5 different doctors dont know what's wrong. They assume panic attacks

[fractulz]

26 years oldn no major health problems. One month ago today, I was over the flu. I went to work at 7am and right before I opened the store I thought I was going to pass out. Violently lightheaded, scared bc this has never happened, shakey, I got the neighboring store to call an ambulance. At hospital that checked my heart, did flu test, and just said I had the flu. I was lightheaded the entire next week 24/7 until at work again I felt like I was going to drop out onto the floor. A different doctor said I had fluid in my ears and gave me something to clear it up bc she said it caused dizziness. That cleared up, I felt like I was going to pass out again a few days later. Fast forward to now, 1 month anniversary of all this. All blood tests are fine. Thyroid is fine. Inner ear is fine. I am lightheaded 24/7. Not spinning or dizzy, just a lightheaded feeling like I may start to pass out at any moment. The only thing I've been told is my vitamin d is low and I just started d2 prescription, and that I may be having panic attakcs but neither of those make sense on why the first time in my life I am all of a sudden lightheaded literally all the time. I'm just so confused. My head is so weird feeling to the point that I'm scared to fall asleep sometimes because I dont know if I'm passing out or dozing off and sometimes I think if I fall asleep I may just die at this point. I guess I'm just seeing if anyone else has had anything weird like this

[Brightfuture22]

Hi Fractulz,

I know this reply is 3 months later, so I hope you are feeling better! I wanted to say that I too am experiencing what you are talking about. Mine started a few months ago, but it was only sporadic then. As of about 5-6 weeks ago, it is every day. Most days I just feel off in my head. Like slight light headed but not full on, if that makes sense. It’s never a wobbly dizzy like vertigo, it’s legitimate lightheadedness. On bad days I get these intense spells that make me feel like I a going to pass out. Sometimes it feels like a wave of lightheadedness just hits me outta no where, other times I can tell it’s building up. Regardless it flares up my panic, and that makes it worse. When it’s a bad lightheaded day I have to focus on breathing and close my eyes while in the throws of it.

I’ve had blood work done, heart checked out, been to the hospital lots of times and they send me home saying it’s nothing emergent. It’s likely anxiety. I hate when docs blame anxiety for everything!

I have an MRI coming up, that’s basically the last stop in trying to figure out what’s wrong medically.

I’ve also been told that it’s my sinuses and allergies making me dizzy/lightheaded. Honestly, I don’t know. But what I do know is it is horrifically scaring to feel like you’re on the verge of passing out. It causes me to believe that I am dying....all the time.

Have you figured out anything or tried anything that’s helped?

Cheers!

Ashley

[fractulz in reply to Brightfuture22]

Hi! Sorry to hear you're going through the same thing lol it does suck. Unfortunately nothing has been found still. I've bee. Going to an ENT but they said everything was normal. I actually go back next Monday for a follow up. If all else fails I'm going to do MRI as part resort too. Its been a very difficult few months living like this every single day ):

[Brightfuture22 in reply to fractulz]

Yeah, I know how you feel. Makes me not want to leave the house. I asked to see a neurologist, and in order for that to happen I have to do an MRI first, so that’s why I’m getting it done. I also wanna be sent to an ENT. I live in an area where the pollen and allergens are SUPER high this year. I also don’t like to take medication so I haven’t taken anything for it.

I am sad to hear you are still going through it, the lightheadedness is the worst. Have you ever passed out?

Cheers!

[fractulz in reply to Brightfuture22]

No luckily I havent actually ever passed out. Just have a constant feeling like I'm going to. When I went to the neurologist he said i seem fine from all the little tests he did, but he said there could possible be something that an MRI could show that my ct scan didnt. I dont have good insurance though and he said it would probably cost a bit. All this has taken a nice chunk from my wallet lol. And i am the same, when it first started if I went into a store I feel like maybe the lights messed with me and now I'm always scared to go anywhere because I dont know how bad I will feel each day.

[Brightfuture22 in reply to fractulz]

I sometimes feel like the lights or fast moving objects mess up my eyes and thats what causes the lightheadedness, but it's so random when I have a major spell of lightheadedness that I cannot pinpoint one thing as the cause. I pray that my MRI is clear, but I worry if it is I will never find a cause to this incessant lightheadedness. It serious is horrid always feeling like your head is gonna float off, or feeling like you are going to faint. I truly pray you find some reassurance and help soon. When you do, let me know what worked for you!

Cheers!

[Agora1 in reply to Brightfuture22]

Hi Ashley....for years, I went through that horrible head sensation to the point

that it made me Agoraphobic for 5 years. I became afraid of everything especially

going outside although my lightheadedness continued everyday in my home as well.

Long story short, all the tests and the specialists stated that it was Anxiety.

There are 3 things I do now to avoid feeling like that. Hydration, Meditation 3x day

and Deep Breathing. The minute I may feel that fuzzy feeling when I get over anxious,

I hydrate (which can usually take it away) Meditate and DeepBreathe. xx

[Brightfuture22 in reply to Agora1]

Hi Agora, you are so sweet. I always appreciate your replies! You make me feel like there is light at the end of the tunnel! <3 I am going to start the meditation 3x a day. I need something to relax this constantly tense body of mine! Thank you for your response!!! <3

[Agora1 in reply to Brightfuture22]

Love your username "Brightfuture"

Deep down that's what you must feel.

I just finished my morning meditation which included

Self Hypnosis. Even if you are tense while listening, the

subconscious mind is taking it all in and storing it.

Breathe and exhale slowly. Picture the fullness in your head

coming down and leaving your body. After much practice

you will be able to feel the release more quickly. Your forehead,

your eyebrows, your eyes, your ears, your jaws, your cheeks will

become soooo relaxed. Bring down your shoulders and just

breathe. Doing this is a good reminder that we are in control

of our bodies. There is a bright future out there just waiting

for you to embrace it. xx

[Brightfuture22 in reply to Agora1]

thank you for being so positive and willing to help us all. You are a true gem!!! I hope to help and inspire people as you do. <3

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Omg this is me it is so so horrible... I did a mri and blood work everything fine .. they say anxoety and low iron