Experiences with

Radioactive iodine

hi All I had rai in December 2024 , just been to see endo and was advised levels are extremely high therefore need to back on carbizamole , has anyone else experienced this as I feel so much better than before treatment. Any advice welcome 😊

Hi can anyone help me please i found a link on here for suppressed tsh after radioactive iodine i thought i had save it but i cant find it now I read article saying that after radioactive iodine your tsh is suppressed and that doc should take more notice of your T4 & T3 My tsh is suppressed but not

Looking at the possibility of radioactive iodine for thyroid cancer as I’m not a good candidate for surgery. Has anyone on this forum had this treatment, and if so could you let me know the pros and cons. Many thanks.

Hello All, I am wanting to here from people who a immune deficency, I got mine thanks to radioactive iodine treatment along with MGUS and hypothyroid. I have low igg, i am not tolerating ndt or levo or t3 , life is super stressful.

Hi lovely people🫶 On the 1st of October I had Radioactive iodine treatment for Multinodular Goitre and Hyperthyroidism..I had the 6 wk blood test at "4pm"on Monday 11th Novemer.

hi everyone after been on Carbimazole 50 mg for 2 yrs my constant has recommended radioactive iodine treatment I’m really worried should I go for it or not has anyone else had this treatment and has it worked for them if yes what are the symptoms please. Thank you

3 Days before RAI..8TH OCTOBER FREE T4 =11.9 (12.22) FREE T3=4.6 (2.5-6.0) TSH=0.75 (0.4-4.0) 6 WEEKS AFTER RAI T4 10.5 (12.22 FREE T3=4.1 (2.5-6.0) TSH =1.1 (0.4-4.0) Would be really grateful for any answers on these results 🌻

I had radioactive iodine ablation for Graves’ Disease about 5 years ago, since then it’s been very difficult to manage the symptoms. Recently I’ve had my Levothyroxine increased by 25mcg - this was after some real reluctance from the GP as from blood tests they said I was within normal levels.

iodine treatment, can anyone let me know if you have had this treatment and how are you now.

Hi again everyone.I had the Radioactive Iodine treatment on the 1st of October. I was told I would have a sore throat /neck for a couple of days ! It's now the 18th October and I'm still in pain in those areas.It hurts to talk,swallow,yawn,cough etc.Is this the norm after this treatment.

hello, Can anyone tell me, if it’s preferable or advisable to have the radioactive iodine therapy, if thyroid has nodules?

Ive Been given choice of Radioactive iodine or operation. But VERY little other information. Relying on Google. They don't even know which one has the shortest waiting list or approximately how long I'll be waiting as in months or years.

My mom had her thyroid destroyed years ago by radioactive iodine. Since then she is taking natural thyroid hormone as she responded badly to the synthetic option.

I had a benign adenoma and had radioactive iodine to shrink it. Few years later had thyroid removed. I'm just wondering why my TSH has gone so high and if any of you have any advice on whether it may be a good idea to see a thyroid specialist. Thanks

Hi again to all of you...I am having Radioactive Iodine for my Hyperthyroidism with Multi nodular goitre in 3wks (1st of October).I have been told to stop my Carbimazole 2wks before. Has anyone got any suggestions as to what I should be aware of by stopping them? Thanks in advance 🌻

Back in my 30's had Graves Disease and had radioactive iodine treatment, which left me underactive and have taken 75mg thyroxine ever since.

Following referal to Endocrinology and every test under the sun, they decided to do Radioactive Iodine. However before it was started I dropped into a sub-clincal hyperthyroid state, where I have remained since until Jan 2025 when my free T4 was slighlty out of range.

As I do not have a functioning thyroid (due having Radioactive Iodine in January 2024) there seems to be little point in me taking supplements to support thyroid function.

Rather than be fluctuating between hyper/hypo, I'm considering the radioactive iodine treatment. Has anyone else had it and has it worked OK? I'm also having an MRI scan to check for TED as I have some issues with double vision.

hi there - I had radioactive iodine to treat Graves over 5 years ago. At that time I would regularly experience tightness in my neck with mild pain ie thyroiditis.