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British Liver Trust

36,594 members • 17,991 posts

All posts for December 2022

I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.

I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel...

I hate the way I feel about the thought of a new liver transplant. I have made ...

LucyBarrett

•1 year ago

4 Replies

I really don’t want a liver transplant but do not know how to get of the list for good.

I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put...

I really don’t want a liver transplant. Last year in December I was out on the l...

LucyBarrett

•1 year ago

3 Replies

What do you do and what support do you get if you really don’t want a liver transplant

I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put...

I really don’t want a liver transplant. Last year in December I was out on the l...

LucyBarrett

•1 year ago

6 Replies

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My Final Posting..

Dear Friends, It is with great sadness that i say my beloved husband passed away suddenly on Sunday 20th November, throughout all of this he was unable...

Dear Friends, It is with great sadness that i say my beloved husband passed awa...

velvet007

•1 year ago

18 Replies

Hepatobilary

So to cut a long story short- I went to the hospital for something completely unrelated to look at a cyst on my ovary in July - however they found something on...

So to cut a long story short- I went to the hospital for something completely un...

AK227

•1 year ago

1 Reply

Scientists using cells to hopefully grow "mini livers"

Just a super interesting article on a clinical trial that is using cells from donated livers to see if ectopic mini livers can be grown in human lymph nodes...

Just a super interesting article on a clinical trial that is using cells from do...

muffins7

•1 year ago

1 Reply

0% beer

I am giving up alcohol and looked at 0% lager but its not completely alcohol free 0.5 or 0.05 says on the back any thoughts ?

I am giving up alcohol and looked at 0% lager but its not completely alcohol fre...

Tim12

•1 year ago

10 Replies

PIP in the uk

I have just got some forms through the post to claim for PIP but have been told its nearly impossible to get it . I am sure that because Cirrhosis is not...

I have just got some forms through the post to claim for PIP but have been told ...

Tim12

•1 year ago

6 Replies

Arld cirrhosis

I was told 2 months ago that i have cirrhosis and am trying to change my diet cutting down on sugar /salt given up alcohol I did stupidly have a few beers a...

I was told 2 months ago that i have cirrhosis and am trying to change my diet cu...

Tim12

•1 year ago

2 Replies

Travel insurance

Hi allI know it's been asked before, but where is the best place to get a quote for travel insurance if you have PBC? First time I've booked a holiday in...

Hi allI know it's been asked before, but where is the best place to get a quote...

HB70

•1 year ago

11 Replies

Liver cirrhosis

Just had blood test results Billirubin 111,alk phos 146, kidney 65%, potassium 2.6, been advised by GPS to go to a&e, but in the current climate don't really...

Just had blood test results Billirubin 111,alk phos 146, kidney 65%, potassium 2...

Dotandken

•1 year ago

10 Replies

Soz for all the questions

Hubby back in hospital, major hemorrage this time. He has had 5 varices banded and still sedated. I'm just about coping, but question is with decompensated...

Hubby back in hospital, major hemorrage this time. He has had 5 varices banded a...

Fauncey

•1 year ago

5 Replies

Travel insurance with arld

Hi, I have arld and secondary varices. I would like to go to tenerife, can anybody advise on a travel insurance company I could possible get a quote.Many...

Hi, I have arld and secondary varices. I would like to go to tenerife, can anybo...

Stanwilliams

•1 year ago

5 Replies

Cicrosis

I got cicrosis and I dint realise that 4000 die per year and onl 700 get a transplant does sound promising

I got cicrosis and I dint realise that 4000 die per year and onl 700 get a trans...

aaaaaaaaaaaadergt

•1 year ago

9 Replies

Breathing problems

Does anybody know if breathing problems could be alcohol related please?My husband has blue and pink inhalers and is constantly over using them so struggle...

Does anybody know if breathing problems could be alcohol related please?My husba...

Diamondbabe

•1 year ago

4 Replies

Queen Elizabeth meeting

Had my first meeting at QE on Thursday for transplant doctor, all went well asked how long l been off drink told him 10 months but wants me to go to AA...

Had my first meeting at QE on Thursday for transplant doctor, all went well aske...

lonmallin50

•1 year ago

6 Replies

a question about family drinking around people with ARLD

my partner (transplant listed) has ARLD and has not had a drink since diagnosis 22.12.21 (almost a year!) and I am so proud of him. He has never asked me not...

my partner (transplant listed) has ARLD and has not had a drink since diagnosis ...

