Posts - British Liver Trust | HealthUnlocked

British Liver Trust

37,067 members • 18,181 posts

All posts for September 2018

CMV infection in liver transplant patients

Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir...

Hello all, I hope you are doing well. I am 5.5 months post transplant and have D...

Pizamkazdw

•6 years ago

8 Replies

Pembrolizumab

Has anyone heard of Pembrolizumab and if so has it saved any liver cancer patients' lives.

Has anyone heard of Pembrolizumab and if so has it saved any liver cancer patien...

Melita17

•6 years ago

13 Replies

Cirrhosis or fatty liver help please

2 years ago I was diagnosed with cirrhosis in hospital,I was in for 2 weeks for alcohol,all I can remember is having a camera down my throat I don’t know if...

2 years ago I was diagnosed with cirrhosis in hospital,I was in for 2 weeks for ...

puresilver

•6 years ago

18 Replies

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Scotland given the go-ahead for minimum unit pricing

This is an old post, and I have just added some further information that may shock and surprise some people. I really think that there should be a national...

This is an old post, and I have just added some further information that may sho...

Hidden

•6 years ago

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Are we allowed these?

Hey hope everyone is ok, I was just wondering if ita ok to eat and drink acidic foods and drinks such as lemon juice and fruit juices? I have information...

Hey hope everyone is ok, I was just wondering if ita ok to eat and drink acidic ...

Herts87

•6 years ago

6 Replies

Are you hypothyroid as well as having fatty liver disease. Does one affect the other?

I am both but wasn’t referred for the NALFD until recently after a year on thyroxine although my bloods were showing high ALT when I was first diagnosed as...

I am both but wasn’t referred for the NALFD until recently after a year on thyro...

SianJane01

•6 years ago

7 Replies

How long does it take to reduce a liver fibro scan score?

Mine seems to have improved over 3 months just through swimming three times per week rather than once per week and without dieting just by exercise. Am being...

Mine seems to have improved over 3 months just through swimming three times per ...

SianJane01

•6 years ago

31 Replies

Absolutely terrified

I have had confirmation of a fibroscan appointment this Thursday and I’m terrified. I know if won’t be painful but I am soooooo worried about the potential...

I have had confirmation of a fibroscan appointment this Thursday and I’m terrifi...

farranccc

•6 years ago

9 Replies

Giving up now

Will not be reading or posting to this site anymore. Every post I see or respond to has lots of replies. My last two asking for help or advice didn't get a...

Will not be reading or posting to this site anymore. Every post I see or respon...

Kimlescam

•6 years ago

18 Replies

PBC & nausea

Hi all Does anyone with PBC suffer with nausea and some pain, possibly gallbladder/pancreas. I also have oesophageal reflux which I take drugs for. I have been...

Hi all Does anyone with PBC suffer with nausea and some pain, possibly gallbladd...

Bevmc

•6 years ago

3 Replies

Where I'm at, Dr evil.

Hi all, hope you're well? Dr evil was a delight 😊 spent well over an hour talking with me and fiancee. He has seen around 60 cases of porphyria cutanea tarda...

Hi all, hope you're well? Dr evil was a delight 😊 spent well over an hour talki...

Porphyriamaniac

•6 years ago

4 Replies

Alcoholic liver cirrhosis

Hi all, I am a care taker of my brother who was diagnosed with liver cirrhosis stage 3 in Feb 2017 with all symptoms of hepatic encephalopathy, ascites, nose...

Hi all, I am a care taker of my brother who was diagnosed with liver cirrhosis s...

1727

•6 years ago

27 Replies

Cancelled long haul flight

Before being diagnosed with cirrhosis we'd booked to go to Bali in April next year. I have been trying to get the insurance sorted out but without any success....

Before being diagnosed with cirrhosis we'd booked to go to Bali in April next ye...

GrandmaDylan

•6 years ago

7 Replies

Happy days.

25/4/17.I was born again, a small rejection 2 and 4 weeks after the op, I have recovered well, feeling great now nearly 1and a half year's later, going to take...

25/4/17.I was born again, a small rejection 2 and 4 weeks after the op, I have r...

gilix

•6 years ago

4 Replies

Gallstones

Evening All, 2yrs ago my partner was in hospital suffering from gallstones. He hadn’t been diagnosed prior but was rushed in with fever and jaundice. Over the...

Evening All, 2yrs ago my partner was in hospital suffering from gallstones. He h...

Holstein

•6 years ago

2 Replies

High ALP levels post transplant - help any advice?

My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests....

My husband had his liver transplant in November 2017 and has quite a few ups and...

Kimlescam

•6 years ago

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Liver Tests

Hi, I have had NAFLD for over 10 years. This last 18 months I felt things had become worse and pestered my GP to refer me to a Hepatologist. The Hepatologist...

