Is It Time to Panic Now?

[Audley1013]

I've been feeling great on the Tirosint. Maybe too great. I talked my endo into a blood test just so we had range numbers. My TSH went from 0.5 last month to 5.0 this month. Endo did not test vitamins so I don't know my B12 or Ferrrtin.

Endo and GP refuse to refer to oncology.

My thyroid came out 1/28/21. I've been on 100 mg Levo, Sythroid with bad side effects since. Hence the trial of Tirosint. No radiation pill. They said I wouldn't need it.

Is my brain still trying to get my thyroid to wake up when it isn't there or is my cancer back?

[radd]

Audley1013,

Or maybe Tirosint is doing it’s job well just as Synthyroid didn’t.

Did thyroid hormones levels correlate with changed TSH? ie drop?

Assay interference isn’t unknown with TSH commonly effected when for instance biotin isn’t stopped before a test.

Sorry to hear about your cancer & it must be worrying. Can you ask for labs to be retested in a different lab whilst ensuring to stop all supplements?

[shaws Administrator]

I have no idea how you, with no thyroid gland at all, can recover your health on levothyroxine alone.

You need a combination of T3/T4 at the very least. I cannot tolerate levo (T4) and have recovered my health on T3 (the active thyroid hormone needed in all of our T3 receptor cells and brain/heart contain the most). T3 is also called liothyronine.

In the UK we were prescribed Natural dessicated thyroid hormones and it contained all of the hormones a healthy gland would do. Unfortunately this seems to have been removed by those who are supposed to be 'experts' but seem to have no knowledge about how to allow their patients to recover their health.

I have my thyroid gland but could not improve my health on levothyroxine at all. I am well on T3 only.

Do you follow this procedure when having a blood test?

1. get the earliest blood draw. It is a fasting test and don't take thyroid hormones before but afterwards.

[SlowDragon Administrator]

Just testing TSH is completely inadequate

You may simply be under medicated

100mcg is not a high dose

Approx how much do you weigh in kilo

Guidelines on dose levothyroxine by weight is approx 1.6mcg per kilo per day

That’s only a guideline…..some need higher dose

Essential to regularly retest vitamin D, folate, ferritin and B12

We need optimal vitamin levels for levothyroxine to work well

[SlowDragon Administrator]

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

[Audley1013]

Hello everyone and thank you for your help. Yes. You have taught me to get the earliest blood draw I can. I take no supplements so no biotin to stop. Yes, I fast. Endo refuses to test for B12 and ferretin. I'm still paying off my surgery. When I can swing the private testing I will.

In the mean time here are the TSH results the last 1.5 years. the 6/12/20 on 1.47 is my pre papillary cancer diagnosis reading.

Standard Range

6/12/20 3/19/21 6/30/21 7/23/21 9/1/21 10/18/21 12/4/21

TSH

0.34 - 4.82 uIU/mL

1.47 0.67 0.85 1.16 1.05 0.50 5.40 H

THYROGLOBULIN <0.2 ng/mL

2.0 - 35.0 ng/mL L

This test was performed using the Siemens (DPC) Chemiluminescent method.

Values obtained from different assay methods cannot be used interchangeably.

Thyroglobulin levels, regardless of value,should not be interpreted as

absolute evidence of the presence or absence of disease.

Measurement of thyroglobulin antibody levels are most useful with concomitant

evaluation of thyroglobulin levels,as the presence of thyroglobulin antibodies

(anti-TG) can interfere with thyroglobulin assays.

Thyroglobulin AutoAb 69 IU/mL

<44 IU/mL H

Component Your Value Standard Range Flag

Free T3 2.83 pg/mL

2.3 - 4.2 pg/mL

Details

Past Results

Graph of Past Results

Component Results

Component Your Value Standard Range Flag

Free T4 1.10 ng/dL

0.76 - 1.80 ng/dL

I welcome any and thoughts/suggestions. Again, thank you for your help. I ate alone for the American Thanksgiving as I didn't want to risk Covid with my family traveling in for the holiday. As I was thinking about my blessings and what I was thankful for this year, all of you and this site sprang immediately to mind. Thank you for everything.

[Batty1]

Im confused… your on tirostint and your TSH is 5 and you feel good, is this correct?

[Audley1013 in reply to Batty1]

Yes.

[Batty1 in reply to Audley1013]

I feel better when my TSH is a little higher too but I would be a lunatic if my Tsh hit 5 and if you had thyroid cancer you need to have a scan every year and I would think 5 would be too high at least my Endo would find it unacceptable since I had thyroid cancer.

[Audley1013 in reply to Batty1]

I am in lunatic worry mode.

[Audley1013 in reply to Batty1]

I even went running for the first time in years.