Post kasai with orange stool color
MpumiTee7 days ago
Baby is 7 weeks post kasai, he was diagnosed with BA. Now stool color had turned yellow and his billi also going down although GGT and ALP w...
Can viral infection give elevation in liver enzymes???
Dina19868 days ago
My daughter’s numbers keep growing, bilirubin dropped a bit from 26 to 25, very strange, we have paediatric appointment on Tuesday, they are...
Dharmprakash9 days ago
My daughter is diagnosed with biliary atresia when she was 8 weeks ( 9th July 2018 )old . Doctor has suggested the Kasai operation on 14th A...
Can You Breast Feed When Your Child Has Liver Disease?
Lois-Cldf11 days ago
If you are breastfeeding you will be encouraged to continue if your baby is growing well because breastfeeding brings many benefits to both ...
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Elevation of liver enzymes in Alagilles
Dina198612 days ago
My 17 months old daughter was born with Alagille Syndrome, she was doing quite ok and showed positive dynamics and gastro team moved us ...
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Biliary Atresia- Kasai
Pencek15 days ago
Hi, my daughter was diagnosed with BA at 6+ weeks & had the Kasai procedure done at 7+ weeks. We have been in the hospital now 2+ weeks post...
Auxiliary liver transplant anyone?
Pizamkazdw16 days ago
Looking for advice and to exchange experiences
The weekender is nearly here!
Lois-Cldf16 days ago
Just over a week to go!
British Transplant Games
Lois-Cldf18 days ago
Birmingham, Uk are hosting the British Transplant games this weekend! Is anyone going to any of the events? Cldf will be there so if you se...
Children and Families Officer
Lois-Cldf24 days ago
Hi all! My name is Lois and its a pleasure to introduce myself to you all! If you have any questions about Cldf- what we do, what support ...
Looking for Hepatites A ( HAV)
Haythama month ago
Any One can help me to get Hepatites A ( HAV) Vaccination as it is no longer found in EGYPT any one can advice as it is very important t...
Not Glandular Fever
jamondoa month ago
I use Healthunlocked for my thyroid issues and found it very helpful. In this case my 13 year old daughter has suffered with tonsillit...
Biliary Atresia 10 month Update
Leefa month ago
Hi all! I was lead to this website when my son was first diagnosed with Biliary Atresia at around 2 months of age. I asked questions on here...
2 Replies3 Likes
I’m looking for other Choledocal cysts patients like me. I’m 29 and I was diagnosed with the disease as a newborn.
toni54321a month ago
I am now as an adult having problems with abdominal pain so bad that I ended up in the emergency room. Only for them to give me ultrasound a...
Long term after Kasai operation
Haytham2 months ago
My son had his Kasai when he was at 14 weeks old . His is going well and now he is two years old and every three months we did liver functio...
Joey20082 months ago
I have been giving my 9 years old this medication for about 2 and a half years and when I read the side effects of azathioprin...
7 year old boy diagnosed with Liver Disease
melredstar2 months ago
I'm devastated. Today I was told my 7 year old son has Liver disease. Despite a few issues he seems so healthy and happy at the moment. How ...
9 Replies1 Like
Waiting for the MRI
Sophie2462 months ago
Waiting for his MRI.
As a rule people only write about stuff when it’s bad, like bad food or bad hotels.
So it’s often difficult to find good news on the interne...
After his Wilson’s and autoimmune hepatitis both coming back negative, my son is now going for a n MRI to check his bile and vascular ducts,...
Poop color and bili levels
Mk112 months ago
My son’s poop color was light yellow as seen in the pic . This was when he was on 80% formula as the doctors thought it was breastmil...
PFIC - Type 1
NoahsStory2 months ago
So, can anyone at all help me understand what is actually going on? My 2 year old son has recently been diagnosed with PFIC Type 1 and every...
FabioAveiro2 months ago
Good morning, my son has been diagnosed with biliary atresia, but his diapers have green poop, what are the reasons for the color of these p...
Jonesogb2 months ago
My daughter was born with biliary atresia. She had a kasai surgery after 10 days of birth. She became fine and she's about 13 months now an...
3 Replies1 Like
After Kasai Procedure
Twiin2 months ago
Hi, my son was operated 02/06/18. He have shown no physical signs of improvement or signs of getting worse. His bilirubin and LFT are still ...
27 with a few questions for survivors same age or older than me.
Hopemarieann3 months ago
Hi I’m 27 years old, I have my original liver. But within the past few years I been having little troubles. I have a blockage in the bile du...
Help with regard 2 claiming dla and r u entitled 2 it
Puds183 months ago
Hi my daughter was diagnosed. With ba at 3wks had kasia surgery at 4 wks old she doing really well and slowly putting on weight but doctor s...
4 Replies1 Like
Choledochal cyst, treatment, outcomes
Arsha363 months ago
I'm 23 weeks pregnant with a boy and was told he has choledochal cyst, we will schedule an appointment later in the month with a pediatric s...
13 Replies2 Likes
Amylene4 months ago
I'm a newbie here, I've been searching and stressing out about this Billiary Atresia. I read some of parents thier babies BR are 14 and keep...
Liver Functions Test Are Out Of Range
Passion1234564 months ago
My daughter is 16 years old and was diagnosed with Biliary Atresia as a baby unfortunately the Kasai Portoenterostomy was unsucc...
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