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Children's Liver Disease Foundation

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Any transplant recently

My 4 years had transplant recently , anyone wants to share any experience....

Zubayer

•17 days ago

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Big belly post kasai

Hi,my 8month post kasai baby have Big belly , he have enlarged spleen. Is it normal to have Big belly?

Hi,my 8month post kasai baby have Big belly , he have enlarged spleen. Is it nor...

Zuhena

•24 days ago

5 Replies

Post Kasai_ biliary atresia

My son is 6 months last week, he had biliary atresia and they did the kasai at 5 weeks, the jaundice is still there, how long does it take to clear? Also he...

My son is 6 months last week, he had biliary atresia and they did the kasai at 5...

Min_Gum

•28 days ago

6 Replies

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chicken pox jab

my son is 10 months post kasai. Doing very well, he’s just had his chicken pox jab and was so unwell with it! Severe d&v anyone else experienced this?

my son is 10 months post kasai. Doing very well, he’s just had his chicken pox j...

CoralReefBay

•2 months ago

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Kasia

hello my son had a kasai procedure done at 43 days old is one month two weeks postop and is now having white stool again he is having no other symptoms with...

hello my son had a kasai procedure done at 43 days old is one month two weeks p...

3babys

•2 months ago

6 Replies

poo colour

We are one week after Kasai , two days after the surgery my baby had green poo, yesterday and today the poo is pale yellow! how much time after Kasai the...

We are one week after Kasai , two days after the surgery my baby had green poo, ...

Roshgh

•2 months ago

4 Replies

Brown/ clay coloured stool after kasai

Hi my son undergone kasai 5 days backIn first 24 Hrs i did little greenish and clay colour... Plz tel when the stool will become yellow and bili is same as...

Hi my son undergone kasai 5 days backIn first 24 Hrs i did little greenish and c...

Ksjjsjss

•4 months ago

2 Replies

Billiry attresia

My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors...

My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes ...

srajeshwari53

•5 months ago

24 Replies

Billiry attresia

Hello pls any one tell me recent stories bcoz im very nervous about my son

srajeshwari53

•5 months ago

22 Replies

Weaning post kasai.

Hi, Has anyone weaned before 6 months post kasai surgery? My baby is 4 months old and doing well. He is showing signs that I could start weaning him but...

Hi, Has anyone weaned before 6 months post kasai surgery? My baby is 4 months ...

CoralReefBay

•8 months ago

2 Replies

blood tests

Hi my daughter has had a full body blood test as she is suffereijg constipation and lathergic and sick when gets it and doesn’t eat or drink and all symptoms...

Hi my daughter has had a full body blood test as she is suffereijg constipation ...

Dididoo2024

•9 months ago

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biliary atresia post kasai at 102 days after born

my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4...

my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 ...

Babyjunten

•1 year ago

5 Replies

Raised direct bili

Hi everyoneMy baby will be 3 weeks old on Tuesday. Total bili is 325 since day 7 and conjugated was 24 last Tuesday and 25 on Thursday, so 7% of total. I'm in...

Hi everyoneMy baby will be 3 weeks old on Tuesday. Total bili is 325 since day 7...

Mbh3129

•1 year ago

1 Reply

Isolated raised direct bilirubin

Hi all, I have a 5-week-old boy whose direct bilirubin is high (3.1 mg/dl), while other LFTs are all normal (AST, ALT, ALP, GGT). Has anyone seen this...

Hi all, I have a 5-week-old boy whose direct bilirubin is high (3.1 mg/dl), wh...

hyangzhou

•2 years ago

6 Replies

Chances of not Biliary Atresia

Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin was high ( GGT normal) when he was 3 weeks old. Since then several repeat labs...

Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin ...

Hope1222

•2 years ago

3 Replies

Kedar@2019

My son was diagnosed with Biliria Artresia at first month after birth. He underwent Kasai procedure at 2nd month. After that his stools are normal and...

My son was diagnosed with Biliria Artresia at first month after birth. He underw...

Drawing_1982

•2 years ago

1 Reply

White stool and jaundice back two months after kasai procedure.

