I test yearly with Thriva, so I have a complete picture. Got my results, Thriva says to see GP within 7 days because of the low TSH.
Thing is, I feel fine. Last year my TSH was too high and they increased my dose from 150mcg to 175mcg. Then my TSH dropped and dose was decreased by having 175mcg M, W, Fri and 150mcg on the other days (current dose).
Seems that's too high, so I am pretty sure my GP will say to go back to 150mcg all the time. Which will start the whole cycle again.
Anyway, thoughts? I was diagnosed with Hashimoto's in 1986.
Hi just noticed your post .. and i can't believe no one wanted to talk to a Rhubarb Giraffe yet ... i do .. unfortunately i'm now 'past it' for tonight and can't concentrate enough to read your post properly.
In the meantime , if you look at my reply to this post (3rd reply down) healthunlocked.com/thyroidu... (feeling-fine-but-tsh-is-low ) you will find links to some useful discussions and evidence on the subject of Low TSH / Risk / Quality of Life. Also has link to large long term study showing TSH 0.04 -0.4 on levo had no greater risks than TSH 'in range' does ..... lower than 0.04 did increase risks , but still not greater than TSH over 4 does... and you'll never find a GP panicking about the risks of TSH 5/ 6/ 7 ...
and this one , a recent study which shows low TSh is not such a big problem for bones as they keep telling us it is. healthunlocked.com/thyroidu...
Hope that makes sense ..off to bed now it's been a hard day .. water company turned the whole towns water off without giving anyone time to even fill a kettle yesterday ... supposed to be back on now ..but still isn't ...great.
nope .. not even a dribble ... just had to go out on my bike and fetch some from the back of a lorry in a car park ... it's all very reminiscent of the 1970's... just need a power cut now and i'll be ready for 'Retro' Christmas .
Your FT4 is a little over range whereas your FT3 is still below mid range. Could be indication poor conversion.
If you decrease LT4 then it’s very likely that as your FT4 lands into range your FT3 will become too low & you’ll get a return of hypo systems as you describe.
By the look of it your B12 is good at being above mid point of range but other nutrients aren’t optimal & that can be a factor in poor conversion.
Do you currently take any supplements?
25 OH Vitamin D 76 75 - 175 nmol/L Usually range is lower - is this a optimal range? - might be worth adding a low dose supplement (or increase dose).
Ferritin 58 13 - 150 ug/L ferritin optimal at 80. What is diet like? Can you increase Iron rich foods?
Folate (serum) ** 12.5 8.83 - 60.8 nmol/L. Mid point is 34.8 the advice is to try a b-complex with methyfolate.
I'm not taking any supplements at the moment. I plan to take VitD again.
I'm vegetarian and gluten free, plus quite lazy, so my diet is so-so. I think I'll probably need to supplement to get more iron.
I was also planning on supplementing folate based on these results - another thing Thriva said I should do (along with contact the GP).
I'll post my TSH and T3 over time - quite clear that it is only on low TSH that my T3 is any good. (NB: one year didn't test T3 because I chose the wrong test bundle)
I agree with purlenails. Looks like you are a poor converter.
I think the issue is more that your FT4is over range. I think there’s a post on here that they have found that is definitely not good for you. I think it was jimh111 if you look on his posts it might be there
Obviously you feel better with it higher as that gives you slightly more FT3. But I’d still be feeling rough if it was me. I feel you need to somehow get a trial of T3 added to your (slightly reduced) T4.
Yes it was me. I used to believe it was fine for people to be on levothyroxine monotherapy if they felt OK. However, recent research shows that people with a high normal fT4 have a higher cancer and cardiac risk than those with a low normal fT4. This is a risk specific to the action of T4 (not T3).
The general population have little choice, some will tend to have a higher fT4 and some lower. In the case of hypothyroid patients we have a choice. Do we target a high fT4 in order to get a normal fT3 or do we add in a little T3 to enable a lower fT4?
Hence, I now feel that most patients should be given combination levothyroxine / liothyronine therapy to facilitate euthyroidism with an fT4 in the lower part of its reference interval. I would try to avoid an fT4 that goes high.
These risks are age dependent. Young people tend not to have cancer or cardiac issues, the risks really become relevant as we get older.
I'm 50 now, so I am not a spring chicken any more. I do have some palpitations occasionally, but I was putting those down to perimenopause. Lots of things going on at the same time!
I'm not sure I have the energy required to fight for T3 from my GP. It's hard enough getting appointments as it is, not least because I find using the phone very difficult.
Maybe I could find a private endo who's good at thyroid and menopause...
Vitamin D at least over 80nmol and between 100-125nmol likely better
Folate and ferritin at least half way through range
Ferritin over 100 ideally
Serum B12 at least over 500
Active B12 at least over 70
Suggest you consider taking daily vitamin B complex as well as vitamin D
B vitamins best taken after breakfast
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)
Thorne currently difficult to find at reasonable price, should be around £20
If you want to try a different brand in the meantime, one with virtually identical doses of the ingredients, and bioavailable too, then take a look at Vitablossom Liposomal B Complex. Amazon sometimes has it branded Vitablossom but it's also available there branded as Yipmai, it's the same supplement
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
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