My Son is 9 weeks old, had the kasai operation when he was 6 weeks old his eyes are still a bit yellowish Stool is light yellow and he poop every feed. doctors said that they found mild to moderate fibrosis in his biopsy report . i wanted to know about mild to moderate fibrosis . anyone had this kind of report? Also poop colour? When it changeHis weight is slow pls reply
Thank u
Hello take every day at a time stay in touch with some other parent so you have someone too talk to through out your journey it helps. Are you from the uk?
Thank u No im from india
My son also had the Kasai. He had the Kasai at 8 weeks and it did not work. However I do know many children for whom the Kasai DID work even if they had fibrosis. I hope the Kasai will start to work for your son!
Thank u for ur response how is ur son now and pls tell me ur sons journey.
He had a liver transplant at 11 months old. Shortly after his liver transplant he developed PTLD and had to get Rituximab for 6 months. Since then he had been doing great! He is turning 4 next month and he goes to preschool, has friends and loves to play. It was definitely not an easy road but we are in a good place now.
Hi,how's ur son now. Where in India u did kasai. I stay in kuwait ,here my son had kasai 3 months back.. I'm from India.always very desperate n want to knw more abt this disease
Is surgery is success
Here they say,we have to wait for a year ,it depends upon his blood levels n bilirubin levels,its better all those levels to come down.my son is doing well but few of his levels r still high.. hoping for success kasai, waiting for God's miracle. MAY ALMIGHTY PROTECT ALL OUR CHILDREN
Share ur sons jurney
Ur sons stool colour changed or not? And ur son is gaining weight or not?
Gaining weight but not too much.yes by God's grace stool colour is changed. I'm from mangalore. When I land down to India I want to consult doctors there , may be I consult in manipal. If possible I may visit bangalore, pls guide me then
After kasai How many Days it will take to change stool colour? What is the stool colour?
Yes i will definetaly guide u? If possible pls share ur sons full jurney bcoz it will help so many peoples
Hello iam from banglore his kasai is done in banglore Indiragandhi child specilist hospital My son is very active he is 3 months old he smiles every wake up and 5 weeks post kasai how is ur son?
Biliary Atresia- Kasai
Just confirmed that my son has Biliary artesia 
Elevated direct bilirubin and liver enzymes 
Portal hypertension but LFTs still normal.
Looking for positive outcome stories after Kasai procedure.
