Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation
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One month after kasai

My son had kasai on Nov 5, when he was 83 days old. It's almost a month after su...

Biliary Atresia

My daughters portal vein wasnt visible on an ultra sound - less than 48 hours of...

1 week passed after kasai

Hello all. My daughter had kasai just 1 week ago. She was 9 weeks old. her tota...

White stool after kasai

Does any baby experienced white or very pale stools one month after kasai. My d...

Has anyone been a live Liver Donor for their son or daughter with liver disease?

My son has PFIC Type 2 and we tried every type of medication available to him ho...

3 weeks after Kasai

Hi My girl daughter had Kasai surgery on 58th day. She has been discharged to h...

Child’s liver disease

Can someone give me the Facebook group please for child’s liver disease tia

Temperature while on antibiotics for cholangitis

My daughter has biliary atresia and currently in hospital again due to a spiked ...

Bilirubin vs alk phosphatase

Hi, My son had his kasai when he at 54 weeks. He's already 1 month post kasai y...

Post transplanted for 15 years.

My daughter was diagnosed with Biliary Atresia a failed kasai. She had a liver t...

kasai

will belly size after kasai can be improved

Biliary atresia

Took my daughter into A&E friday morning due to a high temp turns out she had li...

Choledocal cyst

Choledocal cyst removed when I was newborn.im now 30 years old and I’m wondering...

Bilary atresia. Start of this nightmare. Advice needed.

My daughter has just been diagnosed with biliary atresia. She is 4weeks old and ...

2 year old daughter - new pfic diagnosis

Hi all. After some advice please, my little girl was diagnosed with pfic July 18...

Biliary atresia going abroad

My daughter had kasai procedure end of June this year for biliary atresia and we...

I’m 30 years old and was diagnosed as having a Choledocal cyst when newborn. Is drinking alcohol a life threatening problem?

Choledocal cyst and alcohol

What does it means when kasai is partially working?

What's the outlook for baby with partially working kasai? My baby's bilirubin ha...

Raised intracranial pressure

Anyone with alagilles or any liver condition got raised intracranial pressure wi...

Regarding dla as confused help

Children with biliary artesia r they entitled 2 dla as kings college hospital Lo...

Portal vein thrombosis

My son was diagnosed with portal vein thrombosis causing portal hypertension in ...

How long after kasai to get normal bilirubin? Or decide that need transplant? + why

Hit me up with your story please. For those with successful kasai, how long is i...

Elevated ALT - 2 months post kasai

Hi all, My daughter has biliary atresia. Kasai done when she's 4 weeks old. Bil...

After kasai

After some advice.... My daughter had the kasai procedure last week and obviousl...

Alagille Syndrome/TOF with Pulmonary Atresia

Hi everyone, my son was diagnosed with alagille syndrome when he was one month o...

Join CLDF now!

You can now join CLDF online! Go to: https://childliverdisease.org/cldf-support...

Travel insurance for post liver transplant child

Hello, can anyone advise on holiday insurance for my daughter, who is aged 12 an...

Gilberts syndrome

Hi . My son 11 years old have been poorly since Jan. And on and off threw last ...

Benign liver mass op

Hi everyone, my daughter has a large undiagnosed mass on her liver , just befor...

fibrosis after kasai

My son has a process Kasai of the age of two months and a half .. Praise be to G...
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