I find the thyroid forum far more active than the coeliac forum hence posting here
It seems i cannot have a colonoscopy and gastroscopy as i cannot tolerate fentanyl, midazolam or the spray, each of these is contra-indicated with various conditions.
I know biopsies cannot be taken so i will never get my definitive diagnosis of coeliac, but i feel there is more going on than coeliac. So is it worth having this?
I know it won't give all the answers, but since i cannot face a gluten challenge at this point (only just noticing tiny improvement in absorption, etc) and the drugs they will use make me ill for 3 months, should i have this procedure?
Background: undiagnosed/misdiagnosed crippling gut issues since 2006. Somewhat better since going gluten-free in aug 12, but still have gut issues. Also pernicious anaemia, Hashimoto's, suspected pancreatic exocrine insufficiency, neutropaenia.
I pretty much manage my health myself due to consisten nhs failures. This gastro referral is a long time coming after mistakes made in 09, but it's almost too late in a way as it is so much harder now for me to have these procedures which should have been done in 09