Hi, I have had NAFLD for over 10 years. This last 18 months I felt things had b...

angedogs

•6 years ago

2 Replies

Request from the British Liver Trust

Dr Richard Parker at the Leeds Liver Unit is looking for patients or patient representatives to discuss the design of a research study into alcohol related...

Dr Richard Parker at the Leeds Liver Unit is looking for patients or patient rep...

Hidden

•6 years ago

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My hernia is now in the hands of the gastro gods in Cairns.

I’m worried! What if they say yes? Will I die? Will I be in icu for a long time? Will I be in pain? What if they say no? Will I be glad? It’s a strange...

I’m worried! What if they say yes? Will I die? Will I be in icu for a long time?...

Brett11

•6 years ago

19 Replies

Cirrhosis and hip surgery

Hi All - I have a question 're hip surgery. I'm due to have a hip replacement some time soon. The hospital has been messing me about, telling me first of all...

Hi All - I have a question 're hip surgery. I'm due to have a hip replacement so...

Beauport

•6 years ago

4 Replies

Fatigue and Nausea.

It’s been 11 weeks since my husband had his first hospital admission. He had varices and ascites. The varices were banded three times and he has had a follow...

It’s been 11 weeks since my husband had his first hospital admission. He had var...

Suzie111

•6 years ago

2 Replies

Update

Thanks everyone for your kind words it's nearly 2 weeks and still going good, Back to QE tomorrow for check up hopefully all is going ok Pauline xx

Thanks everyone for your kind words it's nearly 2 weeks and still going good, Ba...

Paulinekp

•6 years ago

4 Replies

Total bilirubin result

Hello all i have a lft every 2 months now. in all seriousness is a reading of 27 bad? my result papers say 0.00-21.00

Hello all i have a lft every 2 months now. in all seriousness is a reading of 27...

Steven57uk

•6 years ago

1 Reply

Hospital Nursing Staff

I've been on this site for almost two years now, and some people from time to time have criticised about the poor healthcare they've received, and how nursing...

I've been on this site for almost two years now, and some people from time to ti...

Hidden

•6 years ago

7 Replies

Non alcoholic churros is/varicies banding

Hi there as a newbie here and trying to find my way around, I have liver churros is and have just had my second set of varicies banding, I was just wondering...

Hi there as a newbie here and trying to find my way around, I have liver churros...

Nuttieliscious

•6 years ago

11 Replies

This is going sound pathetic

I'm overloaded with PTSD I'm getting state where I don't no what I'm doing off as I used the wrong mouth stuff listeren.and instead I swallowed it I don't even...

I'm overloaded with PTSD I'm getting state where I don't no what I'm doing off a...

Faithfull

•6 years ago

11 Replies

Diagnosis of cause of Cirrhoses

Hi 3 years ago after a bowel cancer op, I was diagnosed with "contained liver cirrhosis" I have never drunk alcohol in quantity, except for occasional beer or...

Hi 3 years ago after a bowel cancer op, I was diagnosed with "contained liver ci...

JimmyJackson

•6 years ago

13 Replies

Refractory ascites.

Just found out my husband has this, I think that is very serious?

Hidden

•6 years ago

2 Replies

Ascites .

My husband has decompensated cirrhosis with ascites which has caused major fluid retention. He has had it drained on a regular basis and tried diuretics which...

My husband has decompensated cirrhosis with ascites which has caused major fluid...

Hidden

•6 years ago

11 Replies

In with a bump out with a lump

Hi everyone, hope you are all well. Most of you know my history of cirhossis etc. Die been having trouble with my legs swelling up and had district nurses...

Hi everyone, hope you are all well. Most of you know my history of cirhossis et...

jules45

•6 years ago

6 Replies

Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for September 2018

CMV infection in liver transplant patients

Pembrolizumab

Cirrhosis or fatty liver help please

Scotland given the go-ahead for minimum unit pricing

Are we allowed these?

Are you hypothyroid as well as having fatty liver disease. Does one affect the other?

How long does it take to reduce a liver fibro scan score?

Absolutely terrified

Giving up now

PBC & nausea

Where I'm at, Dr evil.

Alcoholic liver cirrhosis

Cancelled long haul flight

Happy days.

Gallstones

High ALP levels post transplant - help any advice?

Liver Tests

Request from the British Liver Trust

My hernia is now in the hands of the gastro gods in Cairns.

Cirrhosis and hip surgery

Fatigue and Nausea.

Update

Total bilirubin result

Hospital Nursing Staff

Non alcoholic churros is/varicies banding

This is going sound pathetic

Diagnosis of cause of Cirrhoses

Refractory ascites.

Ascites .

In with a bump out with a lump

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