Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

2,003 members • 703 posts

All posts for January 2013

any advice on QUESTRAN

glitterbug38

•11 years ago

3 Replies

Breastfeeding an alagilles baby

My little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in pregnancy as his dad has alagilles. He also had a VSD ( hole in heart) until...

My little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in...

Ellec93

•11 years ago

10 Replies

Hi My Son was diagnosed with Wilsons disease last year and his Neutrophil count is still low .6 Does anybody know if this is normal?

woowoo

•11 years ago

1 Reply

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Congenitail Hypatic Fibrosis, Varices, Portial Hypertention

Hello my self and my sister have had this condition for years and have grew up with this I am now 34 and she is 33 if anyone would like to ask questions then...

Hello my self and my sister have had this condition for years and have grew up w...

Kemnay

•11 years ago

6 Replies

Meet-up with others without leaving your home! CLDF's new series of Skype calls.

Hi all I just want to let you know about a new opportunity for you to share stories and make new friends. We’re holding a series of Skype calls so you...

Hi all I just want to let you know about a new opportunity for you to share s...

Hidden

•11 years ago

1 Reply

Hi my son was diagnosed with auto immune liver disease at 3 years old but kept it under control with tablets until he turned 17 we was put

On the transplant list but he's now 19 and at a critical stage 2 years on we are still waiting on a liver I'm so worried and anxious ! Any advice welcome...

On the transplant list but he's now 19 and at a critical stage 2 years on we are...

Dancing2

•11 years ago

9 Replies

Hi my son was diagnosed with autu immune liver disease at 3 years old and kept it under control with tblets but 2 years ago at the age of

17 was put on the liver transplant list its now 2 years on and we are still waiting for a liver to be available hes now 19 and at a critical stage im really...

17 was put on the liver transplant list its now 2 years on and we are still wait...

Dancing2

•11 years ago

6 Replies

Hi I am new to this''' I would like to talk to some people who are goin or been through same situation as I am goin through now.

My daughter was diagnosed with billiary atresia at 8 weeks had the Kasai at 9 weeks. Everything been goin good until recently we new she very small for her age...

My daughter was diagnosed with billiary atresia at 8 weeks had the Kasai at 9 we...

leather

•11 years ago

10 Replies

Slough bowling - thank you for joining us!

Thanks to everyone who joined us for bowling in Slough last Saturday 912 January). It was lovely to meet you all, and I hope you all enjoyed meeting others and...

Thanks to everyone who joined us for bowling in Slough last Saturday 912 January...

Hidden

•11 years ago

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Can and should primary schools administer medication that my child needs during the school day for a long term medical condition?

Our daughter is due to start school in September and when visiting the school we would like her to go to, the Headteacher said he would not let his staff...

Our daughter is due to start school in September and when visiting the school we...

katiej

•11 years ago

7 Replies

My daughter had Kasai procedure some 12 years ago aged 9 months after being diagnosed with colechdocal cyct.

She has been extremely well since but has been "under the weather" for past 3 months, feeling a little nauseous, continual stomach ache and very lethargic. We...

She has been extremely well since but has been "under the weather" for past 3 mo...

skinna

•11 years ago

8 Replies

Hello to mammies and daddies!!

I have 2 boys.. Lewis aged 4 and lil junior 10weeks who has now been told he has alpha 1 liver diesease... Like to speak to other familes going thro samething...

I have 2 boys.. Lewis aged 4 and lil junior 10weeks who has now been told he has...

natalie24xxxx

•11 years ago

9 Replies

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

All posts for January 2013

any advice on QUESTRAN

Breastfeeding an alagilles baby

Hi My Son was diagnosed with Wilsons disease last year and his Neutrophil count is still low .6 Does anybody know if this is normal?

Congenitail Hypatic Fibrosis, Varices, Portial Hypertention

Meet-up with others without leaving your home! CLDF's new series of Skype calls.

Hi my son was diagnosed with auto immune liver disease at 3 years old but kept it under control with tablets until he turned 17 we was put

Hi my son was diagnosed with autu immune liver disease at 3 years old and kept it under control with tblets but 2 years ago at the age of

Hi I am new to this''' I would like to talk to some people who are goin or been through same situation as I am goin through now.

Slough bowling - thank you for joining us!

Can and should primary schools administer medication that my child needs during the school day for a long term medical condition?

My daughter had Kasai procedure some 12 years ago aged 9 months after being diagnosed with colechdocal cyct.

Hello to mammies and daddies!!

Search posts

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