I've been feeling great on the Tirosint. Maybe too great. I talked my endo into a blood test just so we had range numbers. My TSH went from 0.5 last month to 5.0 this month. Endo did not test vitamins so I don't know my B12 or Ferrrtin.
Endo and GP refuse to refer to oncology.
My thyroid came out 1/28/21. I've been on 100 mg Levo, Sythroid with bad side effects since. Hence the trial of Tirosint. No radiation pill. They said I wouldn't need it.
Is my brain still trying to get my thyroid to wake up when it isn't there or is my cancer back?
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Audley1013
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I have no idea how you, with no thyroid gland at all, can recover your health on levothyroxine alone.
You need a combination of T3/T4 at the very least. I cannot tolerate levo (T4) and have recovered my health on T3 (the active thyroid hormone needed in all of our T3 receptor cells and brain/heart contain the most). T3 is also called liothyronine.
In the UK we were prescribed Natural dessicated thyroid hormones and it contained all of the hormones a healthy gland would do. Unfortunately this seems to have been removed by those who are supposed to be 'experts' but seem to have no knowledge about how to allow their patients to recover their health.
I have my thyroid gland but could not improve my health on levothyroxine at all. I am well on T3 only.
Do you follow this procedure when having a blood test?
1. get the earliest blood draw. It is a fasting test and don't take thyroid hormones before but afterwards.
For full Thyroid evaluation you need TSH, FT4 and FT3 tested.
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Hello everyone and thank you for your help. Yes. You have taught me to get the earliest blood draw I can. I take no supplements so no biotin to stop. Yes, I fast. Endo refuses to test for B12 and ferretin. I'm still paying off my surgery. When I can swing the private testing I will.
In the mean time here are the TSH results the last 1.5 years. the 6/12/20 on 1.47 is my pre papillary cancer diagnosis reading.
This test was performed using the Siemens (DPC) Chemiluminescent method.
Values obtained from different assay methods cannot be used interchangeably.
Thyroglobulin levels, regardless of value,should not be interpreted as
absolute evidence of the presence or absence of disease.
Measurement of thyroglobulin antibody levels are most useful with concomitant
evaluation of thyroglobulin levels,as the presence of thyroglobulin antibodies
(anti-TG) can interfere with thyroglobulin assays.
Thyroglobulin AutoAb 69 IU/mL
<44 IU/mL H
Component Your Value Standard Range Flag
Free T3 2.83 pg/mL
2.3 - 4.2 pg/mL
Details
Past Results
Graph of Past Results
Component Results
Component Your Value Standard Range Flag
Free T4 1.10 ng/dL
0.76 - 1.80 ng/dL
I welcome any and thoughts/suggestions. Again, thank you for your help. I ate alone for the American Thanksgiving as I didn't want to risk Covid with my family traveling in for the holiday. As I was thinking about my blessings and what I was thankful for this year, all of you and this site sprang immediately to mind. Thank you for everything.
I feel better when my TSH is a little higher too but I would be a lunatic if my Tsh hit 5 and if you had thyroid cancer you need to have a scan every year and I would think 5 would be too high at least my Endo would find it unacceptable since I had thyroid cancer.
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