Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

1,999 members • 703 posts

All posts for February 2013

how I got diagnosed with non alcoholic fatty liver dieses(nafld)

I kept getting admitted to hospital and like once a week and the doctors and nerses thought I was lying I had lots of scans done my Ultrasound showed some fat...

I kept getting admitted to hospital and like once a week and the doctors and ner...

Ivy123

•11 years ago

3 Replies

does anyone with nafld get a lot of pain

Ivy123

•11 years ago

2 Replies

Naturopath For keeping well with congenital hepatic fibrosis.

Hi. He firstly gave an example of what's happening. He said its as though Conor is standing on a cliff edge. He said western medicine are not interested in...

Hi. He firstly gave an example of what's happening. He said its as though Cono...

Yorkmum

•11 years ago

1 Reply

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Ursodeoxycholic acid - problems obtaining - discontinued?

Went to our local chemist today to get son's regular Urso prescription and when they went to order it they said it was discontinued - managed to get some from...

Went to our local chemist today to get son's regular Urso prescription and when ...

Becky01

•11 years ago

4 Replies

Post transplant sleep problems

My daughter is 2.5 years old, 2 years post transplant. She has never been a great sleeper, I think she spent too much time in hospitals from 5 weeks of age to...

My daughter is 2.5 years old, 2 years post transplant. She has never been a grea...

kirsw

•11 years ago

8 Replies

Help

My son was diagnosed at 6 weeks with ba (basm) he is now 16 months he has been in and out of hospital the last year being treated for colongitis my issue the...

My son was diagnosed at 6 weeks with ba (basm) he is now 16 months he has been i...

Yvonne79

•11 years ago

4 Replies

had a kasai at 20 days old but as hes basm we know were heading towards transplant would love to talk to others post or pre transplant

glitterbug38

•11 years ago

8 Replies

Sclerosing Cholangitis and Ulcerative Colitis - diet advice please!

Hi there - my son has both SC and UC , and it can be quite confusing as the dietary advice for both conditions can sometimes contradict each other - I was...

Hi there - my son has both SC and UC , and it can be quite confusing as the diet...

Becky01

•11 years ago

1 Reply

Chicken pox post liver transplant? Has anyone suffered from chicken pox post liver transplant & if so is anyone able to share experiences?

Biag

•11 years ago

5 Replies

Getting stuck into our first arts project for children!

It was great to meet some of you at Sticky Art, CLDF’s very first event for children which took place last weekend. Nine children aged from seven to 12...

It was great to meet some of you at Sticky Art, CLDF’s very first event for chil...

Hidden

•11 years ago

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can anyone recommend a cream for dry skin on the face of a BA child?

BACC

•11 years ago

5 Replies

Behaviour in Alpha 1 ATD kids

Hi there. My son (now 14) was diagnosed with alpha1 ATD at 9 weeks with liver complications. At 7 he was diagnosed with ADD which now at 14 seems to become...

Hi there. My son (now 14) was diagnosed with alpha1 ATD at 9 weeks with liver co...

ckjm

•11 years ago

1 Reply

Does anybody know where I can find information on the behavior of children with Bilary Atresia?

emerlambe

•11 years ago

1 Reply

Take a look at some inspirational videos from young people

Hi all You may have heard about CLDF’s new and innovative project for young people, Talk Tell Transform. The project enables young people to come together,...

Hi all You may have heard about CLDF’s new and innovative project for young p...

Hidden

•11 years ago

2 Replies

My baby was diagnosed with biliary atresia at 6 weeks got a Kasai at 7weeks, it has been such a scarey and emotional journey.

He is now 4 weeks post Kasai and doing really well feeding and gaining weight. I would love to hear some positive outcomes as all I am hearing is negative, I...

He is now 4 weeks post Kasai and doing really well feeding and gaining weight. I...

Liza12

•11 years ago

76 Replies

CLDF's first Skype call - what we talked about...

Thanks so much to those who took part in CLDF’s first Skype call for mums – it was lovely to see/speak to you! We chatted about… •Tests and biopsies –...

Thanks so much to those who took part in CLDF’s first Skype call for mums – it w...

Hidden

•11 years ago

1 Reply

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

All posts for February 2013

how I got diagnosed with non alcoholic fatty liver dieses(nafld)

does anyone with nafld get a lot of pain

Naturopath For keeping well with congenital hepatic fibrosis.

Ursodeoxycholic acid - problems obtaining - discontinued?

Post transplant sleep problems

Help

had a kasai at 20 days old but as hes basm we know were heading towards transplant would love to talk to others post or pre transplant

Sclerosing Cholangitis and Ulcerative Colitis - diet advice please!

Chicken pox post liver transplant? Has anyone suffered from chicken pox post liver transplant & if so is anyone able to share experiences?

Getting stuck into our first arts project for children!

can anyone recommend a cream for dry skin on the face of a BA child?

Behaviour in Alpha 1 ATD kids

Does anybody know where I can find information on the behavior of children with Bilary Atresia?

Take a look at some inspirational videos from young people

My baby was diagnosed with biliary atresia at 6 weeks got a Kasai at 7weeks, it has been such a scarey and emotional journey.

CLDF's first Skype call - what we talked about...

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