A couple months ago I had the most horrible pain. All I did was bend over in my seat and out of nowhere I had the sharpest pain shoot from right behind my belly button all the way down to what felt like either my bladder or uterus. It was like a string being pulled. I could not walk or stand straight. It hurt to move at all. I was crying the pain was so intense. I went to the emergency clinic and they gave me ibuprofen and anti biotics thinking it was a uti. I had to be in bed he next few days because it was the most intense pain I've ever had. It was so hard to find a non painfull way to lay. After a while the pain faded away, but every now and then when I reach up to grab something or stretch the wrong way, I feel it again a little bit and it scares me so much that I might get that again. And now sometimes I will stand up and feel a strong cramp sort of pain in my right lower abdomen area enough to where I will have to sit back down for a moment. The pain isn't that bad it just worries me because it's in that area and I fear it could be related and I may have some problem I'm unaware of. Regarding the horrible pain that I had to go to the emergency clinic for, I have had a very slight version of that just a few times in my life, but it's more of a shocking feeling than anything and normally would go away very quick. It would usually be if I were peeing, and maybe tried to pee a little more , I can't explain it. But I'm worried
So u know , I'm young , still living with my mom, never been sexually active, so I wouldn't want to go to a gynecologist .
What does this sound like to you??????
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Serenaisawesome
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I am not sure but let me tell you what I experienced. About 3 years ago after having no problems ever with uriney issues I felt like I had to go to the toilet more and more. Then one night I couldnt sleep as I had the urge to go every 2 minutes, this scared me alot. I couldnt sleep there was no infection and this went on for a few days, was given antibiotics but no difference. I worked myself up so much about it that then I started to experience excruciating pain, I couldnt sleep felt like under my pubic pain was on fire. I took some diazapam and the pain went away but the panic didnt and I could stop thinking about the need to go to the toliet all the time. Eventually after a few months things settle down but I still had the feeling of wanting to go to the toilet more often and had developed a type of ocd about it. Now 3 years on I am again experiencing this horrible pain and do you know what is causing all this, stress, anxiety when tightens the muscles in the pelvis it squeezes on the nerves which gives horrendous pain. The only solution is to relax towards it and drop the pelvis as much as possible. I know this is hard as I have to do it now and the pain is easing. Yours to could be tight pelvic floor muslces. You can go to a physio who specialises in this and they will help release them. I am guessing you are a very anxious person which can cause this as anxiety can cause no end of physical pain it is unbelievable!X x x
It sounds like a navel displacement to me. I had the same experience yesterday and I did some research about it. It is kind of a medical mystery but can be cured. You can easily google it and there will be some remedies from yoga practices as well.
One of the things I read was to lie down with your chin up and feet touching, if one of toe thumbs is shorter than the other then you have to yank it. It says it will help re-align the navel. hope it helps.
I have had the same exact pain since I was 7 years old. Ive been to urology and gynecology and no one has found anything wrong. Pain relievers don't work and it only lasts the day and by the next day it's gone. I'm now 18 and I still get the pain at least twice a year.
it is caused by anxiety, anger and nervousness . If you scream in anger or frustration or have been exposed to situations that cause that sort of things you would probably wind up suffering from this , especially if it was extreme.. Try avoiding negativity and always remember to calm yourself .. believe me I know what I'm talking about I'm 32 years old and have been suffering from this since I was 8 ..
This is very interesting Omar_M . I myself have just recently been experiencing this. (It hurts more when going for no. 2's) but I have been very frustrated and angry over various things lately. I've also been exposed to a lot of negativity , I feel my body is a complete mess with all the stress I've had to cope with recently. Added to that, I feel my bowels have completely stopped functioning (due to stress I reckon) so of course the pain from my belly button to my uterus feels more intense ! So what you have said really makes sense. Thank you x
You can't rule out conditions and diagnose someone based on one post. Even you could be misdiagnosed with your pelvic pain. I have endometriosis and stress and angry makes the pain worse but I have reason for the pain. I started having my pelvic pain and pulling sensation when I was really young. It got worse for years. I was even told it could be just stress and anxiety for a while. In my early 30's, I had my first exploratory surgery finding endometriosis and adhesions growing on my SI joint, tendons, muscles, attached across my pelvic cavity, on my bowel, on my left ovary, on my bladder, etc. Someone can also have a hernia, pelvic congestion, pelvic floor dysfunction, etc.
I have also had it since I was a child! Nobody has ever been able to tell me what it is. Did you ever find out?
Do you have any increase in painful flares before your periods? Has anyone considered endometriosis? I would only see a Nook specialist (a specific kind of endometriosis specialized gynecologist) if possible. I found one through Nancy's Nook on facebook. Most gynecologists who say they specialize in endometriosis don't know much about endometriosis and the gold standard of treatments. Also, they can check out your pelvic floor muscles to see if you would benefit from pelvic floor physical therapy.
*** PLEASE READ *** I KNOW WHAT THIS IS *** AND I KNOW HOW TO FIX IT!!! ***
NOTE: I am not a doctor or any kind of medical professional – so please ALWAYS check with your doctor as you might be suffering from something different. But…
Ladies and Gents – I HAVE THE ANSWER!
