Have got my test results back from Blue Horizon, they don’t seem to match with me feeling as ill and disabled as I am and the lab states my thyroid is normal.
I think the Free T3 and Free T4 are wrong, but would that make me this ill?
My active B12 is high at >150 in a range of 37.5 - 150
Serum Folate 19.80 in a range of 8.83 -60.80
Ferritin 78 in a range of 13-150
Vitamin D 87 in a range of 50-200
Magnesium 1.0 in a range of 0.7-1.0
CRP 1.0 in a range of <5
TSH 2.51 in a range of 0.27 to 4.20
Free T4 14.3 in a range of 12-22
Free T3 3.6 in a range of 3.1 -6.8
T4 Total 98.2 in a range of 66-181
Anti-Throglobulin Abs 14 in a range of <115
Anti-Thyroidperoxidase abs 81.9 in a range of <34
Cortisol (Random) 451.0 in a range of 73.8-507
I thought I knew a lot about thyroid but honestly I am at a loss at the moment, what do others think of these results?
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Griselda1
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The test was done on 75mcg, I think it was you who told me to wait until I had been on that dose for 6 weeks. I did the test in the morning and did not take Levo before I did the bloods.
Guidelines on eventual dose is approx 1.6mcg per kilo per day
Many, many members do very well on just levo provided dose is high enough, being aware of avoiding different brands. Work out which brand suits best and always get that brand
Plus good vitamin levels
And gluten free/dairy free often beneficial or essential
Increasingly possible to get T3 prescribed alongside Levo if necessary
And T3 on private prescription is relatively cheap
Thanks, I have only just ordered NDT and as I was much better on NDT in the past it is worth trying I think. Very difficult to get specific brands of Levo prescribed, I have tried and it works for a while then off they go again prescribing whatever is at hand.
I weigh 9st 9lb.
Difficult to tell if there is a change as I am very unwell at the moment complicated by a very bad back which may be a nerve issue. Could also be a Sjogren's flare, really not sure but MRI booked for next Tuesday, don't know if that will show the problem though if it's nerve damage or autoimmune attack.
The FT4 and FT3 aren't 'wrong' but they are very low in the range which means far from optimal, thus you are likely feeling a little unwell, plus your TSH is higher than would be ideal (around 1.0). The ranges for these values are very wide and thus doctors will tell you all is normal when in fact things are starting to go pear-shaped. Another indications things are not well with you are your raised TPO antibodies, an indication you have autoimmune thyroid disease, potentially in its early stages. If you were to re-test in a year's time likely your TSH would have risen much higher, and you'd be feeling even worse.
Long story short - you have autoimmune thyroid disease, likely Hashimoto's in its early stages and you really need some thyroid hormone supplement to try to improve how you feel.
Thank you, as I am a smoker the THS levels are probably higher than reflected in the test. I know I have Hashimoto's and ad TPO antibodies years ago so it isn't in the early stages. I think I am going to switch to NDT and I think my Free T3 and 4 need to be higher but it's hard to know the best thing to do as I am so unwell.
You definitely need more thyroid hormone, so if you can get hold of NDT and start slowly (I think 1/2 grain per several weeks to increase) then re-test again to see how your labs are, and how you are feeling. If you wait for the NHS to decide you have something wrong then you'll be ill a long time, sadly.
I'd say go to the TPAUK forum where there are many people who take NDT, and are experienced with advising how to take it. NDT contains T3 as well as T4 so some caution is needed and I'm no expert (as it didn't agree with me any more than Levo did, I take T3 only). tpauk.com
Your hypothyroidism is autoimmune as confirmed by high TPO antibodies
Are you on strictly gluten free diet and/or dairy free diet
If not, get coeliac blood test BEFORE trialing gluten free
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Thank you, I know it is autoimmune and I also have Sjogren's (double whammy) as well as type 2 diabetes. I had a test for celiac some years ago which was negative. My diet is largely gluten and dairy free but I fell off the wagon this week as aside from everything else I can hardly walk due to sudden back pain, it never just rains does it?...
Can't go vegan due to diabetes and need to keep carbs low.
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