Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

2,000 members • 703 posts

All posts for February 2014

INTRODUCING MYSELF N DAUGHTER

Hi I just wanted to introduce my self to the forum. My daughter was diagnosed at 6 wks with BA n had kasi at 8 wks. She will be 4 on April 1st and so far do...

Hi I just wanted to introduce my self to the forum. My daughter was diagnosed at...

stephieford1988

•10 years ago

4 Replies

Can anyone recommend a children's medical information book/game which includes some information on the liver?

My daughter is 5 and has Alagilles Syndrome. She doesn't like to talk about her poorly liver much which is fine and we go at her pace. But we wondered if...

My daughter is 5 and has Alagilles Syndrome. She doesn't like to talk about her ...

CROC

•10 years ago

4 Replies

I have a 10 year old daughter who was recently diagnosed with esophageal varices and portal hypertension. She has had 3 varices banded

already and we are getting ready to have another one banded. She is always having abdominal pain and headaches . Any suggestions on what to do.

already and we are getting ready to have another one banded. She is always havin...

momof2

•10 years ago

3 Replies

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Successful DLA claims

Has anyone made a successful DLA claim for a child with ulcerative colitis and primary sclerosing cholongitis? I've recently put a claim in for my son who's...

Has anyone made a successful DLA claim for a child with ulcerative colitis and p...

LizNatt

•10 years ago

2 Replies

Unknown disease.

My son has smaller and fever bile ducts. He was jaundice as a baby and now, he is three, his billi is normal. His bile levels and his enzymes run very high....

My son has smaller and fever bile ducts. He was jaundice as a baby and now, he ...

Lpavlich

•10 years ago

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Teenagers dealing with ANGER

My son was diagnosed with auto-immune liver disease and sclerosing cholangitis when he was 10 years old. Up until he was 15-16years this remained reasonably...

My son was diagnosed with auto-immune liver disease and sclerosing cholangitis w...

Hummingbird

•10 years ago

8 Replies

Hello, I need to speak to parents of children with Biliary Atresia about any advice on tooth decay!!

I am very worried about my son's teeth. He is 3yo and the dentist advised to take 5 teeth out due to the decay being already into the root of the teeth. She...

I am very worried about my son's teeth. He is 3yo and the dentist advised to tak...

babyzuzu

•10 years ago

6 Replies

ARPKD

Is there any one on here that has this disease that is my age

DanaBoo

•10 years ago

3 Replies

Me!!

I just recently found out I have a genetic disease called ARPKD. I am scared and don't know anyone that has the same disease. I fell like no body knows what im...

I just recently found out I have a genetic disease called ARPKD. I am scared and...

DanaBoo

•10 years ago

1 Reply

Who offers travel insurance for children with biliary atresia?

Our daughter is 16 weeks old and had the kasai operation 10 weeks ago. All seems to be going well and we've booked a holiday to Spain in May. I'm trying to...

Our daughter is 16 weeks old and had the kasai operation 10 weeks ago. All seems...

Tilly-mint

•10 years ago

2 Replies

A study into the lives of young people living with liver disease

Dr Pam Lowe from Aston University and Professor Elizabeth Peel from University of Worcester are leading a research project to find out more about the lives of...

Dr Pam Lowe from Aston University and Professor Elizabeth Peel from University o...

Caitlin-CLDF

Partner•10 years ago

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

All posts for February 2014

INTRODUCING MYSELF N DAUGHTER

Can anyone recommend a children's medical information book/game which includes some information on the liver?

I have a 10 year old daughter who was recently diagnosed with esophageal varices and portal hypertension. She has had 3 varices banded

Successful DLA claims

Unknown disease.

Teenagers dealing with ANGER

Hello, I need to speak to parents of children with Biliary Atresia about any advice on tooth decay!!

ARPKD

Me!!

Who offers travel insurance for children with biliary atresia?

A study into the lives of young people living with liver disease

Search posts

Pinned Posts

Latest poll

Where in the world are you from?

Topics

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