappear for as long as 6 months, or longer then come back & go away again.
I had an ileal resection nearly 20 years ago, have regular B12 shots & had my active B12 tested recently which came back as high.
About 2 years ago my iron came back as on the low side (28 in range of 20-300) so the doc suggested it might be that. I’ve only managed to raise it to 47 from the low of 28 a couple of years back (I couldn’t stomach the high dose tablets from the doc) so I wondered if it could still be my iron. B12 still seems fine, magnesium I also got checked was fine. I’ve also no idea what my iron levels have been historically & also I am aware the the ‘normal ranges’ are invented mathematical ones, and so some of us might need more of something than others do.
Thing is I rarely feel tired or suffer any of the other ‘low iron’ symptoms. I have pretty good general energy, considering my Crohns I’ve always felt very blessed in that department. I dont get brain fog, or coordination problems. I feel pretty sharp. I don’t get unexplained lows or depressions. I do also have Ankylosing Spondylitis but it doesn’t feel related to that either. That gives me general hip/lower back aches & is in general remission for about 12 years.
Has anyone else had any similar symptoms - nerve pains, muscle cramps/twitches, tingling, even burning sensations - And got to the bottom of it? To me it sounds like classic B12 issues, but active tests suggest not.
Someone suggested it might be a Restless Leg Syndrome in all-over-body format, but I don’t get the restlessness aspect & at night it hardly bothers me.
Any thoughts would be very welcome.