My daughter had kasai procedure at 78days and we stayed in the hospital for one month in japan and she was recovering well from day one and her jaundice had...

My daughter had kasai procedure at 78days and we stayed in the hospital for one...

Lounges

•2 years ago

2 Replies

Please check my babies poop!

Can someone please let me know if this poop looks normal. It’s definitely grayish but wet and not chalky. I’m definitely a little concerned.

Can someone please let me know if this poop looks normal. It’s definitely grayis...

Dodgers1234

•2 years ago

1 Reply

DLA renewal

Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant...

Hi wondering if anyone has had a successful DLA claim for their child post liver...

Ducks123

•2 years ago

3 Replies

British Transplant Games - King's families (UK)

Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have...

Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at K...

ConsMum

•2 years ago

1 Reply

liver transplant

Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long

Good day has anyone's child undergone an operation of a liver transplant and h...

Ririza-31

•2 years ago

6 Replies

Babys poop

does babies with BA poop bright yellow sometimes?

Samyy

•2 years ago

1 Reply

2 months post transplant

My daughter was diagnosed with BA at 20days after birth (29feb 2020)had kasai at 1 month and 5days (17march 2020) things were good for until she turned 1year...

My daughter was diagnosed with BA at 20days after birth (29feb 2020)had kasai at...

Umie

•2 years ago

1 Reply

Biliary Atresia

My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite...

My daughter had a Kasai procedure a little over a month ago. We noticed today he...

Gotita0505

•2 years ago

4 Replies

Does this poop look normal for a 2 year old

My 2 year old as pooped like this today is it considered normal or pale. She ain't been eating well recently and had loose stools after drinking milk so I kept...

My 2 year old as pooped like this today is it considered normal or pale. She ain...

Lucybb1986

•3 years ago

2 Replies

Alpha1 Antitrypsin Deficiency and liver fibrosis

My daughter was diagnosed with Alpha1 Antitrypsin deficiency at 8 weeks old she is now 6 and was doing really well until her most recent appointment, we have...

My daughter was diagnosed with Alpha1 Antitrypsin deficiency at 8 weeks old she ...

Kat-1986

•3 years ago

3 Replies

Which enzyme is more elevated in biliary atresia?

duck554

•3 years ago

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Post Kasai Procedure

My sons biluribun level came down from 7.5 to 2.4 . Before the surgery direct biluribun was 5.5 after 1 month it is 1.5 when can we consider it as a success....

My sons biluribun level came down from 7.5 to 2.4 . Before the surgery direct bi...

Haha93

•3 years ago

2 Replies

Post kasai tummy pain

Hi my son born with BA got kasai at age of 62 days. He is now 7. He has now tummy pain often after meal. He has also episodes of varices. Any help please??

Hi my son born with BA got kasai at age of 62 days. He is now 7. He has now tumm...

Blue2211

•3 years ago

1 Reply

Post Kasai and Need for Liver Transplant

My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and...

My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mg...

manhealth

•3 years ago

7 Replies

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

Any transplant recently

Big belly post kasai

Post Kasai_ biliary atresia

chicken pox jab

Kasia

poo colour

Brown/ clay coloured stool after kasai

Billiry attresia

Billiry attresia

Weaning post kasai.

blood tests

biliary atresia post kasai at 102 days after born

Raised direct bili

Isolated raised direct bilirubin

Chances of not Biliary Atresia

Kedar@2019

White stool and jaundice back two months after kasai procedure.

Please check my babies poop!

DLA renewal

British Transplant Games - King's families (UK)

﻿liver transplant

﻿Babys poop

2 months post transplant

Biliary Atresia

Does this poop look normal for a 2 year old

Alpha1 Antitrypsin Deficiency and liver fibrosis

Which enzyme is more elevated in biliary atresia?

Post Kasai Procedure

Post kasai tummy pain

Post Kasai and Need for Liver Transplant

Search posts

Pinned Posts

Latest poll

Where in the world are you from?

Topics

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liver transplant

Babys poop