Hello all, I'm new on here & I've been reading your posts for a while, but now I'd love to ask your advice. I have Crohns; 17 years. I'm my time I've been drug free after initial surgery (5-6 years), then on azathioprine (2-3 years) before getting a blockage. Shortish courses of steroids over the years. I've been taking LDN for 7 years which I think helps but like all drugs not perfect. I'm desperate not to be on immunosuppressants again as I had awful side effects (then drugs for the side effects) and I don't think it's a great way to live the rest of my life ;( I'm sort of happy to take steroids now & again to induce remission but don't want long term Aza. Anyone else feel this way?
I'm trying diet stuff, but that's confusing & frustrating, and I lose faith so quickly (why it works sometimes & not others). Last few days I have stumbled over literature on the elemental diet, and wondered if anyone does this when flaring to control things? To some degree I do liquid diets when sick but not the 'official' route...My docs never suggest it as an option.
Any experience & notes extremely welcome!