Pots plus?

Im 42 yrs old female single mom. About 2 mo ago i felt a heavy couldnt move both legs i was in bed reading. Not amxiety however 4 er trips will argue but i have no blood going back up from feet to heart head lungs im now in bed or on couch 24/7 pass out is a gift per the symptoms before r scary to the point i said good bye to my 11yr old who has nobody else. Same as me. Yes short of breath, blue black purple feet if not elevated at all times i cant sit up! I get sob heart palps, clammy cold hands crazy high or crazy low bp w a sinus tach of 130-145 my pressure pulse is 25 20? Lost feeling face head lost hair all on top?! I feel like im dying literally nobody believes it. Any help? Bad veins bad heart recovery from anorexia life ending amnt of stress

[Agora1]

Notok42, I believe you and in what you are going through. I am so very sorry.

It must be very frightening for you as well as your 11y.o. daughter. I see my

daughter going through some of these same symptoms and can relate in that

way. She has been getting progressively worse during these last 10 years.

Are you under a doctor's care? Are you able to get home visits from social

workers who can help you with the emotional issues? I wish there were some

way we could help you. HU does have an eating disorder support site which

may help you more. Of course, we are always here to help you not feel so lonely

and afraid. My best to you Notok during this critical time for you and your daughter xx

[Hidden in reply to Agora1]

thank u im gonna b honest im homeless n its a boy my son has seen n heard me be abused n i had to go. Things got worse i honesty feel the death coming ik my body well n its scary i have nonody but a friend of my bf who doesnt believe me and we have to go n move somehow w out anyone anything n my vitals r so bad now today i get the tiny amnt of stress n im having heart attack symptoms plus my body turns purple n ill black out. Im scared to death

[Agora1 in reply to Hidden]

I am so so sorry. I don't know what to say. Are you in the states?

You sound so ill. I can only hope that you get some support from this

friend of your bf. Maybe to take you to the emergency room if you feel

you are having a heart attack. Bless you dear friend xx

[Indigojoe]

We are not allowed to diagnose, as you can imagine. However did anyone mention dysautonomia?

IT's not scary, and it is common, and it is not know why this happens.

IT can BE TREATED with a medication in case that is what it is.

If you are in the US and you say " homeless" does this mean you are on the street or in a car, or a shelter, or a friends couch?

You have access to a computer or a phone, so you have a lifeline of sorts.

A lot of us on this forum are good problem solvers.

IF you care to share a bit more about your situation, and any of us can help you sort this out please share.

For now, accept how you feel, know that THIS TOO SHALL PASS, and reach out for help when and where you can.

[Sapgirl]

Plz Google POTS syndrome. I have this and can relate. A tilt test from the hospital will confirm x

[Hidden]

