Have asked on coeliac forum, but wanted views from 'thyroid people' too:
I have Hashimoto's Thyroiditus, Pernicious Anaemia, achlorydia, neutropaenia, iron def anaemia - i manage all these myself as NHS will either not prescribe what i need, or not in sufficient doses.
I am alot better since self medicating.
I have had chronic gastric issues since 06 - same time as Hashi diagnosis. NHS misdiagnosed as IBS and left me to own devices. Fast forward: serious malabsorption issues and a host of symptoms. Two private specialists are almost sure it's coeliac. NHS refused to test initially and i had already stopped gluten by time they begrudgingly did blood tesTs TGA and IGA.
Now i have finally been referred to an NHS gastro. My private GP told me years ago he was the best and it's been a battle to see him on the nhs. He wants to do these procedures which mean eating gluten ie being off sick and also using 2 drugs i had a very bad reaction to in Jan during surgery (only just recovered) - Fentanyl and Midazolam.
I nearly lost my job last year due to sickness (thyroid) which led to capability issues (reduced hours most of the year, career really suffered,etc)
I cannot bear to have to go sick again for around 3 months. I have exhausted my sick leave so would be on half pay and will struggle to pay mortgage.
I feel sort of better off gluten, but have still have episodes so don't really know what's what.
I am leaning towards telling them to shove the procedures as it is not worth risking my career and the tension that will undoubtedly arise with senior management. Plus it's stressful and depressing being sick as i live alone and am totally self sufficient, no support.
NHS doesnt do much for coeliacs beyond a few g-free products from what a i can tell - i know they dont monitor malabsorption, etc. And if it's IBD i hear they do a poor job on that too
So final question: what value will these procedures add? Are they worth the risk and sacrifice?
(before anyone asks, no - we have a crap OH dept and i previously took out a grievance against them).