My whole life I have battled this demon of depression. And so many doctors, and so many different meds, which all would eventually just STOP. After I broke my neck 10 years ago, my life changed so dramatically that I was left with severe Chronic pain and post traumatic migraine syndrome (yes, apparently it's a thing and I have the written diagnosis. So I have been a pain management patient for 10 years. It's been a very long, dark journey trying to manage pain and get well. And I was doing very well, under my doctors wonderful care, and for 8 years I was able to function pretty well, because of the dose of medication, and physical therapy, ect.. Then the "O pioid Epidemic" became a political thing, and chronic pain suffers who NEVER abused these meds, or doctor shopped, WE were told we were no longer allowed the dose needed to control our pain. The government Metaphorically came into each doctors appointment with me and said "this is the amount that will control your pain and you are not allowed anymore". So in 2018, my dose had to be slowly taken down to what "the government" says pain management doctors can prescribe. Which has left me lost and in a pit of HELL. No longer is my pain EVER managed, because the dose I am allowed can't even keep my pain to a 6-7 for more than 2 hours. So I live with pain at a 8 to 10 every single day. I feel that my life has once again been stolen by this wretched pain, the constant battle to try and live when all I want to do is crawl into a ball and die. Every day I dread waking up. And most nights I only sleep 2 to 4 hours, because of pain and anxiety attack.
My depression has now also become unbearable. I'm on a huge dose of antidepressants, but they hardly even faze it, one of the things opioids do to the brain is the "pleasure and happiness"part of the brain becomes dependant on that opioid, and since my meds have almost been so reduced, the part of my brain that is needed to feel OKAY, or Happy, or pleasure of any kind, it damaged, it's one vicious cycle after another. I don't know the answer to anything. I know that thousands and thousand of other chronic pain sufferers are going through this exact agony too, and it angers me, enrages me, I sometimes want to scream but I don't think I would be able to stop.
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Womannchains
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I feel for you, there has to be around this stupid law, have you considered talking to a lawyer? Wish I could be of more help, sending love n hugs if you can bear those, peace and pain free hours......
wow i feel for you. no worse medical condition than physical pain, imo.
i suppose you’ve tried different doctors? im sure there’s a way for the right doctor to justify an exception to the government guidelines, if they are willing to go through all thr red tape. (but i know how government “guidelines” can become the absolute bottom line, even when unintended.
howabout international options? have you explored the possibility of going to canada, or some progressive european contry, or the caribbean perhaps?
I can relate with you with the handling of opioids by the government .. I also suffer from chronic pain having had 5 back surgeries , MRSA several times , major depression, anxiety and ptsd lol! Wow don’t wanna remind myself ,, But your so right I never abused my opioids either had a high dose because I had been managing my pain for over 20 yrs with opioids ,, I was able to exercise, have a life was able to think , concentrate not be overwhelmed with pain that’s practically unbearable at a constant 10 .. being stuck unable to be physical adds to the depression and no matter what I do it’s a vicious circle I like yourself wanna roll in a ball and hide from reality go to a peaceful painless place but that’s not realistic and I’m terribly hard on myself for no longer being able to move forward .. I had issues with workers Comp on a monthly basis for years trying to modify my meds which resulted in me having to file appeals hence went through monthly opioid withdrawel ,, my Doctors kept me on my required dose but the dea etc messed with workers Comp where they expected me to go from 90 pills per month to 23 it was ridiculous and cruel .. I’m currently without any pain relief my Drs have retired and I’m having a time trying to find pain management who will take on my case with workers Comp being its so old and workers Comp being a pain in the ass,,sorry about getting on a rant ,, I empathize with you and want you to know your not alone and you’ll make it through this there has to be an alternative for those suffering with chronic pain we were offered nothing to replace the relief we got from opioids .. I don’t see it any different than someone requiring heart meds or insulin we need this medication to relieve unbearable pain it takes over your life ,,I hope I can make a difference before I die to change things for the injured workers and all who suffer from chronic pain and basically been left to friggin suffer.. it’s wrong.. I wish you peace and happiness and relief from your pain and depression,,
Oh dear, I so feel your suffering, and I am crying with you. The injustice of what the government has done to us, and thousands more, is criminal. I never thought I would see the day when it would get this bad. Keep in touch! We can encourage each other every day!!! hugs!!
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