broken bones cerebellar ataxia 😩

[Sphinx21]

Hi 😊firstly I hope you are well as can be expected 🥰 I was wondering if anyone could help or relate / shine a light on any reason why my recovery time is taking so long ….

Back in early may this year I was feeding my cats ( I have cerebellar ataxia by the way ) I turned to quickly lost by balance ended up on the floor the result being a broken tibia and fibula open reduction surgery and a halo fitted a week later I had long metal rods plates and screws put in my leg and ankle I am still unable to walk and my latest X-ray showed a non union of the ankle bones they have told me to walk on it in a boot but the pain is bad and my leg swells each time I do so has anyone else with c/a had similar prolonged healing difficulties? I feel quite alone with local hospitals as they don’t really know about ataxia I feel my family have been wonderful but I want to get back on my feet again

Kindest wishes Claire

[b1b1b1]

Think about getting a second opinion from a larger, teaching hospital. I do have a relative who had a broken ankle, with plates and pins, and it took a very long time to heal. I think some sort of electrical stimulation was eventually used, which worked. I also have another friend who broke a leg and it basically took 2 years to heal. I don't mean to discourage you, but I would really be inclined to get a second opinion from a major hospital, even if it means some traveling. This is unfortunately easier done in the US. Not sure how you would handle it in the UK.

[Sphinx21 in reply to b1b1b1]

Thankyou for your reply and will take your good advise and get a second opinion I think I really appreciate you taking the time to reply to me take care x

[b1b1b1 in reply to Sphinx21]

I was happy to reply, and hope you get some mental and physical relief. I think some broken bones do take a long time to heal, but I hope you get more help. xx

[Sphinx21]

you are very kind thankyou so much xxx

[designguy]

You might try working with a physical therapist to help you make more progress and lessen the pain. I'm also amazed at what kind of information/resources I find on youtube, you might do some research there about your situation.

[Sphinx21 in reply to designguy]

Thankyou for taking the time to reply, yes I’m still waiting for a physiotherapist ! But I will check out YouTube thankyou that’s a great idea 😊

[designguy in reply to Sphinx21]

You're welcome, I hope you find what helps you so you can get some relief. I'm sure you are frustrated but try to be kind and compassionate with yourself, best to you.

[Sphinx21 in reply to designguy]

you are very kind thankyou and all the very best to you take care 😊