I am writing this post because I promised myself that if I ever found out what was wrong with me, I would come back to all of these forums where I spent hours scouring for answers, and share the path to freedom with all of you.
First, let me just say that what you’ve experiencing is not “nothing”. It’s not “in your head”. It’s REAL. I (literally) feel your pain. And, like you, I know what it’s like to have doctors look at me like I’m crazy.
Before I go into my story, I’ll share with you what you really want to know – what the hell is going on in your body?!
Are you ready for it…?
Okay, here it is: URACHAL REMNANT DISEASE.
Ever heard of it? Neither had I. But it’s a real thing! And the reason most of us are undiagnosed or misdiagnosed with it is because it’s incredibly rare and difficult to figure out, as sometimes the only symptom is the horrible pain we are all way too familiar with.
QUICK LESSON:
The urachus (or urachal remnant) is a fibrous cord that runs from the top of the bladder and connects with the bellybutton. Its how urine was released from our bodies when we were in the womb. Now, for most people the open channel (urachus) closes before birth and becomes a vestigial cord with no real purpose or function – it’s just there. Sometimes it even obliterates into nothing. But for those of us who have this remnant, there’s all sorts of things that can go wrong with it – most of which become apparent sooner rather than later. For example, sometimes the channel doesn’t close properly, and babies end up with discharge out of their bellybuttons. Other times, like with all of us, there’s no physical symptoms until we feel THAT pain (the sharp pulling pain when trying to pee, the one that drops us when we try to stand up straight, the one that scares the shit out of us), at which point we usually see a doctor who has no idea what we’re on about.
Now, lucky for me, I have a great doctor. She told me about this urachal remnant and said that if I see a specialist, they should be able to go in and snip it out. Easy peasy. I had ultrasounds, CT scans, a cystoscopy, a colonoscopy, an endoscopy – you name it, I’ve had it. But because there was no physical sign of anything being “wrong” (like a cyst or an opening of the channel) the specialists I saw basically threw their hands up in the air and said “I don’t know what’s wrong with you. There doesn’t appear to be anything abnormal.”
I was crushed – and forced to abandon my quest to fix the problem because I thought there was no hope. I turned to naturopathy and herbal remedies – none of which worked.
And for about 3 years I gave up the chase for a solution. I was deflated and feeling hopeless because nobody wanted to help me. But every time that pain returned – which was fairly often – I just kept saying to myself “There has to be a way to fix this. I shouldn’t have to live like this. I can’t live like this.”
Then one day I came across this: [“…Because urachal remnant diseases are uncommon and manifest with nonspecific absominal or urinary signs, and symptoms, definitive presurgical diagnosis is not easily made…”] SOURCE: pubs.rsna.org/doi/full/10.1...
I went back to my fantastic doctor – this time armed with more knowledge and more information – and pleaded with her to actually help me find a specialist who was willing and able to help me. Even better – find one who had experience with this type of thing before. She was only too happy to help.
A few phone calls/emails later and we’d landed a Urologist who was keen to see me. This man was kind, compassionate and understanding of my frustration. After hearing me out, he decided to send me for more scans, which revealed a small umbilical hernia. I was then referred to a hernia/colorectal specialist who – after a simple phone call and description of my symptoms – decided that the best course of action was to remove the urachal remnant via laparoscopic surgery (keyhole surgery) and while he was in there, he wanted to take a look around and make sure there was nothing else lurking beneath the surface that we had to deal with.
I was so relieved and so scared at the same time, but I knew I had to do this. I had to have the surgery and get my life back. It all happened very quickly. I was on the operating table a couple of months later and as they say – the rest is history. The surgery went great. He removed the urachal remnant in its entirety and also repaired the umbilical hernia – which accounted for some of my other pain/symptoms.
That was almost four months ago, and although it’s still early days, I’m so pleased to say that I am now all healed up and completely pain-free. No twinges, no sharp stabs – nothing! Just a healthy, happy body. Based on my research, patients who have this surgery experience no further symptoms – EVER – and go on to live completely normal lives.
So if you’re dealing with this absolutely horrible situation and you’re feeling alone, or like nobody wants to help you – my advice is simple: DON’T GIVE UP! Take control, like I did, and don’t take “I don’t know” or “There’s nothing wrong with you” for an answer. Find yourself a good doctor who will listen to you. Arm yourself with knowledge. And tell any specialist who looks at you like you’re crazy, to figure it out if they don’t agree with you, because that’s their job.
I am based in Australia. The specialist who performed the surgery was based at Greenslopes Private Hospital in Brisbane – but any specialist of the same kind could perform this surgery.
I hope that by finding this post you can take some comfort in knowing there IS a light at the end of the tunnel. I am living proof.
Feel free to share this with anyone you know who is also struggling with this weird and awful condition!
So helpful! Thank you for sharing, I have had this since I was a kid too, no one has ever understood what I'm describing when trying to explain the way it feels. So glad to know it's not just in my head and that I'm not alone!
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