Experiences with

Radioactive iodine

Also, I infer from the leaflet that he's sent that his standard recommendation is Radioactive Iodine ablation which does not fill me with confidence. Can anyone recommend a good consultant to approach. I live in West Yorkshire.

Graves Disease -Subtotal Thyroidectomy 1989 Radioactive Iodine 1994 I currently take Levothyroxine 75mcg Monday to Saturday then 100mcg Sunday I was diagnosed with osteopenia after having 2x vertebral compression fractures and started adcal D3 plus HRTDec 2021 I haven’t seen GP as this was a private

hi all I have finally been given a diagnosis and it’s Toxic nodular hyperthyroidism I’ve already been taking a carbimozole & Diltizim 4 weeks ago My surgeon has requested a radioactive iodine treat to kill the nodule Just wanted to get everyone’s take in that

hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was

I have been hypothyroid for 20 years (after having radioactive iodine treatment for Graves disease). Because of covid (lack of vials at NHS) I have been tested once in the last three years and my dosage has been unchanged for many years.

I've had an underactive thyroid after radioactive iodine treatment 20+ years ago. After a recent health check - no thyroid results - but cholesterol results are 'a cause for concern'. I'm seeing the nurse next week when I expect statins will be suggested.

Also I was told years ago at my GP surgery that I should not be working night shifts while on Levothyroxine (I’m on it for life as I had radioactive iodine treatment as originally I had hyperthyroidism when I was diagnosed with Graves’ disease.)

I want to sincerely thank the amazing moderators who generously give their time to this forum, In particular, whoever posted the link to the 'endocrine reports from the front line' on Springer.com, (in December last year). Please message me so I can thank you personally for the journey you began!.

I am struggling with letting the Endo perform a radioactive iodine procedure to treat my Graves’ disease. The idea that my thyroid will be destroyed is unsettling. Has anyone had the procedure and has it helped. What is it like to have the procedure?

I don't know if it's best to have Radioactive Iodine treatment before hand or stick with medication, taking in to consideration the risks associated with each treatment. My thyroid levels at the moment are stable on 5mg carbamizole.

My tsh is 0.041 mU/L Free T4 7.9 pmol/L Free T3 6.3 pmol/L I had radioactive iodine in 2006 Thanks in advance

At the time my personal circumstances meant I couldn’t have the recommended surgery or radioactive iodine so I chose to have carbimazole and beta blockers. Eventually it settled down and I didn’t need treatment but it came back a couple of times needing more carbimazole.

Because of the side effects of radioactive iodine, I'm afraid to treat it. Now I take Carbimazol vs Propanol. I can't go to hospital because of my country's conditions. I want to get rid of this disease ASAP.

I was diagnosed hypothyroid about twelve years ago and given radioactive iodine treatment (and little alternative - I knew very little then and was scared into it by talk of heart attacks, etc). Since then I have been on levthyroxine.

What are your experiences of Radioactive Iodine or surgery for Graves’ disease. I am trying to decide which one to have.

I'm not having Radioactive Iodine as I already have poor saliva and it might make it worse. I have been on 150mg Levo up until 2/3 weeks ago when consultant suggested reducing to 125mg 2 or 3 days a week as I was experiencing some chest pains.

I don't know if I should have permeant treatment (Radioactive Iodine (RAI) or surgery) or stick to ATD (antithyroid drugs) before hand. Hospital doctor/nurse have given me a standard RAI leaflet and explained some of the pros and cons of all the options.

Because of TED, I cannot take the Radioactive Iodine and my Endocrinologist and Thyroid specialist both have been trying hard lately to get Thyroidectomy.

I have developed hypothyroidism post radioactive iodine treatment (Feb 24th).Unfortunately I only have some basic numbers re blood tests. I was started on 50mcg of Levothyroxine on 14th April after blood test showed TSH at 19.5 with free T4 at 13.

Radioactive iodine followed straight after in a cell for 3 - 4 days and lucky I appear to be free of cancer. I have a resistance to T4 so have only ever taken T3 120 ug spread over the day.