C Reactive Protein (high sensitivity) H 5.26 <3.0 mg/L
25 OH Vitamin D L 73 75 - 175 nmol/L
HAEMATINICS
Iron H 32.8 10 - 30 umol/L
UIBC 27.2 24.2 - 70.1 umol/L
TIBC 60 41 - 77 umol/L
Ferritin H 163 13 - 150 ug/L
Transferrin Saturation 55 20 - 55 %
Active B12 86.0 37.5 - 188 pmol/L
Folate (serum) L 5.0 8.83 - 60.8 nmol/L
-------------------- End of report ---------------
My iron is probably high due to the fact I was taking some, incase I was low in iron and that was causing my fatique. I have since stopped taking the iron. I haven't been able to exercise too tired. My TSH - always runs low. Does anyone have any ideas, please? FYI I started out with hashimotos in 1979 and drank radioactive iodine later that year when I was living in Texas. The thyriod clinic was at Scott & White in Temple Tx. They said they were the pioneers of this treatment - which with hindsight - I shouldn't have agreed to. At 21 years old you tend to believe what a doctor tell you. Thank you
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If yes, do you always get same brand levothyroxine and T3 at each prescription
Or NDT?
Was this test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
Last 1/3rd of daily T3 or NDT roughly 8-12 hours before test
thank you for your reply. I appreciate your help. I was taking amour thyroid ( pigs thyroxine - I think) and had been on it since 2003 in Florida. I was getting on the NHS - since my return to the UK in 2012...but a couple of years ago...the NHS stopped using it. Instead of changing meds then...i asked my Florida Dr. He writes the script for me since I usually see him 2 times a year and knows me and my health history well. . This has levothyroxine 38 mcgs and liothyronine 9 mcgs x 2 a day. I started to feel knackered again and found out that it's not always relaible and some of the batches has been recalled again. So, this may be the reason - I didn't feel well. I went to see a private UK DR and she wrote me - liothyronine 5 micrograms x 2 a day (mmorningside) and levethyroxine (accord) 100 mcgs x 1 a day. And that's what I was on when I took those tests - fasting 12 hours - first thing in the morning around 8 am after drinking a liter of water... and nothing else as I struggle getting blood out. This whole 2 x daily messed me up too - as I usually take my vitamins/suppliments around lunchtime and my thyriod meds around 7.00am. Now I have to wait till teatime/supper and I've been forgetting a lot ( incase there is any calcium or hidden calcium in the suppliment). Hense the low VIT D. I normally take thyroid support suppliment, superself immune complex and omega 3...and if I remember natures aid cal/mag with D3 b4 bedtime. thank you.
Thank you slow Dragon....The last dose of levothyroxine was 25 hours b4 the test and T3 was 20 hours b4 - I've spoken about this with the Dr as my TSH has always been low. At one point and endocrinologist said I have pituitary gland issues...but I don't remember getting it tested? I have always been a poor converter T4 to T3. Since the T3 is so expensive around £220 per 28 days...what do you think of if I ask for 200 mcgs of T4 and just 5mcgs of the T3? or would that be too much? (I did write to the Lord Bethal head of NHS - thro a link about the cost of T3). I can get T3 much cheaper in the states - and isn't that something that the most expensive health care system in the world - works out cheaper than the UK for thyroid meds/
Yes, I know that Thybon Henning is cheaper, unfortunately, I had an allergic reaction to it (as listed as such on the PIL) so I tried Teva T3 and Springfield Pharmacy charged me £220 for a pot of 28 tablets, plus next day delivery charge. ☹️
Thanks for the info SD, I’ll take a look at all the options and do some ringing around. I’ve been cutting 20’s for 10 currently but will probably need more. My problem is with the fillers as I’ve tried Uni Pharma and Tiromel which were a LOT cheaper ☹️
I just found the converserion table - from amour to thyroxine - 2 grains would equal 176 T4 - so maybe try since I'm a poor converter - 200 mcgs of levothyroxine or 175 lev and 5 mcgs of T3? What do you think?
I had RAI for Graves is 2005 and find NDT easier and softer on my body and am managing lingering Graves, thyroid eye disease, caused by the RAI and hypothyroidism.
I am in the UK and am self medicating as the NHS refused to prescribe either NDT or T3.
RAI is a slow burn that ultimately renders your thyroid burnt out and it seems logical to me to replace like with like.
There are several set of symptoms that can occur after RAI ingestion, and fibromyalgia type symptoms as well as Sjogren's type symptoms have been well documented.
Your TSH may never recover well into the range, as again, with Graves, which I presume you were initially diagnosed with, there are antibodies that sit on TSH receptors and falsely drive your TSH down, so it is never a true reflection of your thyroid levels and you must be dosed and monitored on your T3 and T4 blood test results.
If on synthetic thyroid hormones we tend to feel at out best when T4 is in the top quadrant of the range as this should in theory give a good level of T3. Too low a T3 and you have symptoms of hypothyroidism just as with too high a level of T3 and you may likely have symptoms of hyperthyroidism.
