Crohn's and Colitis Support
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Could low iron be causing my nerve pains & aches

Hi all, I’ve been suffering strange shooting pains, tingling, aches, & occasional muscle twitches (including one under my eye for a couple of weeks) over a period of 4-5 years. They first arrived during a Crohns flare when I was only drinking things like complan & liquids, and the GP I saw at the time said it sounded nutritional & I needed more roughage. I did manage to build my diet up after that and the pains/sensations ebbed away. They sometimes disappear for as long as 6 months, or longer then come back & go away again.

I had an ileal resection nearly 20 years ago, have regular B12 shots & had my active B12 tested recently which came back as high.

About 2 years ago my iron came back as on the low side (28 in range of 20-300) so the doc suggested it might be that. I’ve only managed to raise it to 47 from the low of 28 a couple of years back (I couldn’t stomach the high dose tablets from the doc) so I wondered if it could still be my iron. B12 still seems fine, magnesium I also got checked was fine. I’ve also no idea what my iron levels have been historically & also I am aware the the ‘normal ranges’ are invented mathematical ones, and so some of us might need more of something than others do.

Thing is I rarely feel tired or suffer any of the other ‘low iron’ symptoms. I have pretty good general energy, considering my Crohns I’ve always felt very blessed in that department. I dont get brain fog, or coordination problems. I feel pretty sharp. I don’t get unexplained lows or depressions. I do also have Ankylosing Spondylitis but it doesn’t feel related to that either. That gives me general hip/lower back aches & is in general remission for about 12 years.

Has anyone else had any similar symptoms - nerve pains, muscle cramps/twitches, tingling, even burning sensations - And got to the bottom of it? To me it sounds like classic B12 issues, but active tests suggest not.

Someone suggested it might be a Restless Leg Syndrome in all-over-body format, but I don’t get the restlessness aspect & at night it hardly bothers me.

Any thoughts would be very welcome.

Thanks! Xx

3 Replies

Hi, it could well be low iron. twitching of the eye either lower or top lid is more often ascociated with stress.

Restless legs occurs throughout the day I think its just noticed at night.

Has your GP sent blood for iron studies?


I would suggest testing your vitamin D levels. It’s not something normally tested but can cause a whole host of issues similar to low B12.

I had neuropathy in my hands and feet. My doctor kept telling me it was either my disease Rheumatoid Arthritis or my medication Enbrel causing it. I had electrical tingling that ranged from annoying to painful in my extremities-both hands and feet. Then after the electrical feeling, it would just burn like crazy, red hot. It hurt to walk. This went on for years! Then I started having neurological issues and my doc finally investigated. I had very low Vitamin D!

I got on vitamin D and within about a month or two my neuropathy went away, and my neurological issues went away.

Really I suffered and suffered for years because my doctor never thought to test me for this, probably because vitamin D testing is not covered financially. But- I found out for Crohns and RA patients it is in Canada.

I now take 5000IU each day, as my last test showed I am still lowish


Thanks so much for getting back Hobbits.

I think I’ve actually solved the mystery the last few days having piecing it together with a couple of doctors. I think I’m suffering stress reactions. I just didn’t know they could manifest like this!!

I always assumed it was nutritional as I date it back to a Crohns flare but now with some real thought I can align it to Lots of health concerns/worries, actual life stresses at the time, or even a delayed reactions. I worry more than I think I do.

But thank you for the Vitamin D suggestion. The reason I can discount this in my case is my level is the higher end (98 last test) from having taken high does 10,000-5,000 iu for around 10/11 years. My consultant always tells me I have one of the consistently good levels he’s seen in his patients. (But that’s because I took private health care advice on that & haven't followed the NHS recommendations - 1000-2000 units my dietician suggests!!). All other levels are good apart from iron on the lower end, which is why I started to consider that...

but thank you - it is so often overlooked. I was luckily, an early adopter. And I’m so glad it’s helped you ;) Long May it continue...xx

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