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Children's Liver Disease Foundation
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After kasai

After some advice.... My daughter had the kasai procedure last week and obviousl...

Alagille Syndrome/TOF with Pulmonary Atresia

Hi everyone, my son was diagnosed with alagille syndrome when he was one month o...

Join CLDF now!

You can now join CLDF online! Go to: https://childliverdisease.org/cldf-support...

Travel insurance for post liver transplant child

Hello, can anyone advise on holiday insurance for my daughter, who is aged 12 an...

Gilberts syndrome

Hi . My son 11 years old have been poorly since Jan. And on and off threw last ...

Benign liver mass op

Hi everyone, my daughter has a large undiagnosed mass on her liver , just befor...

fibrosis after kasai

My son has a process Kasai of the age of two months and a half .. Praise be to G...

Alagille syndrome & papildemia

Hi would any of use now of anyone has alagilles also affected with papildemia? B...

Amazing

Hello your story is amazing. To know there is someone at your age who has survi...

45 days after kasai

Baby is happy. She’s eating really good. 45 days since procedure. Levels have go...

PERSISTENT CONJUGATED BIL. LEVEL 

Hi, Is there need to be worried. Total bilirubin is 0.8mg/dl , and conjugated i...

Do symptoms improve in a child with Alagille as he/she grows?

Hello, do symptoms improve in a Child with Alagille as he/she grows?

Kasai one week ago.

We just had kasai one week ago, stools were yellow when leaving hospital now lig...

Alagille Syndrome

My son has been officially diagnosed with Alagille Syndrome he has liver, heart,...

Babycj

Hello everybody! It makes me real happy to hear an not alone dealing with my son...

Evaluated Liver Funcation Test after being post transplant for 14 years.

Hello Everyone My daughter is 17 year’s old and as a baby she was diagnosed wit...

High direct bilirubin?

Our little man is 2 weeks and 5 days old. At 3 days old he was put in the nicu w...

Happy New Year!

Have you made a new years resolution? Maybe you resolution could be to make sur...

Merry Xmas

Hi followers- I would like to wish you all a very merry xmas and a happy new yea...

Constant High GGTP ( GAMMA GT) and Bilirubin Total (Tbil) - 27 days old baby

Hi there.. Our baby has contant high GGTP and TOtal Bilirubin. Conjugated is 0. ...

after 4 months kasai

What about the size of the abdomen after the process of Kasai .. What is normal ...

frequent fever after kasai procedure

hi friends, my daughter had kasai at her 2 months of age. now she is in six mont...

For baby evo

Hi! I have a friend, her son is 1 yr old and suffering from biliary atresia.. I...

3 months after kasai

Please Help . What is the rate of the rise of normal liver enzymes after the Kas...

Portal hypertension, enlarged spleen and liver damage

Can anyone give me any advice on portal hypertension, my 1 year old daughter has...

kasai Procedure

hi, Anyone who done KAsai from Pakistan/asia.

liver enzymes after kasai

please l need help my son had kasai 3 months ago.. bili is always going down ...

Biliary atresia/ KASAI PROCEDURE post op management in 8 weeks old baby

Hello.my daughter of 8 weeks had biliary atresia diagnosed 10 days ago.she under...

Conference Time!

The CLDF team are busily preparing for our national conference this weekend. We...

New biliary atresia family, looking for support and community

On September 7th my 11 week old son has the Hida scan and on September 10th he h...
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