T4 is a storage hormone and needs to be converted by your body into T3 which is the active hormone that runs the body.
Your conversion of T4 into T3 can be compromised by low vitamins and minerals, especially, ferritin, folate B12 and vitamin D and also through any physiological stress emotional or physical, dieting, depression, ageing and possibly other medication interactions.
Having had RAI you have in effect lost your own T3 thyroid hormone production which roughly equates to around 20% of your over wellbeing, and whilst your body will go into overdrive to overcome this shortfall, over time, you will find yourself down regulated and your overall health compromised.
A fully functioning working thyroid would be supporting you with T1. T2 . and calcitonin plus a measure of T3 said to be at around 10 mcg daily plus a measure of T4 said to be at about 100 mcg daily. T3 is about 4 times more powerful than T4 with the average person needing to convert and utilise around 50 T3 daily just to function.
Since you were well on NDT for a period of years maybe this is worth reconsidering and discussing with your private endo.
Hi Pennieannie, I had the RAI in 1979 when I was 21 yrs in Texas as it was believed to be ground breaking treatment at that point in time. I am now 64 and for the first 22 years was on thyroxine and ended up having a thryroid storm....found a good endo and ended up on natural thyroid meds ( amour thyroid). I am not a good T4 to T3 converter. My thyroid antibodies haven't been bad for years and my reverse T3 is normal these days too. (I think this is due to my change in diet and lifestyle). The relationship between the TSH T3 and T4 has never been good.
I do have the fibromyalgia symptoms from time to time, this is usually when I've strayed off my strick gluten free/no additives/no preservatives/artifical sweetner eating plan. It's all too easy to do when you eat out or go on holiday. My local GP believes I also have cronic fatique/fibromyalgia. I believe it's my allergies/sensitivities to the typical modern diet and low thyroid. I take natural multi thyroid vitamins/minerals which has ferritain, selenium, Vit D etc. I had changed them to ones with iron in for a while, which also seemed to screw me up and were not as good as my regular brand.
Can you please tell me what test you order from a private lab that tests the T1 .T2 & calcitonin . Or what tests you would order in my position. I currently do my thyroid tests via Thriva.
Lastly, is there someone you follow on youtube or google that I could read more about what you are saying as it's very interesting and I'd like to look into it further?
A few year back when I was living in Florida fulltime, I added HRT bio-identical hormone treatment, 'BioTE pellet'. After my family Dr there said, you might feel better on hormone treatment....and sent me to the gyno who said I was ideal for this treatment.... I tried it. I must add for the first time in years....I really felt good and healthy. This is an inplant that has to be done every six months...It also contains some testoserone... you can't get this treatment in the UK - or I haven't found anyone who offers it. It seemed to be to be like the missing link. Since covid, I have been unable to go back to the states and have been looking into alternatives as to what the UK can offer me....any suggestions would be welcome.
Elaine Moore's - Graves Disease A Practical Guide :
Elaine's has Graves and went through RAI around 25 years ago :
She now has several books published and the Graves Disease Foundation website with a world wide following :
Barry Durrant-Peatfield's - Your Thyroid and How To Keep It Healthy :
This book is written by a doctor who has himself hypothyroidism and takes NDT.
I think both the above books are available through the Thyroid UK website where you can also read so much more on all thyroid health conditions and treatment options available in the UK.
Graves is an auto immune disease, so in reality, it is for life.
The thyroid becomes the victim in all this and read Graves is very much a stress and anxiety driven AI disease and I wonder what happened to trigger your immune system response and send you into a thyroid storm some 22 years after RAI ?
What treatment were you given then ?
Had your gland regrown ?
Was your first dose of RAI not adequate to burn through and fully disable your thyroid the first time around ?
The thyroid gland produces " trace " elements of T1. T2 and calcitonin - I'm not aware there is a blood test - I just get a yearly full thyroid panel more to see where my ferritin, folate, B12 and vitamin D sit than where my T3 is and believe this is generally 10 blood tests, commonly referred to as a thyroid bundle or an advanced thyroid blood test.
After RAI it's inevitable that you will be a poor converter, as the thyroid gland dies so your own T3 and T4 production diminishes and you are then prescribe replacement thyroid hormones and if just on T4 monotherapy you have in effect been down graded by around 20% of your overall wellbeing.
Restoring both T3 and T4 - and replacing like with like, is logical, but many in mainstream medical seem to believe T4 only is the answer.
However what we need to have to accept and understand is that RAI is also taken up by other glands and organs within in the body and it's long term consequences are not well publicised.
I understand that RAI is now not so frequently suggested in the States and there is a general move away from this toxic substance as a medical " therapy " for Graves Disease.
I know nothing about HRT - I was trialled this by my doctor, as I was anti depressants for a very short period, as I didn't want either, as all I really needed was full spectrum thyroid hormone replacement which I now have to buy and monitor and dose for myself, as I was not given any treatment options other than T4 monotherapy the the UK NHS service.
I'm sure if you can afford to go privately there are treatment options on offer just be sure you get a referral to an endocrinologist who is known to be supportive of thyroid health and all the treatment options.
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