Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

2,001 members • 703 posts

All posts for June 2013

Anyone heard of clusters of BA?

Hello guys, My daughter was born with BA 3 years ago in our local hospital. She is nearly 3 years old and 2.5 years post transplant, oh and she is...

Hello guys, My daughter was born with BA 3 years ago in our local hospital. ...

kirsw

•11 years ago

2 Replies

Chicken pox with alpha 1

My lil boy has alpha 1 . He 8 months old and on lots of meds. Think he has chicken pox. Would he be ok?

My lil boy has alpha 1 . He 8 months old and on lots of meds. Think he has chick...

natalie24xxxx

•11 years ago

8 Replies

Does elevated conjugated bilirubin in newborn always mean liver disease?

I have a 5 week old baby girl who has been jaundiced since birth (can especially tell in whites of her eyes). At the last appointment we had a blood test...

I have a 5 week old baby girl who has been jaundiced since birth (can especially...

scoopst

•11 years ago

17 Replies

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Can anyone give me any ideas what could be wrong with my daughter, she has Gilbert's but the doctor now thinks there is something else,

Hi, my 14year old daughter was diagnosed with Gilbert's 2years ago and since then she is continuously jaundiced and often has stomach aches in the liver area...

Hi, my 14year old daughter was diagnosed with Gilbert's 2years ago and since the...

maximum

•11 years ago

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Having a moment !!!!

I am having an emotional moment .... Reece had his graduation award ceremony yesterday and is at his prom tonight ..... It has just hit me that my little boy...

I am having an emotional moment .... Reece had his graduation award ceremony y...

ChristineB

•11 years ago

6 Replies

Anyone in a similar position??

Our 12week old Son has been having liver function tests every week since he was 6weeks old due to prolonged jaundice but his ALT enzyme was high then got even...

Our 12week old Son has been having liver function tests every week since he was ...

MyHouseofBoys

•11 years ago

5 Replies

Hello my son has had problems with his liver i just wondered if anyone has had problems with red/purple bruising just appearing ?

lewismum

•11 years ago

3 Replies

Portal hypertension but LFTs still normal.

My 3 year old's spleen is now 13cm and ultrasound shows progressing p/h. His LFTs remain normal. We thought he was doing so well. Is this comparable with...

My 3 year old's spleen is now 13cm and ultrasound shows progressing p/h. His LFT...

LisaLockley

•11 years ago

18 Replies

Seeking Alpha 1 Sufferers treated at Leeds General

Hi, looking for other parents who attend Leeds General as we take my son whos just turned 1, who was diagnosed with Alpha 1 at 12 weeks. Initially when he was...

Hi, looking for other parents who attend Leeds General as we take my son whos ju...

FinleysMum

•11 years ago

4 Replies

help please regarding new diagnosis

hi my 15 yr old son who is very healthy has just been diagnosed with Alpha 1 . hes Pi z i wasnt given any other allele (M ,S or Z) so i dont know what this...

hi my 15 yr old son who is very healthy has just been diagnosed with Alpha 1 . h...

archiepoo

•11 years ago

8 Replies

Biliary atresia

Hi everyone, my name is Louise Currie, I was born with Biliary Atresia and was given the kasai operation at 6 weeks old. I was the first in scotland to survive...

Hi everyone, my name is Louise Currie, I was born with Biliary Atresia and was g...

Loooooo

•11 years ago

43 Replies

My daughter is 6 weeks post kasai (9weeks old) and her stools have gone pale, anybody with any experienc? Is it a sign of kasai failure?

Lottie19

•11 years ago

36 Replies

Can anyone tell me please what options were available in 1970

My daughter had a liver transplant in 1970,having been born with BA.She died a day later.Can anyone please tell me if Kasai or live donor was an option then....

My daughter had a liver transplant in 1970,having been born with BA.She died a d...

joncee18

•11 years ago

8 Replies

Metallic smelling breath and Jaundice?

Hi my little girl has PFIC. She is slightly jaundice at the moment and he breath smeels really metallic. She has been to the dentist and her teeth are fine and...

Hi my little girl has PFIC. She is slightly jaundice at the moment and he breath...

Gemob

•11 years ago

3 Replies

Got a date for my babies transplant....

.....her dad (my partner) will b donating on the 21st june , im abs terrified :(

Ashpanaly

•11 years ago

18 Replies

Had trasnplant 5 week ago and doing really well, grandmother was live donor

post transplant 5 weeks ago so much healthier loads of energy onwards and upwards after being in hospital 6 months to build him up for the op

post transplant 5 weeks ago so much healthier loads of energy onwards and upward...

reuben

•11 years ago

4 Replies

My sweetie Arianna

My 6 year old daughter, Arianna, has congenital hepatic fibrosis. Luckily her kidneys haven't been affected yet, but her liver is not doing well at all and she...

My 6 year old daughter, Arianna, has congenital hepatic fibrosis. Luckily her ki...

izzysmom

•11 years ago

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Arianna CHF

Our daughter Arianna, who is six, Has CHF. We are in the process of setting up living donor arrangements. We are struggling and do not know what kind of...

Our daughter Arianna, who is six, Has CHF. We are in the process of setting up l...

clark1978

•11 years ago

3 Replies

Hi my little girl has PFIC and is having billary diversion for severe pruritus....... Has anyone's child had this? Experiences please :-)

Gemob

•11 years ago

6 Replies

hi my 14 year old son has PSC n colitius i would like to talk to anyone else who has the same diagnosis plz

kimmassey

•11 years ago

6 Replies

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

All posts for June 2013

Anyone heard of clusters of BA?

Chicken pox with alpha 1

Does elevated conjugated bilirubin in newborn always mean liver disease?

Can anyone give me any ideas what could be wrong with my daughter, she has Gilbert's but the doctor now thinks there is something else,

Having a moment !!!!

Anyone in a similar position??

Hello my son has had problems with his liver i just wondered if anyone has had problems with red/purple bruising just appearing ?

Portal hypertension but LFTs still normal.

Seeking Alpha 1 Sufferers treated at Leeds General

help please regarding new diagnosis

Biliary atresia

My daughter is 6 weeks post kasai (9weeks old) and her stools have gone pale, anybody with any experienc? Is it a sign of kasai failure?

Can anyone tell me please what options were available in 1970

Metallic smelling breath and Jaundice?

Got a date for my babies transplant....

Had trasnplant 5 week ago and doing really well, grandmother was live donor

My sweetie Arianna

Arianna CHF

Hi my little girl has PFIC and is having billary diversion for severe pruritus....... Has anyone's child had this? Experiences please :-)

hi my 14 year old son has PSC n colitius i would like to talk to anyone else who has the same diagnosis plz

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