Ty ive actually just spent every min i could reading researching pots i thought til last night i knew all the variations i just found a few more to add to my list the only problem is i have almost every single symptom on every list so far but not all n all have the basics to start of course but like the pots w JHS i cant hyperextend but i have other criteria that make it make sense too and pots w that elers something i cant recall now but that 1 the collagen is a prob n ive got every skin thing on the list i got shiny see thru wrinkled soles of my ft but ive got it up legs n ive Now got calves that just hang there, the hairs not growing on 1 the right leg n i have holes in my skin from a few things like i plucked a hair on outter lower left leg where ive got a huge tat of squirt the sea turtle from nemo for my son im getting these pitch black hair where it comes in so thick so diff then my norm hair same on the top of my head i noticed same stuff its at least 5 xs the norm size but i het a black a white so white its almost hard to find again then another black all in where i should have 1 norm hair growing? Crazy ik n theres so many strange things my bodys changed its hard to put in order vrs most important n ik in order is needed so i apologize for skipping things. So i have this sensation when i move my leg laying down or during a certain time im feeling shitty from my ft having to be down(now its no an option) if im in truck a good day i may go to store or just out n about not anything bar ir fun fun but get outta the house go 4 a ride n back so the truck will stop but i feel like im still moving not dizzy just a sensation of motion on the inside of my body it lasts sometimes a few min to hours. If i lay down i feel the blood in me go back n forth head to toe a few times til it settles down thats how i described it to a nurse she said its my bp n got me into a dr that couldnt even take me on i sat there for 3hrs n i have her an education on pots! I was laying across chairs in waiting rm! I cant have this i get to higher then a kite feeling too much now just sitting up thats lack of blood to head id think n w the hair just fell out n has a phase now in a month the whole crown is scalp w other areas mostly tho the right side hair loss is so profound im a stranger in mirror really tho yesterday bad no i felt this is it bad w the 50 symptoms ive mentioned ive got 50 more i vibrate if i itch my head n stop it feels like im stuttering inside my skull n ive had this r side foot n leg sensation that its floating i cant pick up or hold up to put sock on it cuts off my i guess blood to heart n head instant sob heart races palps chest n head pressure scary black feet up calves! If i sit n i just showered k it about took me out but 3 days now ive not been able to people think im just lazy or faking which is so dumb but also caused many panic attacks that cause all this to start so i was sitting on closes toilet drying my dark purple up to my groin legs put towel on my lap my thighs n took it off i freaking can feel the pressure of the towel on my thighs as if it was a person sitting on me it so does same thing as bending my knees n sitting on my feet or something like on my knees n lean over tub i now cant do i do a header or it starts my list of fun things i feel and with this i had just rapidly put on 20 pounds of pitting edema my stomach is so huge its unfomfy hurts n feels like my heart stops if i lift a foot or leg to high it sets my symptoms off? My purse over shoulder ive taken it off n noticed instant relief of the symptoms but my face n gead n ft r blue or purple at times if i lift my arms my symptoms start it feels like my heart is too big now i cant lean forward or bend over n yes ive done alot of research my dr didnt believe me n ive been to 4 ers sent on w anxiety they said?’umm huh? This reply is to all who have been kind enough to hep out this mama ik my time is limited i can feel it so pls feel free say what u think ask what u want tell whoever u want hell maybe ur dr will know? Thanks everyone

[Hidden]

I know how you feel

I am going through about 75% of your symptoms . Mine I know it’s my kidney with malabsorption issues with blood in urine for 9months no help from

Doctors. Sending hugs to you

[Hidden in reply to Hidden]

Thank you this is a very difficult time it seems im perfect for 3/4 different autoimmune problems however the dr didnt touch my symptoms of either black out or i get to the floor bed couch ect n kat down before i pass out ill get warning frim my body right now im sitting up having a hell of a time trying to just breath and not feel so many things i shouldnt n scared in alone im always alone like my boyfriend rents a place thats in the middle of nowhere i say i cant move here for a mo but here i am passing out cuz i made a cup of coffee n didnt get to the couch fast enough? My face feels it head its like im high off my co2 exchange in our lungs isnt working. I feel the pain in my dying twitching muscles ive been upright alot the last 3 days so people think im ok n ik im not but nobody thinks ik wtf im talking about this head lost its hair they see me itch it so thats how it came out? No circulation is hiw it happens but im just me i guess but hopefully my 11 tubes of blood they took last thurs will tell them what i already have cuz my heart literally hurts today. Ive had kidney issues ill mention this to my dr ty i hope theres some relief for u? I hope ur not like me n am in bed at 42 w a son this is our time to rise i took him left his fathers abuse i dont deserve whatever this is. Mark my words. Um im dying how will my son know how loved he is? He will be lost we r lost now but we r together we r safe. Its our time finally thats the fight in me. I need my baby ok before i leave this world

[Hidden]

I am 42 too yeah a lot of times I would stay in bed cause my feet would lose sensation. I also get dizzy spells time to time and brain fog. Currently my issues is my circulation my feet get spidery and press down it’s white and I am pale. I gained some weight but still under 18bmi

may I ask a few questions?

May I ask you do you get cold shivers through your body out of nowhere?

How is your sleep issues?

And you said recovering anorexia when did that start and how do know you recovered?

What is your average oxygen level? And heart rate. How are your labs electrolytes ?

Also what color is your tongue and nails?

Also I to thought of the worst but we can’t do that no matter how Terrible you feel. Stay strong. Tell your body I can make it through today. Sending hugs 🤗