Glutened - so annoying. Glutegard any good? - Thyroid UK

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Glutened - so annoying. Glutegard any good?

Tasker profile image
27 Replies

I've been gluten-free for about 8 months and feeling much better for it, but now for the third time in recent weeks I've been glutened when eating out, despite eating food that should have been fine. I've had a headache all day and my belly has blown up like a balloon, and I know I will feel grotty and brain-foggy and anxious and low in mood for the next three or four days. So annoying, especially as this time it must have been at a pub where I've eaten GF before with no problem. For the first few months I must have been v lucky as episodes of contamination were rare, but this is now the third in about five weeks. I love meeting up with friends over a meal out or coffee at a cafe, and some of my work meetings are working lunches, but now it feels like I just can't keep taking the risk. Aaagh!!

I'm not coeliac (well, never tested, but don't think my symptoms indicated that) but having stopped gluten after advice from this forum, I can now really tell the difference when I have the tiniest bit by mistake. I saw a product called Glutegard advertised for sale on line which says it helps your gut to process gluten and so guards against the effects of contamination. Wondering if it's worth getting some (v expensive especially as sent from Australia, and I'm in UK) to take when I eat out in future. Has anyone tried it? Does it work?

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Tasker profile image
Tasker
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27 Replies
Rmichelle profile image
Rmichelle

Ooh im celiac and never heard of this?? Interesting though, its very difficult eating out as you have to put your trust in other people-even though it says gf it can still be contaminated by people using glutened utensils, ovens, work surfaces, hands etc. Oohi was glutenesed around 3 weeks ago at my mother-in-laws house i get really ill-vomiting and cramps. You should ask on the gluten free guerallars forum. Good luck.

Tasker profile image
Tasker in reply toRmichelle

Thanks for your reply. It reminds me that I am fortunate that my reaction to gluten is not as bad as it is for some; I feel for you with your worse reaction. It's been interesting to discover that ny reaction is not just physical but that it also affects my mental/emotional state. That bears out what others on here say about the gut-brain connection.

Will take a look at the other forum you mention - thanks.

Cooper27 profile image
Cooper27

I've read about glute guard, but I haven't found any comments about it that sound like they're from a real person and not just a good marketing department. If you do try it, let us know how you get on!

Tasker profile image
Tasker in reply toCooper27

I might give it a go, not least because I will be travelling in Africa with work for a couple of weeks later this year and especially in more remote areas it will be tricky to avoid contamination, so if I can find something that guards against the effects of that it'll give me peace of mind and help me make the most of the trip. Will report back!

Cooper27 profile image
Cooper27 in reply toTasker

I guess the tough thing is, if glutegard does work, you'll not really know! In fact, that was the one review I did find, something like: 'my wife has been taking it, so far she hasn't been glutened, but we can't tell if that's thanks to glutegard, or if we've just been lucky in restaurants' :D

Rmichelle profile image
Rmichelle in reply toCooper27

Yes i think that is a good point-i surpose the only drastic way to find out is to eat a gluten food-madness for us celiacs as i would not entertain throwing up with cramps for the next 24hours😠😠

Tasker profile image
Tasker in reply toCooper27

Yes, you're right. Tricky to weigh up whether it's worth trying or not! Could be a very expensive placebo.

Peanut31 profile image
Peanut31 in reply toCooper27

I found this article as I was also interested.

coeliac.org.nz/announcement...

Tasker profile image
Tasker in reply toPeanut31

Thanks for the link. I definitely intend to stay strictly GF but if Glutegard might help with inadvertent contamination when eating out or travelling, it might be very useful.

Peanut31 profile image
Peanut31 in reply toTasker

Yes, absolutely especially when travelling.

Best Wishes

Peanut31

Cooper27 profile image
Cooper27 in reply toPeanut31

Thanks! I did read it back when. My OH is coeliac, so I definitely wouldn't recommend it as an alternative to a GF diet, it's just to protect against cross contamination. We always eat in restaurants recommended by other coeliacs, but sometimes he'll get sick, and that means time off work. If it just means less of that, that would be great!

in reply toCooper27

What do you buy and how do you take it? Thanks, irina

Tasker profile image
Tasker in reply to

I haven't bought anything yet; just considering the options...

Ashanat profile image
Ashanat

I’ve read that activated charcoal works for this! I take for detox and on a recent trip a friend was glutened, took some and improved :). It’s cheap as chips too

Tasker profile image
Tasker in reply toAshanat

Cheap sounds good! Will give that a go. Thanks.

Ashanat profile image
Ashanat in reply toTasker

Worth a try, it’s what hospitals use for drug and alcohol poisoning!! It’s very effective for a hangover in my experience too 😁

Josiesmum profile image
Josiesmum

Here's one you can get in the UK that was recommended to me:

healthmonthly.co.uk/enzymed...

This is a less expensive one:

amazon.co.uk/BioCare-Gluten...

Tasker profile image
Tasker in reply toJosiesmum

Interesting, thanks. Will look into that.

Marz profile image
Marz

Glutenza is another product I have read about ...

Tasker profile image
Tasker in reply toMarz

Thanks for the suggestion.

Sheffield6 profile image
Sheffield6

I went gluten free for 7 months but found no improvement.

Marz profile image
Marz in reply toSheffield6

Gluten damage is invisible - so perhaps the improvement is also. Read Dr Datis Kharrazians book - Why Isn't My Brain Working - where he mentions how gluten molecules can penetrate the blood brain barrier and cause inflammation :-) So much going on in side - we only know about it when it's too late - if we ignore it that is :-)

Tasker profile image
Tasker in reply toSheffield6

I think it's quite individual. But I have found very obvious improvements (fewer gut issues, migraines almost completely stopped, and more) and I'm guessing there are probably invisible improvements too, as Marz says.

Cup-cake7 profile image
Cup-cake7

Im sorry iv not heard if it have you got ingredients

Wondering also if worth looking into digestive ensyme

I know some take it at meal whenever unsure

Also important to remember the base to heal leaky gut and bacteria, helps me no end all round when gut string

Good luck

Cup-cake7 profile image
Cup-cake7 in reply toCup-cake7

Sorry!!! Lol on phone and didnt see replies

Like the sound of glutese etc

Tasker profile image
Tasker in reply toCup-cake7

Thanks. Am also making my own kefir to try to heal gut so hopefully that's helping too!

Cup-cake7 profile image
Cup-cake7

Good for,you tasker!! Il try follow in footsteps. I saw a bio chemist this week who stressed the importance this is why a lot of conditions materialise and the antibodies, the body sees the little bits that get through the lining as invaders!!! So clever lol

Bone broth another good one A bit of expense but Nutri do two products for lining and flora x

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