Rshc

•1 year ago

10 Replies

38 year old brother with varices

Hi there. My brother is 38 and has stage 4 liver chirossis. I have just found out he has esophgeal varices following his Ascites and he’s already vomited...

Hi there. My brother is 38 and has stage 4 liver chirossis. I have just found ou...

Brian686

•1 year ago

12 Replies

liver cirrhosis

I have been to many alcohol meeting lately and for one who does not drink much I have met people who have been drinking a bottle of scotch a day for years and...

I have been to many alcohol meeting lately and for one who does not drink much I...

Tim12

•1 year ago

5 Replies

Compeensated or decompensated

Hi there, I was diagnosed with decompensated cirrhosis 15 months ago after having blood tests and CT scan. My doctor has now told me after a recent telephone...

Hi there, I was diagnosed with decompensated cirrhosis 15 months ago after havin...

Nip1

•1 year ago

7 Replies

Radiotherapy

Good day Thank you for welcoming me to this family. Please I need your help, My husband was discharged yesterday after having his first radiotherapy...

Good day Thank you for welcoming me to this family. Please I need your help, My...

Revil22

•1 year ago

7 Replies

Fibroscan

I had a fibroscan this morning and I was told that it was good. When I had an ordinary scan of my liver I was told there was hardness. The fibroscan didn't...

I had a fibroscan this morning and I was told that it was good. When I had an o...

borzoiharvey

•1 year ago

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Update!!!

My MRI Scan results came back and says "nodular liver" . Is it really something I should be worried about. What are the chances that this nodule could be...

My MRI Scan results came back and says "nodular liver" . Is it really something ...

Yosemit

•1 year ago

2 Replies

Blood test advise

Hello everyone I have posted about my ex a few times since last year and appreciate the support you've given me, especially after his death in June. This is a...

Hello everyone I have posted about my ex a few times since last year and appreci...

LemonMeringue15

•1 year ago

4 Replies

Life insurance

Unfortunately my hubby has no insurance out and has been trying to get one but the few he has phoned has rejected him due to awaiting transplant and has said...

Unfortunately my hubby has no insurance out and has been trying to get one but t...

Fauncey

•1 year ago

6 Replies

Alcohol related brain injury

Hi, My 79 year old mum has been in hospital about 7 weeks and it's been a roller coaster to say the least. She has fibrosis of the liver but her fibro scan...

Hi, My 79 year old mum has been in hospital about 7 weeks and it's been a roller...

Guppy26

•1 year ago

2 Replies

A simple question on Cirrhosis..

When I last had tests 3 years ago my doctor felt my liver and said, ‘That feels lovely and soft’, and when I had a CT scan 7 years ago another doctor there...

When I last had tests 3 years ago my doctor felt my liver and said, ‘That feel...

Kellan38

•1 year ago

20 Replies

Medication help

I'm stage 4 terminal without possibility of a Tx, have a TIPSS, and have an active DNACPR. I was referred to St Marys who said it was an inappropriate...

I'm stage 4 terminal without possibility of a Tx, have a TIPSS, and have an acti...

itsmebran

•1 year ago

5 Replies

stages of cirrhosis

can any one tell me if there are any stages of cirrhosis and how they relate to a fibroscan reading ?

can any one tell me if there are any stages of cirrhosis and how they relate to ...

Tim12

•1 year ago

1 Reply

pain under ribs

I have been told I have cirhosis not sure what stage kpa 28 although getting a second opinion what can you take its a dull throbbing and has been there for 2...

I have been told I have cirhosis not sure what stage kpa 28 although getting a s...

Tim12

•1 year ago

1 Reply

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Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for December 2022

I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.

I really don’t want a liver transplant but do not know how to get of the list for good.

What do you do and what support do you get if you really don’t want a liver transplant

My Final Posting..

Hepatobilary

Scientists using cells to hopefully grow "mini livers"

0% beer

PIP in the uk

Arld cirrhosis

Travel insurance

Liver cirrhosis

Soz for all the questions

Travel insurance with arld

Cicrosis

Breathing problems

Queen Elizabeth meeting

a question about family drinking around people with ARLD

38 year old brother with varices

liver cirrhosis

Compeensated or decompensated

Radiotherapy

Fibroscan

Update!!!

Blood test advise

Life insurance

Alcohol related brain injury

A simple question on Cirrhosis..

Medication help

stages of cirrhosis

pain under ribs

Search posts

Pinned Posts

Latest poll

Where are you joining us from?

Topics

Archive